STEMCELLS FOR DISABLED MAN

£28,281 of £35,000 goal

Raised by 104 people in 52 months
STEM CELL TREATMENT FOR DANIEL

DANIEL HALL suffers from Friedreich’s Ataxia, an incurable genetic, progressive disease (see: www.ninds.nih.gov and search Friedreich's Ataxia). He is wheelchair-bound and cannot move any part of his body independently, relying   on carers for everything. He needs to be lifted out of bed, to be fed, helped to use any equipment, even the phone or computer. He suffers from frequent muscle spasms and often excruciating joint and back pain that stops him from sleeping through the night. Many nights he gets no sleep at all.

The ataxia has now progressed to where it has led to deformities and severely compromised heart function. FRIEDREICH'S ATAXIA ( FA) has caused Daniel cardiomyopathy, a progressive heart disease, causing shortness of breath, and debilitating irregular heart rhythms and  heart failure; these symptoms and lack of proper oxygen exchange in all cells of his body  caused by FA  result in profound exhaustion. Daniel also has Type 1Diabetes  requiring 4x daily insulin injections and constant monitoring of food. Daniel attends innumerable hospital appointment to monitor his condition but they do not offer hope of improvement in his symptoms.

It has got to the stage where Daniel's speech has deteriorated which is having a major impact on every aspect of his life. Any improvement of this difficult life would mean a lot. Any ease of his condition would be a great improvement of his quality of life.

Stem cell treatment has helped people suffering from ataxia. It is not a cure but it offers a respite from the symptoms . It can improve heart functioning, speech clarity, fine motor skills and reduce exhaustion. It could significantly improve Daniel’s quality of life. Since 1997, a number of countries have been offering stem cell treatment but currently, not the UK. China has been the pioneer in stem cell treatment both in research and hospitals offering this programme  ( see: www.beikeboitech.com ). Return air fare for Daniel and his carer & 6 weeks in hospital for the whole package of treatment  would cost  £35,000

Daniel's history: The  at first minor  problems with movement in Daniel’s childhood kept increasing and by age 15  he needed a wheelchair permannetly.  Daniel was accepted by Sussex University to read Economics with Spanish  and by this time   he was fully dependent on a full-time carer.

After obtaining his degree, Daniel lived in a council flat in London modified to his needs. He was now suffering additionally from heart failure and diabetes. Nevertheless, he kept active:  exercising in water in order to alleviate excruciating spinal and muscle pain, using his standing wheelchair to relieve the pressure  and prevent his feet becoming irreversibly deformed & to reduce further deterioration of his spine.


Daniel is writing a book about his experiences and taking acting classes.

STEM CELL APPEAL: We are launching this appeal to fund Daniel’s treatment.
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Every single day Dan is doing his very best to keep as well as possible. He goes swimming when he's well enough and does all kinds of approved exercise at home. Anne remains his rock and it is primarily down to her that he is still alive
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We still have some way to go with helping Daniel get his stem cell treatment.

Dan's heart function has become increasingly affected and he now has advanced heart failure. He has had numerous hospital admissions and an advanced type of pace maker fitted. At one point a heart transplant was suggested but this was not possible.. Its now clear that stem cell treatment for his heart is imperative and it is on this which we are concentrating. Stem cell treatment for heart failure is now available at private hospitals in Europe but is not offered in the U.K.

We need to get a move on for the final push. Thanks to you all we've done so well and now need to raise just £12,000 more. We can only do this with your generosity and support and hope that you will make a contribution to our fund raising .

Over the next few months we shall be holding a number of events so keep looking.
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To C. Thank you so very much for your generous contribution. It is much appreciated.
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Saturday we held a most successful pop up shop outside Minkys at Kensal Rise. Doron the owner, kindly let us set up outside. Mays of Holloway generously loaned us a brand new clothes rail so all our wares were displayed beautifully.
Friends and locals came, browsed and purchased.
We raised £320 and have more ideas in the pipe line.
Many thanks to everyone who helped, supported and bought.
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Read a Previous Update
Olivia
1 month ago

This gofundme page must now be closed. However a different gofundme page will be set up soon so donations can continue to be made to daniel's future stem cell treatments. Thank you all for your generosity.

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£28,281 of £35,000 goal

Raised by 104 people in 52 months
Created April 4, 2015
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£280
Andrew Slade
5 months ago
1
1
£100
Anonymous
5 months ago
1
1
AS
£25
Abby Sullivan
5 months ago
ND
£10
Noemi Drew
5 months ago
RC
£15
Reece Crawford
5 months ago
RC
£75
Rebecca Crookshank
5 months ago
AA
£11
Amber Arifeen
5 months ago
£10
Anonymous
6 months ago
FM
£200
Fiona McGowan
6 months ago
EB
£20
Elisa Basili
7 months ago
Olivia
1 month ago

This gofundme page must now be closed. However a different gofundme page will be set up soon so donations can continue to be made to daniel's future stem cell treatments. Thank you all for your generosity.

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