Troy's Fight Against Lyme Disease

$27,170 of $50,000 goal

Raised by 294 people in 31 months
Marcia Banks
on behalf of Alison Murphy
 UNIONVILLE, CT

Troy, who will be turning 13 in April, has been suffering from the devastating effects of Lyme disease and related tick-borne co-infections. Prior to contracting Lyme, Troy was an active and energetic boy, full of life. He loved to play soccer and basketball, dance and be-bop around the house, play Nerf gun wars and Man Hunt with his brothers and all his neighborhood buddies, write, draw and just had the ability to make everyone around him laugh. Since January of 2016, after being diagnosed with Lyme disease, Troy has been suffering greatly with the physical, psychological and emotional effects of this complex and often misunderstood disease. Lyme disease is a worldwide infectious disease and is the #1 vector borne illness in North America and Europe. It has been reported in all 50 states, and 25% of the reported cases are children. Troy’s symptoms include extreme fatigue, excruciating abdominal pain, digestive issues, deep muscular aches and pains, sore and swollen joints, all-over body rashes, confusion, jaw discomfort, migraine headaches, sore throat, fevers, swollen lymph nodes in the neck, head and groin, migratory pain,
hypersensitivity to light, sound, touch and taste, depression, anxiety, emotional instability, and various forms of regressive behavior.  This once active and energetic boy, has lost the ability to walk, sit upright or hold his head up. Lyme disease has also triggered an autoimmune reaction in Troy, causing his body to attack and damage his own tissue. This also is very common with Lyme disease. It is essential that those suffering with Lyme disease are treated by Lyme-literate physicians. Because of restrictive insurance regulations regarding this disease, many of these specialists are not covered by insurance, as well as many of the needed medications and treatments required. Please join us as we continue to help Troy get the best possible medical care, so that he can get back to his childhood and make us laugh again.

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Does anyone have a lightweight aluminum reclining wheelchair that the Murphys could borrow? The one Troy is currently using is very heavy and extremely difficult to get in an out of the car, especially for Alison to handle by herself.
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Ok friends, we need some suggestions. As most of you know, thanks to Bob Fiondella, Amy’s Angels and the HBRA, the Murphy's had a wheelchair ramp installed in the spring. It has been great and is truly a blessing. However due to the way it had to be installed it ends on their lawn. I was there this past week on a rainy day and noticed it gets pretty wet and muddy which makes it extremely difficult to push the wheelchair. Does anyone have any thoughts on how to make it easier to get to the sidewalk? With all this rain lately it's been quite a challenge and I can't even imagine what will happen once we have snow. Thanks in advance for any suggestions or advice on how best to handle.
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Finally able to share some excellent news!! Long story short, Troy has been making huge improvements over the last couple months, and he is slowly starting back to school! They are working on easing him back into things academically, socially & emotionally under the guidance of Dr. Jones - as he has been out of school for 2 1/2 years. For now, Troy is just attending school for 1 hour every day, as he adjusts and gets acclimated to life as an 8th grader. There have been many steps and victories leading up to this, but still many more to go. Please continue to pray for Troy and his family, as he still has a lot of challenges ahead. Their financial needs are still overwhelming, as most of his continued medical needs are not covered by insurance, and the burden is heavy. Alison and Troy are so thankful for Dr. Jones, and all the others who are on his "care team". God has chosen just the right person for Troy's care, every single time and every step of the way. Although there continues to be lots of frustration and complications, they are cautiously optimistic that things are heading in the right direction and feeling incredibly blessed with this renewed hope. With the utmost sincerity, the Murphys are deeply grateful for the immense support they have received from you all!!
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So happy that Troy was able to be a part of Gage and Kayla's wedding. Thanking God for the progress Troy has made and congratulations to the new Mr. and Mrs. Murphy!
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Read a Previous Update
Sarah Hileman
27 months ago
4
4

hi, im a friend of troy's and , he was in my class last year and he is on my team this year, we all miss him here at school and theres a big assembly all about him. He and the rest of his family have been in my prayers, and I would like to get your promotion first to have a play to raise money for a gift for troy and the res will go to you and u can diside what to do with it, I will keep u updated in what my plan are if you let thi happen thx for you time, ~Sarah Hileman

