Tyler's Fight for Sight

$1,100 of $3,000 goal

Raised by 18 people in 13 months
Today, I am reaching out to anyone and everyone who might be willing to help, even though I hate asking for it. As many of you may know, my son Tyler has been diagnosed with a degenerative eye disease called Retinitis Pigmentosa, RP for short. RP is a genetic disorder that will cause the rods and cones in his eyes to deteriorate and he will lose his sight as he gets older, possibly making him blind by adulthood.

Tyler is 11 years old and is very active with his Boy Scouts and with his brothers Cub Scouts. He knows no stranger and is wanting to help whenever and wherever he can. He is a smart, funny, and strong young man and even with this diagnoses, he is not letting it hold him back. On Halloween, it was very noticeable that he could not see much of anything at night. Sadly, with RP night vision is the first to go then peripheral vision, which he is starting to lose too.

I want to start saving money for him for when his medical needs arise, however it is hard to start saving when you fall behind on bills. There are so many things I would like to do for Tyler before he loses his sight, but as many know, money is hard to come by. Even though bills and a medical savings account are the main purpose, I believe there are other things that we may need in the future. Hopes of getting another car with lower miles that would be easy for him to get in and out of, and enough storage that IF his sight gets bad enough, he would need a guide dog.

Sadly, we live in a small trailer and I know we are out growing it already. I know we will need something bigger than what we have and what makes it worse, the sooner I can get it the better for him. He would be able to learn the house and be more prepared for when his sight does go.

Recently, we were all able to meet my father and Tyler’s grandfather, who also suffers from RP. Tyler and I got to see firsthand, what he was on the path for. Instead of getting scared, he opened up and wanted to learn and ask questions. Tyler’s doctor is in Kansas City, who has referred us to Iowa City, stating that they have one of the best centers for people who have disorders, like Tyler’s. That trip has been put on hold, as well. Despite knowing he will lose his sight, this boy has the will and determination to stay positive. I want to continue to give him hope and keep the fear away.

I have added a link about RP so if you want to learn more about what is happening to Tyler, you can learn more about RP. The goal has been set at this amount because it would help catch up on bills and put money away for Tyler’s medical needs.

https://www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0024256/

I also, want to preemptively thank you, to anyone who is willing to help me and my son through the tough roads ahead.

Thank you from a scared and worried, but hopeful mom.
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With the help of the Topeka Capital Journal and everyone sharing this about Tyler, we have reached $1,000! Tyler is such a great kid and he told me that he is glad he has RP and not his brother Evan. I am so proud of him, he is so sweet and he tries his best to help anyone and everyone he can. He has embraced the diagnoses and he is not letting RP or anything stand in his way from doing what he wants too. To everyone who has donated and shared this, we would not be at this mark without you. Thank you everyone!
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There has been a lot going on over the last month, but Tyler is now officially a Middle Schooler!!! He has been in 7th grade for two weeks now and he seems to be liking it. Lucky for us, the school provides iPads and his has the option to read things to him. I am very thankful that he gets to use this and will help him be a successful student. Despite the RP, he has also attended a merit badge conference for his Boy Scouts and wants to become an Eagle Scout. Needless to say, I am so proud that he is not letting RP bring him down. He is not giving up, he is fighting and determined to succeed.
First day of 7th grade
His 12th birthday!
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It has been awhile since I have posted an update on Tyler. He is enjoying his summer to the fullest. He went to his Boy Scout summer camp and came home with three new merit badges! He is also working on three more! He is such a strong kid and is determined to become an Eagle Scout. He is not letting RP stop him, if anything he is using this to keep pushing. He is not afraid to tell people he has RP and will tell others about what it is so they too can learn about this. Sadly for me, this young man starts middle school and getting adjusted to a new and bigger school may be hard on him. We have raised $400 so far and even though it is short of the goal, I am grateful for everyone who has donated and shared so far, and I am optimistic.
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We are still going strong with $200 worth of donations and I thank everyone who has helped so far and others who are willing to help! It was brought to my attention that this sounds like I am asking for funds to buy a house and a car. I wanted to start by saying those are future goals and are unrelated to this goal. The $3000 goal is set up to help us catch up on bills and to start putting money aside for Tyler. With RP, there are going to be multiple trips, glasses, and in the future a guide dog. The mention of a house and car was to explain what I would do after bills have been caught up and money set aside for Tyler. After bills are caught up and money put away for Tyler, I would then be able to start saving and adding money to Tyler's savings, as well as, saving money for other purchases, like a house and a car. By all means, I am NOT asking for a house or a car with this.
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$1,100 of $3,000 goal

Raised by 18 people in 13 months
Created May 17, 2017
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$50
Anonymous
6 months ago
$25
Anonymous
8 months ago
$100
Anonymous
8 months ago
RM
$100
Randy Morehead
8 months ago

Love you guys!!!

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