Too Much Brain To Contain

$7,562 of $10,000 goal

Raised by 26 people in 37 months

I have a rare disease called Chiari Malformation.  I need to have surgery, Chiari Decompression and C1 Laminectomy.  

This fund will pay for my co-pays, deductibles and travel expenses. My current medical expenses are so high due to the costs of conquering cancer three times and being diagnosed with a connective tissue disorder as well.  This added expense has to be paid before they will do the surgery.

 My husband and I both, cannot tell you how difficult it is to ask for help.  We feel at this point...we are running out of options.  My surgery is scheduled on February 23rd, 2015.  We believe with your help...we WILL reach our goal!

We understand if your not in a place to help.  We also greatly appreciate all prayers and positive thoughts!      :)

love and light,

Steve and Therese Lawson

HERE WE ARE 9 MONTHS LATER 

My surgery didn't go as expected.  I ended up with a damaged lung, an aneurysm behind my right eye.   The aneurysm was 5mm after the surgery.   The last MRI showed it has grown to 8mm.  This was done over a month ago.   This has also caused the autoimmune disease I have to worsen.   I can't take the meds I need to help because of the aneurysm.   I was told yesterday,  I'm too high risk.

Now, my husband needs surgery on his back because it's broken. They may not be able to fuse and put plates because it is so arthritic. On top of that, he is going through a cardiac pre-op so he may be released to have his foot surgery. Evidently his e kg came back abnormal. On his birthday he fell and broke his foot so badly that they are going to take bone from his leg and place a plate, pins and screws.  His foot will be fused.  He will never be able to walk without a cane again.  

Thanks to Dave and Leen Cramer,  I have a safe and reliable car to take to Stanford.   We are overwhelmed by their kindness. 

We now have an account set up at Tri Counties Bank in Weaverville for those who would rather not use this website and donate directly to the account.

We will do our best to keep you updated.  We hope that you can make a small donation. However, we understand what it's like to struggle financially. Wether you are able to make a donation or not; we humbly ask for your positive thoughts and prayers:-)

love and light,

Steve and Therese  

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Well Steven has seen both the back surgeon in the foot surgeon. We are waiting on our insurance company to see what type of surgery they will allow him to have. He really needs to disk replaced in his lower back hopefully free flowing so it won't be fused and he'll be able to work again. The foot on the surgery is even more intense they're going to do bone grafting plating screws and pins. It will take him 9 to 12 months for each surgery to heal from.

As far as myself. My surgeries are still on hold the aneurysm is slowly growing but fully encapsulated. So no leaking. I ask that you keep us both in your prayers. I have faith that this year will be a good one and that God will guide the surgeons and help us get through this. I've also added some information on my brain disease to help those that don't know what it is. Many people have asked I hope this helps. Love and light, Steve and Therese Lawson. :)

There are hundreds of symptoms of Chiari Malformation. Many get blown off or some don't even know they have them. Some NS's say the main or only symptoms are headaches, which is not true and some uneducated doctors and surgeons will say that a herniation must be a certain size, which the current research shows is definitely not true. Please do your own research on these conditions, NS's and see an expert Chiari Neurosurgeon that is very knowledgeable in chiari and its many related conditions and disorders.

*Headache (esp. if daily OR at lower back of head, but can be anywhere on the head)
* Painful tension in neck
* Fatigue
* Migraines
* Dizziness
* Visual disturbances / loss of vision / spots in vision / double vision / seeing spots or “halos” / nystagmus
* Tingling / numbness in the extremeties
* General imbalance / clumsiness
* Memory loss
* Restricted movement
* Intolerance to bright light / difficulty adjusting to light change
* Vertigo from position change or sudden standing
* Difficulty walking on uneven ground / feeling ground under feet
* Poor / degraded motor skills
* Difficulty driving
* Difficulty negotiating steps
* Pressure / pain in the neck
* Pressure / pain behind the eyes (soreness in the eyeballs)
* Back pain
* Neck spasms
* Insomnia
* Ringing in ears (like the tone heard in a hearing test)
* Swaying
* Pain when changing position
* Tingling / crawling feeling on scalp
* Intolerance to loud / confusing sounds
* Decreased sensation to touch in extremeties
* Decreased sensitivity to temperature
* Pain & tension along ear / eye / jawline
* Difficulty swallowing / lump in throat / sore throat / swollen lymph nodes
* Drooling
* Spontaneous vertigo
* Hand tremors
* Poor blood circulation / cold hands & feet
* Sinus / mucous problems
* Sleep apnea
* Decreased muscle tone
* Pressure in ears / ears feel stopped up
* Nausea
* Difficulty reading / focusing on text
* Depth perception problems
* Burning sensation in extremeties / shoulder blades
* Menstrual problems / severe cramping during period
* Fluid-like sound in ears (like water running)
* Loss of sexual interest / lack of sensation in pelvic area
* Pulling sensation while sitting / standing
* Intense itchiness w/profuse sweating
* Slurred speech
* Gag reflex problems / lack of gag reflex
* Pressure / tightness in chest
* Loss of bladder control
* Frequent urination
* Dehydration / excessive thirst
* Electric like burning sensations
* Unequal pupil size
* Loss of taste
* Popping / cracking sounds in neck or upper back when stretching
* Dizziness
* Loss of smell / problems with sense of smell
* Dry skin and lips
* Sudden / abrupt changes in blood pressure due to awkward position of head
* Hiccups associated with drinking carbonated beverages
* Skin problems
Other: migraines, oscillopsia, lump in throat, color blindness, albinism, visual floaters, astymosism, thinning hair, hear heartbeat in ears, throat closes when lying flat, vomit in sleep, swollen face, low body temperature, low blood pressure, legs feel heavy, “strangling” feeling, “floating” sensation, thickening of finger joints

The following is a list of related conditions.

