TEAM TYLER ~Wheelchair lift for van
Thank you, God Bless and go TEAM TYLER!
I took the kiddos out to the store BY MYSELF for the first time in over a year without worries. It was amazing! Tyler was busy playing with his new toy car to smile, lol. But Ryan's smile shows the look of relief for all of us! We know that someday we will pass this vehicle down to another family in our community that will need it. Paying it forward; just as ALL of you have for us! A HUGE thank you to each and everyone of you who has changed our lives by making our lives a lot less stressful. From kids giving their change from their piggy banks to asking for donations for Tyler instead of birthday presents. We are humbled by how much Tyler has touched other children's lives and knowing how these children will go on touching other children's lives as well. Thank you also to Drive & Shine who put on an amazing car wash fundraiser for us. It was an amazing day filled with TEAM TYLER love and support everywhere! Our friends and family spent the day having a blast! Also to The School City of Mishawaka who did so many fundraisers to help us reach our goal; these kids from Kinder -12th grade have hearts of gold for Tyler! Also to our MBUSA family; you have been such an amazing support of encouragement, love and giving…we love you! And as always ALL of TEAM TYLER~
With love and gratitude,
Royer, Heather, Tyler and Ryan
Hello! This week has been such an emotional roller coaster. We were completely and graciously surprised that our interview with the South Bend Tribune made the front page! It was a beautifully written story that depicted Tyler's personal journey fighting Batten disease.
We have been taken back by all of your continued calls, texts, messages, emails, donations and prayers. We thank you all for helping us bring awareness to Batten disease as well as your amazing generosity in helping us reach our goal for our wheelchair lift.
We asked for your continued prayers as we have lost FOUR Batten children this week. To lose any child is devastating; but when there are only 500 affected in the US with Batten disease and 1,200 Worldwide~losing 4 children within five days is beyond anything you can imagine.
Here is the link to our beautifully written story:
Thank you for your love, we feel it.
Sending love, hugs and prayers.
Royer, Heather, Tyler and Ryan
WOW! Does time ever fly! I cannot believe that we are halfway through summer! But then again, we have had a lot of fun visitors, Royer has been busy traveling and Ryan, Tyler and I have been busy just.... Being! Our days are definitely full as Tyler has regressed and I have been busy trying to get our insurance company to understand that when my surgeon says I cannot lift for anything for 12 weeks, after a much needed tendon and ligament surgery on my arm....that includes not lifting Tyler who is 145 lbs+. It's been tough, but we have been super blessed by your amazing support as our medical bills are starting over and the lift for our van is a necessity. We truly appreciate all of your love, support and prayers! We hope you are all having an amazing summer!!! With love, Royer, Heather, Tyler and Ryan