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Stand with Maddie

$19,765 of $50,000 goal

Raised by 267 people in 12 months
Created July 27, 2018
Stand with Maddie
After returning from vacation in Florida with her grandparents, our daughter, Madelynn Klaire Grigsby, complained of sharp stabbing pains in her “tummy”, which prevented her from moving.  I took her in to see her pediatrician and what we thought was normal abdominal pain, turned out to be something more serious.

They ran a CT scan and found a massive tumor on the right side of her ribs. I was told to wait for the surgeon and oncologist to call the next morning. That following morning, we immediately rushed her to the Emergency Room at Roseville Kaiser due to excessive pain in her abdomen. Over the next couple of days, our hearts sank with every test, scan, and biopsy, every time a medical staff entered, spoke, or left the room, every single second we sat by her side.

A week before her 7th birthday on July 23rd, the oncology team at UCSF Benioff Children’s Hospital confirmed their initial diagnosis of an extremely rare form of cancer called Ewing’s Sarcoma (about 200 cases reported every year). Ewing’s Sarcoma is a cancerous tumor that grows in an individuals bones or the soft tissue around the bones, such as cartilage or the nerves.

When they found the cancer in Maddie, it had metastasized from her ribs, down her spine and legs, as well as other parts of her body. Her ability to walk was affected and continues to feel excruciating abdominal pain, despite being given pain medication.

Maddie has received her first round of chemotherapy but due to the toll of treatment on her body, she underwent a blood transfusion to balance the low red blood cell count.

Our little Maddie is such a warm, humble, and loving individual that loves to make others smile!
Before this, our daughter was healthy and extremely active, enjoying hikes and swimming with her family and friends. She’s an adventurous girl that prefers physical activities and being outdoors. 


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Throughout all of this, we are and will continue to be optimistic, trusting in God. At times when our minds stray down the "wrong path", all we do is think of Maddie and her positive spirit. She continues to smile and fight this battle through all her pain and suffering.


She currently enjoys making keychains and personalized art with Perler beads, here are some of her favorite projects!

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Please join us in helping our little Maddie fight. Any amount is greatly appreciated and will go directly towards her medical expenses (medication, chemotherapy, etc.). We will update you every step of the way!


