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Team Knox-Knox Strong

$7,945 of $10,000 goal

Raised by 77 people in 19 months
Created January 23, 2018
Welcome to Team Knox ♥️ Knox Strong! Matt and Chelsea welcomed their sweet twin boys to the world on January 9, 2018! Their 5 year old daughter Penny became a big sister! Colt weighed 5lbs 15 Oz and Knox weighed 6lbs 7.9 Oz. After delivery, Knox was immediately taken from Chelsea and Matt to be hooked up to an IV to keep blood flowing to his lungs.

Knox’s story began on October 10th, when they sent the family to Hurley after a regular growth scan and found out Baby B's Heart wasn't developing like it was supposed to. On October 26th, they were sent to U of M for a second opinion. They determined he'd be born with a Hypoplastic Right Heart & possibly a few other "minor" issues. Chelsea spent hours in Ultrasounds and talking with Cardiologists, to make sure everything stayed on track.

Chelsea and Colt were released to the Ronald McDonald house while Knox had to stay in the hospital. He has already faced several up and down’s with his condition. He is on medications and machines that are keeping his heart working properly. As of now he had surgery if it’s successful he should be good to go and only require one other surgery in the future. If this doesn’t work they are back to square one which will mean they have to open his chest and he will require 3 surgeries.

Matt, Chelsea and the boys are in Ann Arbor while Penny is staying near home due to school. Trips back and forth, gas, food, Mom and Dad being off work really adds up!! We wanted to help in some way because they would help anyone that was in need of rolls were reversed. We will be selling t-shirts as well as taking donations of cash/PayPal/gas gift cards/food gift cards! We will also be offering a few other items for sale soon as well.

Thank you all so much for the support!
https://m.facebook.com/groups/1926222647695464

#CHD #TeamKnox #Knoxstrong #CHDwarrior #congenitalheartdefect #uofmannarbor
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Knox is making wonderful progress! He is off of everything except his medicine and his oxygen. He has been able to eat, be held by mom and dad as well as even sitting up!
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Knox will be having surgery Monday October 15, 2018. Matt has taken time off and Chelsea just recently quit her job so they could use some help. They need to be more focused on their family and not finances, if you can donate and or share please do ❤️

This is how his appointment went this past week and how they learned about the issues.

Once under Anesthesia, Knox didn’t handle it so well. They had to place a breathing tube. The doctor thought it was weird since his spO2 levels were so good. Upon further investigation, he noticed that Knox’s Pulmonary Artery had split in 2.

The shunt is providing blood to his right lung & his heart is supplying blood to his left lung. If it wasn’t for the shunt, it’s hard telling where we’d be now. On a good note, his heart IS working as it’s pumping blood to the left lung, there was no flow before... but now, they have to repair his PA.

At some point this week (most likely tomorrow) Knox will be going in for Open Heart Surgery #2 to patch his PA. Not what we came in for, but SO glad they caught it. It happened some time after his first surgery & as he grew, it’s hard to say exactly when or how it happened.

Although they can’t say for sure, it sounds like this COULD be it. Once they patch the PA, they’ll try blocking the shunt off again later on. Assuming that goes good, he should have a functioning TWO Ventricle Heart.
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Knox Strong’s benefit is coming up this Saturday ! If you have a team shirt we would love to have you wear it!!
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Knox is doing so well!! Moving out of the ICU!
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$7,945 of $10,000 goal

Raised by 77 people in 19 months
Created January 23, 2018
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10 months ago
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Ben and Kori Smyth
10 months ago
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