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Seans Medical Recovery and Quarantine Fund

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** VERY IMPORTANT UPDATE 07/19/2020**!!

MOST debt that needed to be paid (the largest of bills) are paid! While the initially set goal has been lifted higher, this is to cover additional expenses, equipment & new bills that continue.  Posted NEW bill that came in on the 18th of July

COVID-19 has rendered me unemployed. I didn't make enough to get unemployment, I'm self quarantined for who knows how long, and have to pay bills, food, continuing expenses...I WAS working 3 hours a week, if that, at a retail store and continue to get treatment with Neurologists, Orthopedics, occasional ER visits, insurance co-pays or outright denials of needed equipment.

I will not be actively promoting this anymore but welcome anyone who still wishes to help. I'm working every day to be independent, financially stable and working hard on things I love to do [or even what I don't love to do...] I love you all.





**UPDATE 12/17/2019**

 

Attached below is a letter received in regards to my new wheelchair. As you can see, the cost is around $2,500 and I need this chair ASAP. My current wheelchair is falling apart and the sooner I get a new wheelchair, the better and safer. If you can please continue to donate and share this via your social media, I will be eternally grateful. 

 

All of my love.









UPDATE - 07/27/2019

The amount has been raised because yesterday, [July 26th] I received a letter in the mail yesterday from my insurance which denies me a new
wheelchair. This was after I had two specialists write letters, I had a physical evaluation and I had a prescription and yet, Medicaid has denied this request for the second time. It was commonly known that people need a new wheelchair every 5 or so years and mine has been far longer.

Medicaid determined it was not cost-effective to get a new one but without one I am at a severe risk every day. A malfunctioning wheelchair with my brittle bones could be detrimental and to think they are placing the burden in MY HANDS [after I have already appealed this..] is insane. Even if I covered or had the chair replaced, the cost is almost as much as the new wheelchair and if that is done, when will Medicaid actually pay for a new one? 

Any additional funds will go towards getting this new chair and anything else that may arise with it, primarily co-pays, actual purchases, life costs etc. 

I am still working part-time at GameStop but the hours vary from 4 hours a week to not being scheduled for weeks at a time. Once this hits the goal it will be closed. I am actively working to gain more employment and independence. 




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Now please read the medical story below!
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Photos of injuries/etc as people have online had issues with the validity of my situation.






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** To Start Please Note **


I was born with Osteogenesis Imperfecta which is a fragile bone disorder. I’ve had hundreds of bone fractures since birth and have struggled with an independent life. I had severely limited mobility, wheelchair-bound, and relied on my mind to help me through life. I survived years of depression throughout high school due to bullying while such humiliating treatment carries unto my adulthood.  I was 27 when this particular story began and I had just hit a stride in life. I was in shape, working part-time, living with my fiancé and working every day to be a better me. Then in one second, everything fell apart.


NOW - WHY THE GOFUND ME -


March 27th, 2017 is the day that changed my life forever. I had come home from a normal day and was ready to eat dinner with my fiance' when I suddenly woke up in the emergency room of Sparrow Hospital with no memory of how I got there, all I knew is I had two broken bones and my family scattered around me in tears. I was told I suffered a massive seizure, that my heart stopped and I was revived, after being in complete cardiac/respiratory arrest for up to three minutes. As I laid there my head was hazy, I slipped in and out of consciousness while writhing in pain and then…I woke up again, like a flash with a tube down my throat and a large cast on my left arm. A nurse tells me I had a second seizure in the ER and it caused my left radius and ulna to shatter. I again went into cardiac arrest, was revived, then transported to the University of Michigan to have reconstructive surgery on my arm.

I laid heavily sedated and on life support for weeks, barely able to comprehend what was going on around me. During all of this I was uninsured and nearly broke with no hope in sight. The tube finally came out and it was explained to me I had epilepsy and there was yet to be a cause. The epilepsy diagnosis was a dangerous one, seeing as how each seizure nearly killed me and caused fractures, getting it under control was a must. After about a month I was released home, having to go back to my parents, monitored 24/7. I laid in a reclining wheelchair, my arm in a cast and other “clean” broken bones trying to heal. I lost my independence and struggled mentally with a dark feeling of depression.

In the summer of 2017 I went back to U of M to get the cast removed and when my arm was freed I realized I’d lost 90 percent motor function in my left hand. I couldn’t bend my fingers or my wrist, leaving a sense of incredible fear. It was then I began intense physical therapy for months, healing and working towards regaining use of my hand all while also maintaining my epilepsy. I underwent many tests, MRI’s, CT scans, all with inconclusive results. I was already disabled but now what little independence I had was gone. I couldn’t get dressed, push my chair, I felt useless. It continued on like that and I never gained full function in my hand either. I lost my ability to do what I loved as well, as I was a guitarist for 14 years.

Then on February 5th 2018, I went into the hospital via an ambulance after having a petite gran mal seizure caused by influenza A. I was admitted with a severe blood co2 level and was kept on watch due to both the flu and neurological problems. On that night, 2:04 in the morning, I again was in complete cardiac and respiratory arrest. My family was pulled away and were told I had no pulse and the nurse wasn't hopeful.  Miraculously, however, I  was revived after 8 minutes lifeless on the hospital bed. I woke up two days later with a another breathing tube. I had multiple bone fractures as well and was being kept sedated by propofol with heavy pain medication. Doctors worked hard to figure what if anything could bring me back to normal or if I'd even be able to speak again.

Weeks later I was off life support and breathing on my own and returned home.  I am on the mend it appears, but I am broken, sick, confused and frankly feeling depressed and disgusted with the cards of my life but I am still here.

A LOT is still wrong and there are more questions than answers. I am using this GoFundMe because I need help. I’ve been out of work for the last two years and still trying to get government assistance. I now have Medicaid but it does not cover everything, I had racked up tens of thousands in hospital bills and they still continue. It was only recently I found an orthopedic doctor that will treat my disability and I’m still searching for a proper neurologist to diagnose a particular problem.

I need this money to help cover many of the bills, medical equipment I'll need that my insurance won't cover, the copays and general living expenses I need since I have little to no income at all right now. If you can find it in your heart to donate, I would thank you so much. 



If you can't, please help me spread the story?  I need help - I'm so sick of all that's happening...I'm hoping a break happens soon.

Donations 

  • Yan Segal
    • $5 
    • 4 yrs

Organizer

Sean Smith
Organizer
Holt, MI

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