Support for Jaxon!
Donation protected
We are The Costabile Group, Real Estate Team at Century 21 Professional Group in Brantford, Ontario. We are devoted in helping our community and have decided to start a TCG golf to give back golf tournament on September 7th, 2018 at the Oaks of St. George. This golf tournament is very special to us because every single dollar raised will be donated to the family of Jaxson & supporting the charity of Help A Child Smile. Jaxon’s story can be found on the YouTube video.
Also; “The Story written by mother Tracy”
Our beautiful 4 year old Jaxon was diagnosed with an in operable brain tumor. It is located on his brain stem which affects his fine motor skills as well as swallowing and breathing.
In his life up until that moment we had never needed the medical world for anything besides vaccinations. He was healthy and happy and thrived in anything he had done. He was enrolled in Montessori school of Cambridge and is one of the smartest most outgoing children I have ever known.
Now fast forward to February 24th 2017 and we received the diagnosis. This date was the day we started a new chapter of life. A life nobody deserves, asks for, or is prepared to live. Since that date he has developed anxiety towards most things he used to love. His friends in the oncology clinic are as comfortable as he gets being around a large amount of people.
He understands medical terminology better than most adults I know.
He has undergone a biopsy on the tumor which he healed from very well. And he has had a Port a cath implanted so that chemotherapy could be administered weekly without collapsing his small veins.
As fluids aren't safe to swallow right now because of the risk of aspiration, he has also had a gtube implated into he stomach so fluids and medicines would not pose a problem. With MRI's every 3 months for monitoring all of this was now normal and we were on the right track.
10 months into his treatment and his chemo had failed us. His MRI in January had shown a 20% growth.
Now we have added respiratory issues to the mix as well as his right eye had started to turn inwards. He can still see out of it but it requires patching the good eye to try and correct the now inward turn. If that doesn't work he will require another surgery. With his respiratory system he now doesn't expell carbons while he sleeps which is extremely dangerous. So we have a bipap machine to help him.
Jaxon is a huge call of duty fan so we explained the changes to him in those terms. We told him he needed different guns to start the new map. He picked his favorite the commando and was ready to continue his fight.
He is the bravest most amazing human and our hero.
The strain of caring for a critically ill child is one I wouldn't wish on anyone. People say all the time I can't imagine what you are going through. I don't want you to imagine. It's horrible. Knowing you can't fix it. Parents are suppose to be able to fix anything. We stand beside him and when he is afraid we hold him and we push through. It's all we can do for him. Be his biggest cheerleaders.
Paul and I are both not working. Jaxon needs care 24/7.
The doctors are hopeful that when he stops growing the tumor should stop as well. Hopeful.
This is what we are striving for. This would be our miracle.
Jaxon will be 6 on July 18th. We are in this for the Long haul. We are thankful that so far this is still our goal.
Thank you for all your support. Much love from #teamjaxon
Also; “The Story written by mother Tracy”
Our beautiful 4 year old Jaxon was diagnosed with an in operable brain tumor. It is located on his brain stem which affects his fine motor skills as well as swallowing and breathing.
In his life up until that moment we had never needed the medical world for anything besides vaccinations. He was healthy and happy and thrived in anything he had done. He was enrolled in Montessori school of Cambridge and is one of the smartest most outgoing children I have ever known.
Now fast forward to February 24th 2017 and we received the diagnosis. This date was the day we started a new chapter of life. A life nobody deserves, asks for, or is prepared to live. Since that date he has developed anxiety towards most things he used to love. His friends in the oncology clinic are as comfortable as he gets being around a large amount of people.
He understands medical terminology better than most adults I know.
He has undergone a biopsy on the tumor which he healed from very well. And he has had a Port a cath implanted so that chemotherapy could be administered weekly without collapsing his small veins.
As fluids aren't safe to swallow right now because of the risk of aspiration, he has also had a gtube implated into he stomach so fluids and medicines would not pose a problem. With MRI's every 3 months for monitoring all of this was now normal and we were on the right track.
10 months into his treatment and his chemo had failed us. His MRI in January had shown a 20% growth.
Now we have added respiratory issues to the mix as well as his right eye had started to turn inwards. He can still see out of it but it requires patching the good eye to try and correct the now inward turn. If that doesn't work he will require another surgery. With his respiratory system he now doesn't expell carbons while he sleeps which is extremely dangerous. So we have a bipap machine to help him.
Jaxon is a huge call of duty fan so we explained the changes to him in those terms. We told him he needed different guns to start the new map. He picked his favorite the commando and was ready to continue his fight.
He is the bravest most amazing human and our hero.
The strain of caring for a critically ill child is one I wouldn't wish on anyone. People say all the time I can't imagine what you are going through. I don't want you to imagine. It's horrible. Knowing you can't fix it. Parents are suppose to be able to fix anything. We stand beside him and when he is afraid we hold him and we push through. It's all we can do for him. Be his biggest cheerleaders.
Paul and I are both not working. Jaxon needs care 24/7.
The doctors are hopeful that when he stops growing the tumor should stop as well. Hopeful.
This is what we are striving for. This would be our miracle.
Jaxon will be 6 on July 18th. We are in this for the Long haul. We are thankful that so far this is still our goal.
Thank you for all your support. Much love from #teamjaxon
Organizer
Chris Costabile
Organizer
Brantford, ON
