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Help Tyler and Family: Medical Care

$29,750 of $50,000 goal

Raised by 256 people in 21 months
Created October 25, 2017
Josh Lucas
on behalf of Abigail Beckwith
If you're reading this, it's because you know the Beckwiths or someone that has been touched by this family. Tyler is a fun-loving and caring husband to Abbey and a father of 2 young boys. He is that dad. He works all day and comes home to mow the lawn before he relaxes by playing with his boys or whittling toy canoes from scrap pieces of wood. During a routine pre-surgery evaluation, an EKG revealed an abnormality in his heart. He has been formally diagnosed with Cardiac Sarcoidosis and is now on the heart transplant waiting list. 

Tyler and Abbey have been on a rollercoaster ride since the discovery. Their everyday lives have been turned upside down with doctor's appointments, procedures, daily medications, and simply coping with lost time and work. Both Abbey and Tyler have very supportive families that are doing everything they can to help them financially and with daily tasks. However, there has been an ocean of friends and far away family that would like to do a small part. We created this page to funnel that support directly to Abbey and Tyler in the most effective way possible. Tyler and Abbey are always willing to help anyone in need. We would love to show them the same generosity they have towards others. With this Go Fund Me account we can provide encouragement and help lighten the load during this tough time. Show some love!!!

A LETTER FROM ABBEY:
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When Tyler and I were planning our wedding, choosing our vows was an easy decision. There was no way I could write and read my own without crying and even less of a chance of Tyler doing so. (He's a big softie) We went with the traditional "in sickness and in health" and it was part of the wedding planning, not so much marriage planning.

When you meet someone and decide that you want to spend a great length of time with them, the idea of marriage arises and then wedding planning typically begins. Marriage planning is something entirely different. Marriage planning is the heavy stuff, how do you feel about religion? Saving and spending money? Children? Who will work or who will stay home? Who will cook? Do laundry? Does he put the toilet seat down? Most importantly, does he snore?? 

I've heard people say that if you can survive wedding planning, you'll survive the marriage and I'm sure there's some truth to that. Planning a wedding can be stressful and all-consuming.

And then it's over. 
All your left with is a marriage. (And some photographs and probably a credit card bill. Oh, and a dress in a box!)

If you're lucky, like I am, the marriage is the best part and the wedding is just a memory of the best day that you’ve ever had. The specific vows that we exchanged were just part of those memories. That is, until I started living them.

In the spring of this year Tyler was diagnosed with cardiac sarcoidosis. He's had countless tests and doctor appointments and 5 hospitalizations. 2 weeks ago it became apparent that his heart was failing rapidly and today he was officially added to the heart transplant waiting list. We are so thankful to have cleared this hurdle today and will anxiously await the miraculous gift of a second chance at life as we knew it. Our prayer isn't for someone's untimely death, but that, as that happens, they will choose the amazing gift of organ donation.

When I sit in his hospital room, hold his hand or help him take a bath, I'm reminded of "in sickness and in health" and I can smile. Whenever I'm mowing the grass or doing the laundry or taking the boys for a walk (or any one of the countless jobs that he used to do) our vows come to mind and it feels like a privilege to be honoring that vow.

I knew no matter what we said to each other on our wedding day that we'd be together for life, but I didn't realize that our vows would be a comfort to me and a daily reminder that I'm so grateful to be going through this life with him.

Learn more about organ donation: 
www.unos.org
www.pennmedicine.org




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#TickerForTyler

Welcome home fella!
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This calls for a photo!
Welcome home fella!
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#TickerForTyler

He has his new ticker and is HOME!! Check out Abbey's update and share away.

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Our family is incredibly happy to share with you that Tyler came home on Wednesday, December the 13th! Tyler's recovery will be intensely monitored for the next 3-6 months with weekly blood work, heart biopsies at HUP and some home nursing care. Currently his daily routine includes taking 25 pills, many of which will keep his immune system suppressed to prevent his body from rejecting his heart. This will also make him more susceptible to sickness and infection. We were told to expect the next 4 months to be the hardest part. (We're thankful and ready for the challenge!) The transplant team will continue lifelong monitoring of him for rejection, side effects of the medications and infection. As his progress continues for the next year, these appointments and biopsies will taper off. The transplant team told us that in many ways his new life will begin on the one year anniversary of transplant! The next year will be spent getting his medications and doses perfected and the risk of rejection decreases as time goes on.

We still can hardly believe that we're on the other side of this already, and continue to feel so grateful for that and for all of you! Thank you everyone, for your continued support and positivity! I need new words but until then, thanks again from the bottom of our (new and old!) hearts for your amazing love, kindness and generosity! Enjoy your families and this Holiday Season. We wish you a Happy and Healthy New Year!

If it weren't for Tyler's organ donor this update wouldn't be possible. Please take two minutes while you're here and register to become a donor:

https://unos.org/donation/register-to-be-an-organ-donor/

For those of you who want to learn more about post transplant care, info can be found here:

https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/transplant-institute/heart-transplant/heart-transplant-process/post-heart-transplant-surgery

https://www.mayoclinic.org/tests-procedures/heart-transplant/about/pac-20384750
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UPDATE FROM ABBEY:

On Friday December 1st at 8pm we got the exciting, almost unbelievable, news that there was a donor match for Tyler. After an incredibly long wait on Saturday, surgery began at 6pm and was completed at 10:20pm.

Tyler woke up slowly this morning and the nurses have said he's doing "exceptionally well." Everyone continues to be amazed by him. Before his breathing tube was removed this morning, he was communicating with me and was very calm, lots of happy tears. Tyler is now breathing on his own, his pain is being managed and the transplant team is very happy with how well he and his new heart are doing.

He will most likely have several days in the ICU and will then be in a cardiac step down unit before coming home. We will update as his progress continues.

Thank you everyone, for your on-going love and support and for celebrating this gift of life with us today! December 3rd is the 50th anniversary of the first successful heart transplant, somehow making today feel even more special!
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$29,750 of $50,000 goal

Raised by 256 people in 21 months
Created October 25, 2017
Josh Lucas
on behalf of Abigail Beckwith
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