TEAM TYLER ~Wheelchair lift for van

$21,949 of $25k goal

Raised by 274 people in 34 months
Heather Hans Allman  MISHAWAKA, IN
Tyler once was just like any other child. He loved playing baseball, swimming in a pool and doing just about anything. Then at age 9 Tyler was diagnosed with the cruel and terminal Juvenile Batten disease. Tyler is now blind, suffers from seizures and has lost most of his fine and gross motor skills. He is now wheelchair bound. It has become increasingly difficult to lift him in and out of our van and usually takes two people. Much of the time I am the only one helping him as my husband travels frequently. One slip could be catastrophic for any of us. We need to convert our current van into a wheelchair accessible one. Tyler is rapidly growing and at 5'9" and 140lbs he unfortunately is of no assistance in transferring him which adds even more weight for us to lift. Tyler is almost 13 and at the stage in this disease where we need a lot of medical equipment to assist him with everything including his ADLS, as well as a Hoyer Lift, new wheelchair, a stander, etc.  We need to convert our van and make it handicap accessible to transport him. The basic/standard conversion quote we received was $25,790. The expenses are starting to incur but we will do everything we can to make sure Tyler has the best quality of what he has left of his life. We want to be able to take him wherever we go! First and for most we need to ensure Tyler's safety; as well as not doing any further damages to our own bodies, as Tyler relies on us for many more physical daily tasks. We thank you for your consideration and your support as we try to make all of our lives as safe as possible for Tyler. They WILL NOT start converting our van until it is paid in full; which could take awhile. Unfortunately time is NOT on Tyler' side. Please share with whomever you can. Learn more about Batten disease at http://www.teamtylerallman.com
Thank you, God Bless and go TEAM TYLER!

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Update 28
Posted by Heather Allman
27 months ago
This…this my friends... is called freedom and gratitude! These past few weeks have been a whirlwind for us. We had the opportunity through a local dealership in Elkhart to purchase a pre-owned 2012 ready- to- go MV-1 that is the first of its kind that is specifically made for people in wheelchairs. They just started making these locally in OUR town! We were able to purchase this with our GoFundMe donations and sell our van. It was a true blessing in disguise to have the opportunity to do this ~~THE DAY BEFORE SCHOOL STARTED! Talking about perfect timing. It was also perfect timing as Royer then travelled out of the country for business and I didn't have that usual sick feeling in my stomach, wondering how I was going to get Tyler to and from school. Or to be able to go anywhere for that matter, as he has regressed so much with Batten disease It's truly incredible how God's timing works. It was great to be able to buy something locally made and not worry about sending our van out for a month or two to be up-fitted with a wheelchair lift. Although this wasn't what we originally had in mind; this definitely made the most sense in many aspects.
I took the kiddos out to the store BY MYSELF for the first time in over a year without worries. It was amazing! Tyler was busy playing with his new toy car to smile, lol. But Ryan's smile shows the look of relief for all of us! We know that someday we will pass this vehicle down to another family in our community that will need it. Paying it forward; just as ALL of you have for us! A HUGE thank you to each and everyone of you who has changed our lives by making our lives a lot less stressful. From kids giving their change from their piggy banks to asking for donations for Tyler instead of birthday presents. We are humbled by how much Tyler has touched other children's lives and knowing how these children will go on touching other children's lives as well. Thank you also to Drive & Shine who put on an amazing car wash fundraiser for us. It was an amazing day filled with TEAM TYLER love and support everywhere! Our friends and family spent the day having a blast! Also to The School City of Mishawaka who did so many fundraisers to help us reach our goal; these kids from Kinder -12th grade have hearts of gold for Tyler! Also to our MBUSA family; you have been such an amazing support of encouragement, love and giving…we love you! And as always ALL of TEAM TYLER~
With love and gratitude,
Royer, Heather, Tyler and Ryan
A stress free grocery outing!
GO TEAM TYLER!!
We thank you and God Bless!
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Update 27
Posted by Heather Allman
28 months ago
http://www.gofundme.com/tylerallman
Hello! This week has been such an emotional roller coaster. We were completely and graciously surprised that our interview with the South Bend Tribune made the front page! It was a beautifully written story that depicted Tyler's personal journey fighting Batten disease.
We have been taken back by all of your continued calls, texts, messages, emails, donations and prayers. We thank you all for helping us bring awareness to Batten disease as well as your amazing generosity in helping us reach our goal for our wheelchair lift.
We asked for your continued prayers as we have lost FOUR Batten children this week. To lose any child is devastating; but when there are only 500 affected in the US with Batten disease and 1,200 Worldwide~losing 4 children within five days is beyond anything you can imagine.
Here is the link to our beautifully written story:
http://m.southbendtribune.com/columnists/virginiablack/community-rallies-around-teen-but-needs-are-great/article_5bae7af2-10ba-11e4-8276-001a4bcf6878.html?mode=jqm#.U80RBzL9Yqk.facebook

Thank you for your love, we feel it.
Sending love, hugs and prayers.
Royer, Heather, Tyler and Ryan
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Update 26
Posted by Heather Allman
29 months ago
We are sooooo appreciative of John Young Middle School! These kiddos raised over $1,100 for Tyler! Thank you for being such amazing friends! We love you!!
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Update 25
Posted by Heather Allman
29 months ago
http://www.gofundme.com/tylerallman
WOW! Does time ever fly! I cannot believe that we are halfway through summer! But then again, we have had a lot of fun visitors, Royer has been busy traveling and Ryan, Tyler and I have been busy just.... Being! Our days are definitely full as Tyler has regressed and I have been busy trying to get our insurance company to understand that when my surgeon says I cannot lift for anything for 12 weeks, after a much needed tendon and ligament surgery on my arm....that includes not lifting Tyler who is 145 lbs+. It's been tough, but we have been super blessed by your amazing support as our medical bills are starting over and the lift for our van is a necessity. We truly appreciate all of your love, support and prayers! We hope you are all having an amazing summer!!! With love, Royer, Heather, Tyler and Ryan
Last day of 6th grade!
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$21,949 of $25k goal

Raised by 274 people in 34 months
Created February 13, 2014
Heather Hans Allman  
$25
Anonymous
13 months ago
$25
Anonymous
28 months ago
$100
Anonymous
28 months ago
RR
$50
Richele Ramsey
28 months ago

Glad to help this young man! :) We are from Houston and know the Herndon family but just happen to be vacationing in Culver, IN right now while our oldest daughter attends the Military Academy Camp. We were just in South Bend a few days ago! Such a small world. Please be blessed and know people care about what you are going through....

$150
Anonymous
28 months ago
SL
$50
Sherri Logan
28 months ago

Praying for Tyler and that you get your wheelchair lift asap!

JC
$50
Joe Cadle
28 months ago
RP
$25
Robyn Petty
28 months ago
$25
Sandy Smith
28 months ago

Praying for Tyler and his family!

BB
$25
Brad & Desirae Bickley
28 months ago
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