+ Read More
Barbara Johnson Clemens
24 months ago
2
2

Our son, Jonathan, also contracted Lyme Disease at age 11and a1/2 , was tutored for a year and a half and lost 20 lbs . Jon had identical symptoms to Troy's. He was unable to attend school b/c of his abdominal pains and vomiting , inability to walk, incredible fatigue and vice-like headaches. He was undiagnosed correctly until our 17th MD who was out of state and recognized it immediately.( No one would believe the crazy diagnoses and meds and treatments he was given before that!! ) The good news is that he is now totally well, married and he and his wife are expecting a baby in June !! Lyme Disease is only a bad memory now ... He and his wife are both RN's and he is the most sensitive, caring person one could imagine! He said Lyme Disease , in some ways, created him into who he is today and he feels it was a blessing. Please tell Troy that he WILL recover and be who he was and better for his battle. It is so hard, Troy, but you will be ok and you will be a stronger person. You look like you have a wonderful, caring family and when you get the right doctor working with you, your recovery will be fast and complete !

+ Read More
Sarah Hileman
27 months ago
1
1

Fell better Troy!! We all miss u!!

+ Read More
Sarah Hileman
27 months ago
1
1

I feel the promition from you is the most appropriate t thing to do, because my plans are for your son, (sorry i spelled some things wrong in the 1st one)

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Rick Vanden Heuvel
31 months ago
1
1

As a co- chair of the Ulster Lyme Support group here in Ulster County NY I personally have found some success with the Stephen Buhner herbal protocol. My older son is on it too and is doing well. The book Stephen Buhner wrote is called "Healing Lyme". I'd be happy to consult with you on this protocol.

+ Read More
Bg Zietz
11 months ago

Happy Birthday Troy! May this new year bring about a full recovery and freedom from any pain!!! You are in our prayers! Bg

+ Read More
Allycia Kimball
18 months ago

SO much love and so many prayers to your Family and Troy. My Fiancé and I are recovering and Healing from Severe Lyme right now. I felt completely hopeless until we were blessed with these incredible Doctors! Stephen Harrod Buhner and Dr. Hulda Clark. http://buhnerhealinglyme.com His Book: https://www.amazon.com/Healing-Lyme-Borreliosis-Coinfections-Rickettsiosis/dp/0970869649/ref=pd_lpo_sbs_14_img_0?_encoding=UTF8&psc=1&refRID=6RDGJ67YF0BK33J0SQWY Hulda Clark's Book: https://www.amazon.com/Cure-All-Diseases-Many-Histories/dp/1890035017/ref=sr_1_1?s=books&ie=UTF8&qid=1504187306&sr=1-1&keywords=hulda+clark These amazing Doctors are saving our lives and have saved the lives of so many others. Please reach out if you need any help or have any questions! Troy WILL HEAL! He's a Lyme Warrior and so are all of you!!!! ♥ Love Allycia and Chris

+ Read More
Jackie Carillo
29 months ago

https://www.resultsrna.com/ultimate-lyme-disease-support-system/

+ Read More
Catie Scoville
30 months ago

I am so sorry for all that Troy and your family have been going through. I will certainly be keeping you all in my prayers. I read your story in the Valley Press. Both my mother and sister have struggled with lyme disease and have found hope and healing through a naturopatic doctor, Dr. Michael Gazsi located in Danbury, CT. They still have flare ups which he is able to help treat. He is a very nice doctor and has been the only one able to help my sister and mother with their symptoms. http://www.drgazi.com

+ Read More
Jennifer Crystal
30 months ago

I'm a Lyme patient who grew up in Unionville. I write for the Global Lyme Alliance (www.globallymealliance.org/blog). Wishing you all the best! Jennifer Crystal

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Terry L Bowman
31 months ago

