Support for Penny

$7,415 of $10,000 goal

Raised by 108 people in 32 months

Penny is a beautiful, vibrant 13 year old who has suddenly and unexpectedly been struck by a serious illness.

Several weeks ago, without warning, Penny experienced her first seizure. She was diagnosed with a classic case of Adolescent Onset Epilepsy and sent home with the expectation that anti-convulsants would manage the seizures. They didn't. In fact, since then, the seizures have increased in both frequency and duration, to the point there has been little respite. Penny was admitted to the Westmead Children's Hospital a week ago and from there things have really taken a turn for the worse. At this stage it is looking like she has Autoimmune Encephalitis resulting in swelling of the brain, but it will still be some days before this is confirmed.

Penny is gravely ill, but she is a fighter and is fighting with all her might.

She is still very much in the acute stage of her illness, and there are still many questions to be answered, but one thing is very clear - Penny's recovery will be lengthy. It could take months or even years and will bring with it many ups and downs. The true implications of this illness may not be realised for some time.

Barb, Simon and their other 3 children have put their lives on hold as they live a 5 hour drive from the hospital and Penny needs her family to be with her.

I know that many people desperately want to help in some way. I am hoping that we can soften the expense of living away from home to support Penny while she recovers.

If you can spare a few dollars to help this beautiful family, I know it would be greatly appreciated.

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I am delighted to share that Penny has finally been discharged home from hospital! Whilst her journey is still far from over, Penny has made great improvement over the last few weeks and her team is confident that she can continue her healing at home with her family. Thank you so much to everyone who has made the last two months so much easier for Penny and her family to face through your amazing support and donations.
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A message from the Uil Family for this amazing community of supporters....
"We would like to thank you for your kindness and generosity in this really trying time. We are just lost for words and truly can not thank you enough. It has been a difficult few months but our girl is a fighter and she has shown us all just how tough she can be - she's going into rehabilitation before we know it! And then, finally home. So thank you - for your kindness. It has already helped in so many ways xoxox"
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It has been a week of ups and downs for Penny. She has commenced a 2nd line of treatment and there have been glimpses of hope for her family. In a holding pattern for the moment while the treatment does its thing.
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A heartfelt thank you to everyone who has shown support through sharing, donating or contributing words of encouragement in the last day. Penny now has an official diagnosis of Autoimmune Encephalitis which has provided a clear path for treatment, but the road ahead is very long.
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Read a Previous Update
Terry Kubal Anderson
30 months ago

I am so happy to hear Penny is improving. This good news is all your family was waiting to hear. So happy for all of you❤

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Mattie Anthony
32 months ago

https://www.encephalitis.info/support/information/frequently-asked-questions/

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Mattie Anthony
32 months ago

My heart is breaking for u Barbs. Stay strong and know that there are a lot of people who love you and your beautiful family. Penny is a fighter. Sending her all the positive energy i can muster . hugs xoxo

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Rachael Wilson
32 months ago

So sorry to hear that Barb best of luck xxx

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$7,415 of $10,000 goal

Raised by 108 people in 32 months
Created December 22, 2016
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$25
Anonymous
28 months ago
CA
$10
Corinne Appleby
30 months ago
$200
Shevaun Buschenhofen
31 months ago

Barb I've just read about your gorgeous Penny. I'm so sorry to hear that she's unwell. Wishing your family all the love I can send. XOX Shevaun Buschenhofen.

$50
Krishelle Tanner
31 months ago

Praying for your daughter every day and from all your posts- sounds like you both have the fighting spirit that she is going to make a full recovery!

$50
Jane Hogan
31 months ago

Sending healing love and light to you all xx

LS
$50
Lana Simovski
31 months ago
NG
$1,000
Natasha Ginnivan
31 months ago
JW
$100
Jen Wright
32 months ago
$20
Lee Biderovsky
32 months ago

Wishing you and your family a happy new year. Sending all my love and healing energy

CS
$100
Caroline Sturzaker
32 months ago

My thoughts are with you and your family at this difficult time.

Terry Kubal Anderson
30 months ago

I am so happy to hear Penny is improving. This good news is all your family was waiting to hear. So happy for all of you❤

+ Read More
Mattie Anthony
32 months ago

https://www.encephalitis.info/support/information/frequently-asked-questions/

+ Read More
Mattie Anthony
32 months ago

My heart is breaking for u Barbs. Stay strong and know that there are a lot of people who love you and your beautiful family. Penny is a fighter. Sending her all the positive energy i can muster . hugs xoxo

+ Read More
Rachael Wilson
32 months ago

So sorry to hear that Barb best of luck xxx

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