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Rylan Graces fight to keep walking

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Rylan Grace turns 3 in June. She is a beautiful and vibrant little girl, and the entire world for her parents and brothers. While she was deemed perfectly healthy at birth, and has shown herself a force of nature in her short life, this sweet little princess was diagnosed with Charcot-Marie-tooth syndrome. CMT is a degenerative nerve disease, that causes muscles to waste away, Rylans type is 4B2 one of the rarest forms. So far, she has lost feeling and motion of her feet and shows signs of early childhood glaucoma, due to the fast aggression of this disease. This is just the beginning of a very long battle for this precious angel, who has already experienced braces for walking, procedures and every test a 2 year old can endure.
The next and only possible step is for major surgeries at Mayo Clinic in Minnesota. This will involve Achilles tendon release, tendon transfer, and heel move with titanium rods in both feet. She will have casting for 6 weeks followed by intensive therapy.
This will be costly, both for medical
procedures and time away from work for her mother. They will have to stay for 6 weeks in Minnesota, over a 1000 miles away from home. This family needs your prayers and your help! Thank you for your time and blessings.

Organizer

Christina Thomas
Organizer
Birmingham, AL

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