I am so sorry to hear about your son Troy being so sick, and that you have Lyme also. My husband and I both have Lyme, he got deathly ill 9/2001 it took 5 yrs and every penny of our savings trying to find out what was wrong. My fibromyalgia dr in Denver ran a simple infectious blood panel sent the test to IGenix in CA.....none of the big fancy places we went to did that. Head of infectious disease at Colorado University Hospital told us "Colorado DOES NOT have ticks that carry Lyme." Our medical society is so uneducated and will not think outside of the box. Anyway---I was on Google today searching---our 38 yr old son has been diagnosed with MS after spending 2 years and $180,000 going to specialists all over the country. He didn't tell anyone, so we just found out a week ago about all of this. We knew he was sick because of the way he looks but we don't get to see each other often. You need to Google the question "IS THERE FINANCIAL HELP FOR LYME TREATMENT". a whole page comes up. God bless you and your family especially your son.

+ Read More
Jackie Carillo Martin
31 months ago

Please look into this product link below. It saved my friends life from Lyme Disease. He was almost as bad as Troy. Alternative medicane is sometimes worth a try when we run out of answers. Zoe and I have your family and Troy in our thoughts. Zoe has attached your go fund link to her Instagram account and is very concerned for her friend! https://www.resultsrna.com/ultimate-lyme-disease-support-system/

+ Read More
Beth L. S. Wilson
31 months ago

I am very, sorry to hear about your young son's illness. I became aware a year or so ago that tics carry more than one kind of disease after our former church choir director was coping with two types of tic borne illness, eventually having to move away to a place where she would not encounter mold. Her illnesses lowered her resistance to mold, making her sick. I just wanted to share this with you. Also, I asked to be checked for Lyme disease after having an extremely stiff neck and a bruising in too of my foot last summer. Sure enough I tested positive and had to go through two rounds of antibiotics to test negative. We will keep Troy and the family in our thoughts and prayers.

+ Read More

$27,170 of $50,000 goal

Raised by 294 people in 31 months
Created August 5, 2016
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BZ
$25
BG Zietz
6 months ago

What great news about Troy going to school an hour each day! Prayers for all good news in the future!!

RK
$50
Robin Kuhrt
11 months ago

We continue to pray for your precious family!

Sarah Hileman
27 months ago
4
4

hi, im a friend of troy's and , he was in my class last year and he is on my team this year, we all miss him here at school and theres a big assembly all about him. He and the rest of his family have been in my prayers, and I would like to get your promotion first to have a play to raise money for a gift for troy and the res will go to you and u can diside what to do with it, I will keep u updated in what my plan are if you let thi happen thx for you time, ~Sarah Hileman

+ Read More
Barbara Johnson Clemens
24 months ago
2
2

Our son, Jonathan, also contracted Lyme Disease at age 11and a1/2 , was tutored for a year and a half and lost 20 lbs . Jon had identical symptoms to Troy's. He was unable to attend school b/c of his abdominal pains and vomiting , inability to walk, incredible fatigue and vice-like headaches. He was undiagnosed correctly until our 17th MD who was out of state and recognized it immediately.( No one would believe the crazy diagnoses and meds and treatments he was given before that!! ) The good news is that he is now totally well, married and he and his wife are expecting a baby in June !! Lyme Disease is only a bad memory now ... He and his wife are both RN's and he is the most sensitive, caring person one could imagine! He said Lyme Disease , in some ways, created him into who he is today and he feels it was a blessing. Please tell Troy that he WILL recover and be who he was and better for his battle. It is so hard, Troy, but you will be ok and you will be a stronger person. You look like you have a wonderful, caring family and when you get the right doctor working with you, your recovery will be fast and complete !

+ Read More
Sarah Hileman
27 months ago
1
1

Fell better Troy!! We all miss u!!

+ Read More
Sarah Hileman
27 months ago
1
1

I feel the promition from you is the most appropriate t thing to do, because my plans are for your son, (sorry i spelled some things wrong in the 1st one)

+ Read More
Rick Vanden Heuvel
31 months ago
1
1

As a co- chair of the Ulster Lyme Support group here in Ulster County NY I personally have found some success with the Stephen Buhner herbal protocol. My older son is on it too and is doing well. The book Stephen Buhner wrote is called "Healing Lyme". I'd be happy to consult with you on this protocol.

