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Team Kailyn Fights Leukemia

$56,503 of $50,000 goal

Raised by 579 people in 18 months
Just about four months after Kailyn turned 3, we took her in for a blood test, because her daily activity had changed drastically. Our once energetic, athletic and lively girl, was now lethargic, unable to walk more than a short distance, and constantly complaining that she didn't want to do anything. 
Immediately after the blood tests were complete, the urgent care doctor told me that things did not look good for Kailyn. She was below critically anemic, her white blood cell count was astronomically high, her platelets were dangerously low, and that she likely had lekemia. He insisted that we immediately make the drive to LAMC Kaiser to get her treatment started right away. 
Once there we were greeted with doctors explaining that she would be getting two blood transfusions and three platelet transfusions overnight and would have a procedure in the morning. The next day Kailyn underwent a bone marrow biopsy, a lumbar puncture, the placement of her PICC line and the first dose of chemo. Kailyn was then formally diagnosed with "High-Risk B-Cell  Acute Lymphoblastic Leukemia (ALL)."
 Soon after the procedure she began her first full chemo treatment. 
From what doctors and nurses have told us, this looks to be at least a three year journey full of treatment, doctor's appoinments, chemotherapy, and all around changes in Kailyn's everyday life. 
While we hope that the majority of her medical care should be covered by insurance, we will still have to find a way to pay the pharmacy charges for her daily cocktail of medication, the price of driving to and from Los Angeles at least on a weekly basis (if not more), and also making sure that Kailyn always has access to the freshest food at home (since we won't be able to go in public for a long while).  With these costs already beginning to pile up, we just hope that you understand that any amount given is sooo greatly appreciated on this fight to beat Leukemia!! 
  
We also plan to do some updates through this platform!





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My mom's former teammates and coaches have been amazing enough to put together a race and fun run in my honor! This race takes place next Sunday October 21st and all proceeds will go directly to helping cover the everyday expenses that this illness has brought upon our family! If you would like to participate, but are not located in Oxford, Ohio there is an option to do a distance run so you can still participate! We would like to thank anyone and everyone who is volunteering, participating, and putting together this event!
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#raceforALL #teamkailyn #morethan4 #cancer #leukemia #leukemiaawareness #leukemiaandlymphomasociety #pediatriccancer #chemo #warrior #gogold
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Just a little update from the Team Kailyn Instagram!
"My numbers were finally high enough to get started with the interim maintenance phase of treatment! I was admitted to the hospital on Thursday night to begin fluids and Friday morning I underwent a procedure to have a lumbar puncture (with IT chemo) and to replace my PICC line. I had to have a new one placed since my old one was wiggling out too much! After that, they started me on high dose methotrexate which runs for 24 hours straight!! I am finally finishing that up right now! From here we will just wait until my body is able to clear the chemo from my system! Overall I'm feeling good, just pretty tired! Thank you guys for all of your continued support!! "
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Hi guys!
We just wanted to post an update, because it has been quite a while since our last one!
Kailyn has been doing great with all of her treatment and the day to day struggles that she has faced with this " new normal." She still has a hard time accepting and understanding why she can't go outside as often as before, or why she cannot be in school right now, or why she can't even see her cousins.
Kailyn did spend about a week in the hospital, after being taken in for fevers, then readmitted a couple of hours later, because her blood culture was showing that she had staph. She was put on extremely intense antibiotics, and was released about 5 days later with at home antibiotics to take.
She is currently taking an oral chemo every night, receiving four days of IV chemo that Kamran and I administer, and her weekly chemo every Friday. This past Friday she received a blood transfusion, which we had suspected she might need after she was becoming more and more tired everyday. The transfusion really helped with this! At this point in treatment Kailyn's ANC is back down below 500, so we are still unable to have any visitors, and she is unable to eat food that is not cooked at our house.
Looking forward, Kailyn will hopefully be starting a phase called interim maintenance at the end of this month which includes 5-6 day stays in the hospital. We know that this phase is going to be extremely tough on her physically and mentally, but we know how strong she will be through that!
It is amazing to see how resilient Kailyn has been thus far, and we are hoping that she continues this trend.

We would also like to remind everyone that September is Childhood Cancer Awareness Month, as well as Leukemia Awareness Month. Both of these obviously hit very close to home for us, and we hope that you would consider wearing gold or orange (accessories, shirts, etc) to spread awareness!
As Kailyn goes into the more intensive treatment, we will try to post more updates!!
Thank you all for all of the continued support!
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Kailyn started consolidation this past Friday after having about a week off of all treatment. This phase has already had a small hiccup, but other than that, Kailyn is doing great! For the next month she will have a lumbar puncture (spinal tap) every Friday, which includes a push of chemo, then be given more chemo at the infusion center. This past Friday's treatments lasted about 9 hours!!! At home, we administer chemo Friday-Monday. Thankfully we have become a lot more comfortable with administering this!
She has been enjoying daily walks with Sadie (our dog) and she loves that she has been able to be home for the last two weeks! We are hoping that Kailyn continues to stay strong and that she is able to stay out of the hospital!
Thank you all again for the continued support on this journey! We are so grateful to be surrounded by such amazing friends, family and supporters during this difficult time!
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$56,503 of $50,000 goal

Raised by 579 people in 18 months
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