Neurally Mediated Hypotension
Intracranial Hypertension
Hydrocephalus
Neurogenic Bladder
Trigeminal Neuralgia
Spinal stenosis
Tethered cord
Numerous hormonal imbalances
Empty sella syndrome
Syringomyelia
Central Sleep Apnea
Ehlers Danlos Syndrome
Tethered Cord Occulta
Basilar Invagination
Retroflexed Odontoid
POTS
Dystautonomia
Gastroparesis
Spina Bifida
Spina Bifida Occulta
Fibromyalgia
Migraines
Cranial Cervical Instability (CCI)
GERD
Autism / Autism Spectrum
MCAD Mast Cell Activation Disorder/Mastocytosis
CCSVI Chronic Cerebrospinal Venous Insufficiency
MS Multiple Sclerosis especially for EDSers
Sjogrens,
Scleroderma,
Raynauds,
Diverticulitis
Marfans Lupus
Pseudotumor Cerebri
APS Antiphospholipid Antibody Syndrome
Klippel-Feil Syndrome
Occipital Neuralgia
Scoliosis
Lordosis / Loss of Lordotic Curve
Tarlov Cysts
Arachnoiditis

*Arachnoiditis
*Arachnoid Cysts
*Misophonia
*CRPS
*Sensory processing disorder
*Pulsitile Tinnitus

#chiarimalformation
#acmawareness
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It's been a while since I've given an update. Much has happened since then.

My surgeries have been put on hold until the aneurysm in my brain; behind my left eye is gone. I'm getting the feeling I may not be getting the surgeries I need for quite sometime. However, I will be starting chemo creme for skin cancer in October. This will be my 4th time dealing with cancer. I know I will kick it's butt!
My new ice cap
Growth
My new Bi/C-Pap Machine
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Good morning!

Just finished my 5th sleep study. I failed that one too! Let's just add chronic obstructive and non-obstructive sleep apnea to the bunch of diagnoses. Lol

Looks like I will be coming back for the 6th time to readjust my bipap machine.

Wish me luck! love and light, therese
Purple Power! :)
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Good morning :)

It has been an eventful last couple of weeks. Before my husband and I went to Stanford last week; I was able to visit my parents in Vancouver, WA. For a couple of days. I cannot tell you how good that was for my soul. I really missed them. I am blessed to have them in my lives.

I cannot say the visit to Stanford was as fun. I believe seeing my parents gave me enough fuel to make it through those couple of days and the travel as well. I finally got my butt out of bed 2 days ago. It feels good to go out on my back deck and breathe in the fresh air. Listen to the creek and the wildlife around me. Boy...think I needed that too! lol

OK...out with what's up. All of my surgeries have been put on hold indefinitely. This includes the aneurysm, Chiari and disc repair of the discs in my neck. I've been loosing around 5 pounds a week. The pain in my head/neck is causing nausea and fatigue. I'm also having a difficult time with my hip and the Raynaud's Syndrome.

They have added a new med for the Raynaud's. Froze several more cancer spots from my face. In October, I will be starting the chemo cream.

They also want to run more tests as they feel the Thyroid Cancer is hiding in other places besides my lymph nodes.

Sooo...here we go again. I get to feel like a test subject again. lol

Seriously, my husband and I have faith that I WILL get through this!

Thank you for your continued prayers and positive messages and the donations from those of you that are able. They mean so much to us both!

love and light, steve and therese lawson
Love my mom
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Read a Previous Update
Ben N Tysa Payment
36 months ago

My husband just had this surgery oct 15, 2014 and had such great success. I pray your surgery is just as successful for you!

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Rana Edwards
36 months ago

$7,562 of $10,000 goal

Raised by 26 people in 37 months
Created January 22, 2015
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$100
Anonymous
17 months ago
$300
Anonymous
25 months ago
MS
$200
Mike and Yvonne Smith
26 months ago (Offline Donation)

Thank you sooooo much for your help!

DC
$3,000
Dave and Leen Cramer
27 months ago (Offline Donation)
1
1

I want to thank you both from the bottom of our hearts for your donation. We never imagined someone would donate a car so we could make it back and forth to Stanford safely and with good has mileage. We cannot thank you enough!!!

AK
$150
Amy Kanabe
36 months ago (Offline Donation)

Love you!

FF
$140
Friend Friene
36 months ago (Offline Donation)

You can do this!

TL
$200
Tabitha M. Leiber
36 months ago

I love you my sister !! Xxoo

$20
Anonymous
36 months ago
TJ
$2,250
Turner Jones
36 months ago (Offline Donation)

This donation is made from one of our local churches Jesus Christ of Latter day Saints.

$50
Julie riley
36 months ago

God bless you ! You got this girl ! Fight like a girl!

Ben N Tysa Payment
36 months ago

My husband just had this surgery oct 15, 2014 and had such great success. I pray your surgery is just as successful for you!

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Rana Edwards
36 months ago
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