+ Read More
Bg Zietz
11 months ago

Happy Birthday Troy! May this new year bring about a full recovery and freedom from any pain!!! You are in our prayers! Bg

+ Read More
Allycia Kimball
18 months ago

SO much love and so many prayers to your Family and Troy. My Fiancé and I are recovering and Healing from Severe Lyme right now. I felt completely hopeless until we were blessed with these incredible Doctors! Stephen Harrod Buhner and Dr. Hulda Clark. http://buhnerhealinglyme.com His Book: https://www.amazon.com/Healing-Lyme-Borreliosis-Coinfections-Rickettsiosis/dp/0970869649/ref=pd_lpo_sbs_14_img_0?_encoding=UTF8&psc=1&refRID=6RDGJ67YF0BK33J0SQWY Hulda Clark's Book: https://www.amazon.com/Cure-All-Diseases-Many-Histories/dp/1890035017/ref=sr_1_1?s=books&ie=UTF8&qid=1504187306&sr=1-1&keywords=hulda+clark These amazing Doctors are saving our lives and have saved the lives of so many others. Please reach out if you need any help or have any questions! Troy WILL HEAL! He's a Lyme Warrior and so are all of you!!!! ♥ Love Allycia and Chris

+ Read More
Jackie Carillo
29 months ago

https://www.resultsrna.com/ultimate-lyme-disease-support-system/

+ Read More
Catie Scoville
30 months ago

I am so sorry for all that Troy and your family have been going through. I will certainly be keeping you all in my prayers. I read your story in the Valley Press. Both my mother and sister have struggled with lyme disease and have found hope and healing through a naturopatic doctor, Dr. Michael Gazsi located in Danbury, CT. They still have flare ups which he is able to help treat. He is a very nice doctor and has been the only one able to help my sister and mother with their symptoms. http://www.drgazi.com

+ Read More
Jennifer Crystal
30 months ago

I'm a Lyme patient who grew up in Unionville. I write for the Global Lyme Alliance (www.globallymealliance.org/blog). Wishing you all the best! Jennifer Crystal

+ Read More
Terry L Bowman
31 months ago

I am so sorry to hear about your son Troy being so sick, and that you have Lyme also. My husband and I both have Lyme, he got deathly ill 9/2001 it took 5 yrs and every penny of our savings trying to find out what was wrong. My fibromyalgia dr in Denver ran a simple infectious blood panel sent the test to IGenix in CA.....none of the big fancy places we went to did that. Head of infectious disease at Colorado University Hospital told us "Colorado DOES NOT have ticks that carry Lyme." Our medical society is so uneducated and will not think outside of the box. Anyway---I was on Google today searching---our 38 yr old son has been diagnosed with MS after spending 2 years and $180,000 going to specialists all over the country. He didn't tell anyone, so we just found out a week ago about all of this. We knew he was sick because of the way he looks but we don't get to see each other often. You need to Google the question "IS THERE FINANCIAL HELP FOR LYME TREATMENT". a whole page comes up. God bless you and your family especially your son.

+ Read More
Jackie Carillo Martin
31 months ago

Please look into this product link below. It saved my friends life from Lyme Disease. He was almost as bad as Troy. Alternative medicane is sometimes worth a try when we run out of answers. Zoe and I have your family and Troy in our thoughts. Zoe has attached your go fund link to her Instagram account and is very concerned for her friend! https://www.resultsrna.com/ultimate-lyme-disease-support-system/

+ Read More
Beth L. S. Wilson
31 months ago

I am very, sorry to hear about your young son's illness. I became aware a year or so ago that tics carry more than one kind of disease after our former church choir director was coping with two types of tic borne illness, eventually having to move away to a place where she would not encounter mold. Her illnesses lowered her resistance to mold, making her sick. I just wanted to share this with you. Also, I asked to be checked for Lyme disease after having an extremely stiff neck and a bruising in too of my foot last summer. Sure enough I tested positive and had to go through two rounds of antibiotics to test negative. We will keep Troy and the family in our thoughts and prayers.

+ Read More
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