48
48
2

Sig's Medical Fund

$4,500 of $15,000 goal

Raised by 51 people in 19 months
After two months of mis-diagnosis, a swollen right cheek on 9 yr old Sigmund's face was determined to be fibrous mass growing under the skin. That determination began a whirlwind of imaging, biopsies, and follow ups. What was eventually revealed was that Sig has a "Desmoid Tumor" ravaging the tissues and structure of his right facial  area. The tumor is consuming bone, blood vessels, sinuses, nerves, and muscle tissue as it makes its home on Sig's face. Almost immediately Sig began weekly Chemotherapy treatments in attempt to "shrink" the tumor before any sort of surgeries to attempt removal can commence. Surgery is imminent no matter how the tumor responds to the chemo, as is a radiation treatmeant phase. He has just entered his 10th week of 52 weeks of prescribed chemo. Total treatments are expected to last 18-24 months. 
Sig is not reacting as well to the chemo treatments as was hoped. So far he has lost 10% of his body weight due to the nausea and vomiting associated with the chemo. Recent imaging has determined the tumor is not responding as expected. The tumor was recently classified as a "fibrous mass of undetermined behavior." All treatments are out of town and require a full day for traveling and appointments.
Sig has gone from a straight "A" student in his school's gifted program, to missing nearly everyday of school now for the third month straight, with no end in sight. Some weeks are better than others, but even the best weeks still only result in a couple days of being able to attend school. As Sig perseveres through the physical pain and emotional strain of going through his days with this tumor, he has required constant care from his dad and step-mom who have put their lives and careers on hold to meet Sig's immediate needs.
This care has come with a huge price that unfortunately is not within the capabilities of this family to absorb. Sig has 3 brothers and a sister that need to keep on with their daily lives in as normal a fashion as possible. Currently, this family needs help covering the bills so as to not add more trauma at this critical time. On the plus side, the kids do have medical insurance. 
Our goal of $15,000 is not going to fix everything, but hopefully it is the boost needed to keep this family from being financially crushed by this event. 
Thank you to everyone for your support in all its forms.
God bless.
+ Read More
Sig’s surgery to remove the tumor was successful thanks to the amazing skill and care of the surgeons and no doubt all the prayers that have been sent Sig’s way. There was less blood loss than expected, and the no nerves were removed or damaged, although he does have some numbness that is expected to dissipate. He is currently resting comfortably at home while the swelling diminishes and the surgery site heals. Hopefully he will feel like going back to school in the next couple of weeks.
There is a series of MRI scans scheduled to check for tumor regrowth over the next several months that will tell us if we are out of the woods or not.
+ Read More
The latest MRI scan is showing that the tumor is not behaving and "shrinking" as hoped. It has been determined that the side effects of the chemo treatments are not justified and the chemo has been stoppped.
Sig is scheduled for surgery on March 23, 2018 to remove the tumor. There are very high risks with the surgery up to and including stroke and facial paralysis. The tumor is invlovled with major nerves of the face and tongue and major blood vessels to the brain. He may have to re-learn to talk and swallow. His face and jaw will be put back together after the surgery with metal plates.
The length of recovery and level of care required are not known at this time and won't be known until they open him up and see what has to be done. We will keep this forum updated as information is known.
Thank you everyone for all your thoughts, prayers, and support.
+ Read More
Based on this week's MRI, a change in treatment has been precscribed. Starting onThursday, Sig will begin a significantly more aggressive inpatient chemo at Children's Denver for 5 days at a time with three weeks at home between each treatment. Due to the tumor's location blocking the esophagus, there is no time left to be gentle with this tumor.
The location of the tumor has been the biggest obstacle. The doctors have had to bring an exhaustive list of professionals to the table for consult. The results of which are unanimous decisions across three hospital boards that this level of agressive treatment is necessary to try to get the tumor to pull away from vital structures giving surgery the best chance of success. This chemo has a horrific list of side effects from permanent heart and liver damage to fertility problems, and will require testing and medication years into the future to mitigate damage.
Depending on how Sig and the tumor respond to these next eight weeks will determine if the chemo can continue or transition to surgeries will begin.
Thank you to everyone for your thoughts, prayers, and help.
+ Read More
Read a Previous Update

$4,500 of $15,000 goal

Raised by 51 people in 19 months
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
ES
$50
Erin Stewart
11 months ago
ES
$60
Erin Stewart
14 months ago
ES
$70
Erin Stewart
16 months ago
KF
$50
Kaneda Family
17 months ago
JW
$100
Janet Winterburn
17 months ago
NA
$100
Nicole Asselin
17 months ago
MF
$50
Manzanares Family
17 months ago
ST
$50
Samantha Tino
17 months ago
$40
Anonymous
17 months ago
ES
$70
Erin Stewart
17 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.