Save Soraya Uk

Soraya's story. She has a Scottish mother and Spanish father. She was born in Malaga. She moved to Edinburgh during the recession in Spain. She has a first class degree in Fine Arts. She is an acclaimed artist and photographer. She won a prestigious award for a digitally animated film she produced about Alzeimers Disease. She was working as a waitress in Edinburgh whilst persuing her dream of working in the Art or design Industry. She was diagnosed with Acute Lymphoblastic Leukemia on 17 July 2017. She had 98%Leukemia and her mother was given 24 hours to get there. She was made stable and given blood transfusions. She was Brough back to Malaga from a hospital bed in Scotland to the sixth floor heamotology department in Carlos Haya. She was put in isolation but did not respond well to the chemotherapy. They had to give her an even stronger more aggressive treatment which almost killed her. She went into remission but as her Leukemia was very likely to come back she was rushed to receive a bone marrow transplant. Her sister was a full identical match and she received this on 12 December 2017. Once again she almost died during treatment, eventually she was released from hospital on 6 January 2018. Her recovery was slow and full of viruses infections, a roller-coaster ride and many hospital visits. Once again she pulled through. Around July and August she starting to rebuild a bit of life again, her main problem was an ovarian cyst that had grown in size and needed removed. Eventually we got a date for this operation, 20th November 2018. Unfortunately it turned out to be a malignant tumor size of a rugby ball. They took lymph nodes, appendix and other tissues. We should have been celebrating her first rebirthday on 12 the December but were too afraid to make plans as we were waiting for biopsy results from her operation. We were so happy when they came back clear. She went for her one year bone marrow biopsy on 26Dec. The doctor called the next day and asked us to come in. She had relapsed. He wanted her to stay in that night and start chemo first thing in the morning. We didn't sleep a wink that night. I knew she would not survive the chemo. I spoke to the doctor at 07.00 am in the morning. He said he hadn't slept either and we had to find a way to save her. He gave us steroids and anti viral medication and suggested inmunotherapy treatment as a bridge to get her into remission and then Cart T Cell trial or treatment. We at this moment are waiting for an answer from The Junta de Andalucia government to see if they agree to pay for her treatment. I have tried emailing trials so has her doctor but because of the ovarian cancer she is not eligible. Meanwhile, Soraya is anxiously waiting to know if her life is worth saving or not This treatment is not available in Europe, and Soraya is not eligible for trails as she is still recovering from the ovarian cancer. The current situation is that Soraya is waiting on a government decision to receive the immunotherapy drugs, if they say yes, this is only a bridge to get her to America or Israel for Cart-T Treatment. If they say no, there may be an option to pay, however the news is not coming through either way so far. Unfortunately, this treatment is very expensive, plus flights, hospital stays, accommodation, supplements, and even food, have to come into consideration. My dear friend Katrina, and a friend to everyone she meets, is Soraya's mum. Katrina has phoned and emailed hospitals all over the globe whilst trying to look after her sick daughter, maintain a home and keep some normality for the three grandchildren also living at home. I remember Soraya telling me that when she first came out of isolation after three months and was allowed outside, that it was the breeze on her face that she loved the most. We take the smallest things for granted every second of every day. We also have another go funding page in Euros which was made only a few days prior to this ,its doing brilliant check it out same name, same picture and there's a few more  live up dates from Spain Thank you Stella Pierce