Seeking help for daughter with rare heart problem
Donation protected
We recently discovered that our daughter Belle (due July 22 2019) has been diagnosed with HLHS a rare heart syndrome that effects roughly 1 out of ever 4,000 babies.
Hypoplastic left heart syndrome affects a number of structures on the left side of the heart that do not fully develop, for example:
- The left ventricle is underdeveloped and too small.
- The mitral valves is not formed or is very small.
- The aortic valve is not formed or is very small.
- The ascending portion of the aorta is underdeveloped or is too small.
Often, babies with hypoplastic left heart syndrome also have an atrial septal defect, which is a hole between the left and right upper chambers (atria) of the heart.
More information on HLHS
Hypoplastic left heart syndrome affects a number of structures on the left side of the heart that do not fully develop, for example:
- The left ventricle is underdeveloped and too small.
- The mitral valves is not formed or is very small.
- The aortic valve is not formed or is very small.
- The ascending portion of the aorta is underdeveloped or is too small.
Often, babies with hypoplastic left heart syndrome also have an atrial septal defect, which is a hole between the left and right upper chambers (atria) of the heart.
More information on HLHS
Fundraising team: Gammel family fight against HLHS!!! (2)
Belle Gammel
Organizer
Albuquerque, NM
Justin Gammel
Team member