Help Hanna beat MS with HSCT treatment
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My name is Hanna and I’m 32-year old MS fighter. Let me tell you first what it is so you'll understand.
Multiple sclerosis is demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. This damage disrupts the ability of parts of the nervous system to communicate, resulting in a range of signs and symptoms, including physical, mental, and sometimes psychiatric problems. Specific symptoms can include double vision, blindnessin one eye, muscle weakness, trouble with sensation, or coordination. There is no cure for MS but there is hope. The reseach to find the cure is on. The problem is we don’t know what causes the cells to attack to against ms patients.
Two years ago I was living active life, working a lot and raising my little son. I was happy. First signs of MS started in July 2018 as my face went numb on the right side. I spend a week in hospital as I was tested for what was going on in my body. They took a brain scan and there it was. Two callus-areas in the left side of my brain. This is the first part of MS diagnosis. It is confirmed with cerebrospinal fluid examination. On 16th of August 2018 I sat in front of my doctor to learn that I have multiple scleroris. With no cure, the disease is moving forward. My symptoms are losing my vision, extremely difficult fatigue (I am tired no matter how much I sleep.) I have difficulties with remembering things. I have pain and weakness with muscles. Sometimes it is hard to even walk. I have tried to different medicins, Plegridy and Copaxone to prevent new symptoms. They dont work for me.First one gave me anafylaxia, second one blood poisoning. Now my condition is getting worse, since
Why I’m organizing this fundraise? Because there is still hope to recover from MS by having a stem cell transplanation. The aim of HSCT is to replace or reboot my body’s immune system so that it no longer attacks my myelin or causes inflammation in my brain and spinal cord. HSCT uses high doses of chemotherapy to wipe out existing immune system, which is then rebuilt using stem cells collected from blood before I have the chemotherapy. The hope is that my immune system will stop attacking me and there will be no further damage inside my brain.
The problem is that I can’t get the stem cell transplanation in Finland, it is used here only patients with critical conditions and illness like leukemia. In Sweden and Russia the research is giving positive results with HSCT for MS patients. The disease can be stopped.
The problem is that the treatment is extremely expensive. The price is 57000 euros and I can’t afford that. So I’m asking for help.
My neurogists won't listen about the treatment, but want's me to try again and again another medicin, that may slow the process. They ordered me to try another MS-medicin called Ocrevus. And for me, these medicins just make me even more sick. Right now, I am losing my vision, I am not able to walk properly, my hands don't function, I am in pain 24/7. And it is getting worse. But MS can be stopped with HSCT treatment, which is the same that is done for cancer patients.
I’m 32 years old and I want to be able to raise my child and live healthy and be able to work and exercise and be mom to my child. I want my life back and with stem cell transplanation it is possible. I will be able to get the treatment in Moscow, clinic Pirogov, done by Dr Fedorenko a,fter I have growdfunded the amount for that. The treatment costs 57 000 euros itself, plus I need to cover plain tickets to Moscow and back home.
Any help will be much needed and for everyone even reading my story, I appreciate your time. I wish you happiness and health in your life
- Hanna
Multiple sclerosis is demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. This damage disrupts the ability of parts of the nervous system to communicate, resulting in a range of signs and symptoms, including physical, mental, and sometimes psychiatric problems. Specific symptoms can include double vision, blindnessin one eye, muscle weakness, trouble with sensation, or coordination. There is no cure for MS but there is hope. The reseach to find the cure is on. The problem is we don’t know what causes the cells to attack to against ms patients.
Two years ago I was living active life, working a lot and raising my little son. I was happy. First signs of MS started in July 2018 as my face went numb on the right side. I spend a week in hospital as I was tested for what was going on in my body. They took a brain scan and there it was. Two callus-areas in the left side of my brain. This is the first part of MS diagnosis. It is confirmed with cerebrospinal fluid examination. On 16th of August 2018 I sat in front of my doctor to learn that I have multiple scleroris. With no cure, the disease is moving forward. My symptoms are losing my vision, extremely difficult fatigue (I am tired no matter how much I sleep.) I have difficulties with remembering things. I have pain and weakness with muscles. Sometimes it is hard to even walk. I have tried to different medicins, Plegridy and Copaxone to prevent new symptoms. They dont work for me.First one gave me anafylaxia, second one blood poisoning. Now my condition is getting worse, since
Why I’m organizing this fundraise? Because there is still hope to recover from MS by having a stem cell transplanation. The aim of HSCT is to replace or reboot my body’s immune system so that it no longer attacks my myelin or causes inflammation in my brain and spinal cord. HSCT uses high doses of chemotherapy to wipe out existing immune system, which is then rebuilt using stem cells collected from blood before I have the chemotherapy. The hope is that my immune system will stop attacking me and there will be no further damage inside my brain.
The problem is that I can’t get the stem cell transplanation in Finland, it is used here only patients with critical conditions and illness like leukemia. In Sweden and Russia the research is giving positive results with HSCT for MS patients. The disease can be stopped.
The problem is that the treatment is extremely expensive. The price is 57000 euros and I can’t afford that. So I’m asking for help.
My neurogists won't listen about the treatment, but want's me to try again and again another medicin, that may slow the process. They ordered me to try another MS-medicin called Ocrevus. And for me, these medicins just make me even more sick. Right now, I am losing my vision, I am not able to walk properly, my hands don't function, I am in pain 24/7. And it is getting worse. But MS can be stopped with HSCT treatment, which is the same that is done for cancer patients.
I’m 32 years old and I want to be able to raise my child and live healthy and be able to work and exercise and be mom to my child. I want my life back and with stem cell transplanation it is possible. I will be able to get the treatment in Moscow, clinic Pirogov, done by Dr Fedorenko a,fter I have growdfunded the amount for that. The treatment costs 57 000 euros itself, plus I need to cover plain tickets to Moscow and back home.
Any help will be much needed and for everyone even reading my story, I appreciate your time. I wish you happiness and health in your life
- Hanna
Organizer
Hanna Hukka
Organizer
Lahti
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