Thank you for taking the time out of your day to visit Maddie's page. We cannot express how grateful we are for your love, prayers, encouragement, and uplifting words.
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Maddie had a fever on 5/23, so her took her to the Lodi Memorial ER. Because her counts were low with a fever, they felt she needed to go to UCSF. She continued to have fevers for a few days after that and received both red blood and platelets throughout the week as her numbers were not going up. She was given the Neupogen shot everyday, but it did not help with her white blood count, so she was neutropenic for over a week. They decided not to go with the stem cell collection because her body wasn’t ready. A week after being at the hospital, she had a seizure and a fever of 103 on 5/30. They immediately took an MRI of her brain and proceeded with a lumbar puncture to rule out meningitis. They monitored her brain activity overnight with EEG machine. The next day, she did another MRI, this time, with contrast with anesthesia. She also had a chest x-ray to rule out infection in her lungs. She started to feel better and her counts were starting to go up, so she was able to go to the school room to be with other kids. They ruled out bacterial infection, because she wasn’t sick, but were not 100% sure it was a viral or fungal infection. So, she continued to receive the anti-fungal antibiotics through iv. Sunday, 6/2, she had a bloody nose for over an hour. She remained calm pinching her nose and was very brave. They gave her a platelets and she felt fine right afterwards. The next evening, they wanted to take another MRI, to see if the antibiotics worked, but the infection looked a little bigger with puss. She had another nose bleed on Tuesday, 6/4, but it only lasted for 7 minutes. They did not think the nose bleed was related to the infection in her brain. The oncology team, neuro team, and infection and disease team all felt the best option would be to surgically remove it. The neurosurgeon felt comfortable if her platelets were at 100. Maddie’s platelets were at 88, the morning of the surgery, 6/10, so they gave her some platelets and she was at exactly 100. The surgery went very well and they were able to remove the whole mass. It was sent to pathology for further testing and should take a week. Maddie remained in the PICU for recovery for one day and by Sunday, she was already up and playing. She went to the playground twice and you couldn’t even tell she just had brain surgery. Even with another nose bleed that morning, that lasted 15-20 minutes, it still did not phase her. Maddie was discharged on Monday evening. She has been doing very well at home and her incision is healing nicely. Praise God. She is such a strong and resilient little girl with the best attitude throughout her journey. I’m so thankful that she has so much joy and peace. She has her whole body PETCT scan on Monday, 6/17. We are praying for a positive report We haven’t heard what the next plan is for her treatment, but have a meeting with the oncology team on Thursday, 6/20. We also will meet with the neurosurgeon on the same day to discuss the results found from pathology. Also, for the surgeon to look at Maddie’s incision. Thank you so much for your continued support, especially for all your prayers. God is still good and He is able to turn this around. We love you all!
#standwithmaddie
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Maddie completed her first round of chemo treatment (5 days) last Friday 5/17. Other than the usual side from chemo therapy; nausea, low appetite and a fever that came and went, she had great energy and wanted to be with other kids there. She went to the school room all week, some days twice for 1.5 hours each time. She participated in the Bingo game with other kids and called into the live show Keladioscope to share about her dogs. She wasn’t really able to eat anything for 4 days, because of her nausea but soon got back her appetite on Saturday. Her first grade teacher Mrs. Hall came by and had Maddie help decorate the cookies she made for her staff. Maddie’s cousin Jackie came over and they played lots of board games and did art projects. We were able to take her to church and she really enjoyed the worship songs in the main sanctuary. She usually goes to to kids room, but this time she received her blessing of being touched by the worship songs. Maddie had her labs done to check her counts and they are all high. Praise God. She will go in and get her labs done again today. She’s been getting the Neupogen shot daily to help boost her white blood cells (immune system). Maddie has been so tough with the shots. She says the injection party isn’t the problem, it’s when the medicine is being pushed in her skin that she can feel the burning feeling. She will get this shot daily until she goes in next Tuesday, for her stem cell collection. They will start an iv her femoral vein for the collection of the stem cells. They will collect on Wednesday and will store it until she is ready for her bone marrow transplant, which should happen after the 4th round. We are praying Maddie continues to have good energy and remain strong throughout her treatment. So proud of her bravery and positive attitude through all of this. Please pray that everything goes well with the stem cell collection next week. Thank you for your continued support. We love you all! God bless!
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Hello everyone,
I know it has been awhile since I have written an update on Maddie. But here is the latest update. Madelynn completed her 14 rounds of chemo on April 6, 2019. She rang the bell and it was a big relief for her. She was in tears to see everyone cheering her on and it was just a beautiful celebration. On April 24th, she went in for her a full spine MRI and full body PET scan. A few weeks later, we received a call stating they had found some small tumors surrounding the old site where her surgery was. Her father and I came in this Wednesday, 5/8 to meet with the team of Oncologists to discuss different treatment plans. It was probably the hardest day of my life, aside from when we first heard about Maddie’s diagnosis last July. It turns out Maddie’s cancer is very aggressive and they will need to start some sort of chemo treatment soon. They gave us a few options of treatment, including clinical trial (but doesn’t include radiation). Normally, they’ve seen cancer come back a year or years later, but since hers came back so soon, they are assuming it must have came back during the last rounds of chemo. They want to hit it hard this time with radiation in conjunction with a very intense chemo treatment. They will also extract her stem cells from her bone marrow and then transplant it back in to replace it, if she makes enough. If she doesn’t, there’s a chance that the stem cell extraction would be for nothing. This will require either replacing her port she has in now with a broviac again, or putting an iv line in her groin (another big vein) each time they need to extract the stem cells. It all sounds so confusing, but bottom line is they are hoping for the chemo treatments to work and her body will react well to it. Each round of chemo will be 3 weeks apart, which is a week long of chemo, her numbers should drop 7-10 days, go back for stem cells extraction (2 days), and in between she will get an injection each day to boost up her counts. After the 2 rounds (estimation: 6 weeks), they will do another set of scans to see if the tumors have disappeared or shrunk to decide on staying on that regimen or try a different route. Hearing all of this, I couldn’t help but cry. I felt my heart hurting for Maddie. My heart is broken and unsure on how I should feel. I have full faith in God, and trust in his plans, but at the same time can’t bare the thought of Maddie having to go through the treatments and enduring all this pain all over again. They did not give me us a time frame, other than saying it could be a year or longer depending on how her body reacts to the chemo. They said it will be a long and difficult road and to prepare for that. So, we will continue to stay in faith and support Maddie with love and positivity. This is where my faith kicks in and I get to surrender ALL to our Heavenly Father and not allow my situation to cause me to doubt or have fear of the future. I am praying that God continues to give me peace, strength, endurance, patience and comfort as I go through this with our sweet Maddie. Also, for Maddie to have complete peace and have the strength to endure what is to come. I will be in constant prayer believing in another MIRACLE because we serve a Good God and Maddie will be a testimony for all to see his goodness. We will continue to be a light for Jesus, giving hope to those who have lost their way and will find their way back to HIM. Thank you to ALL OF YOU for your unconditional love and support throughout her journey. Especially for your prayers and believing with me. Sending our love to you all. God bless!!

On a positive note, we made the most out of our day in San Francisco. We took her to the Ice Cream museum, where Maddie happened to fit right in with her sparkly hat & pink shoes.♥️ She got to go to the LEGO store and we are at the Cheesecake Factory for aunty Kimmy’s birthday. It was a fun-filled day for Maddie and she really had a great time! It was truly a blessed day, in spite of the news we received.
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Update on Maddie: Hello everyone! Hope you all had a wonderful Christmas and New Year. Maddie definitely enjoyed both Christmas and New Year. She completed her 8th round of chemo before Christmas and went in for 2 platelets transfusion before her 9th round of chemo last Thursday. She discharged Monday evening and remained in great spirits. I’m so thankful she responded so well to the treatment this time around with hardly any negative side effects, other than a tummy ache on the first day. She had 5 day chemos back to back, so I was afraid it would be hard on her, but Maddie remained strong and resilient. So thankful she is having normal appetite and high energy. They drew her labs every other day when she was at the hospital and her white blood counts continue to drop, but her red blood and platelets are still high. She will get her next labs done this Friday and we are hoping her numbers remain high.
Maddie was able to visit the Make A Wish Foundation a week before Christmas. I posted a picture of all of us in front of the Wishing Well. We are thankful for everyone’s prayers for Maddie. God definitely has shown his faithfulness through Maddie's miracle. God is so good! We love you all and thank you for your continued support!
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$19,765 of $50,000 goal

Raised by 267 people in 12 months
Created July 27, 2018
Stand with Maddie
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