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Ryan's Leukemia Treatment Fund

$4,840 of $50,000 goal

Raised by 67 people in 10 months
Created August 18, 2018
My brother, Ryan Dellinger, is like most teenage boys. He loves to socialize, he loves sports, video games, and many outdoor activities. But Ryan has most distinguished himself as an intellectual academic, avid chess player, dedicated Boy Scout, part-time worker, and is actively involved in church and youth group.

In May of 2018, Ryan was most concerned about his lifelong goal of achieving Eagle Scout, graduating from high school with honors, and selecting a distinguished college or university to attend.

On June 11, 2018, Ryan's ambitions were blindsided by the devastating diagnosis of  High Risk Acute Lymphoblastic Leukemia .  Ryan is extremely high risk compared to other leukemia patients due to his age, his gender, and a chromosomal abnormality that causes resistance to treatment. After his first phase of treatment he still had cancer cells present in his bone marrow.

For the last two months, Ryan has continued his chemotherapy and blood/platelet transfusions. During this time, Ryan has also had to adhere to a strict medication schedule to mitigate the negative effects of his treatments. In addition, Ryan has also suffered an anaphylactic episode and an initial failure of his port device. Because of the high-risk nature of his condition, he is faced with eight months of aggressive treatment, an additional 3 years of continued chemo, and potentially a lifelong battle towards being completely cancer-free.

Now, instead of planning for his senior year of high school and all of the excitement that goes with it, Ryan is left with the challenge of finishing his high school education from home. Instead of being active and social, Ryan is isolated to limited physical interaction. Not only does he need to plan for financing his college education, but now needs help financing his medical treatments.

Every contribution will relieve the family of some of the incidental expenses associated with Ryan's treatments such as transportation costs to and from the clinic and/or the hospital, potential extended hotel stays, meal expenses for the family while away from home, and income assistance due to lost wages.

The time of need is now. Soon, Ryan's parents will be out of work leave and may have to spend significant time without any income. If the family can get the necessary funding needed to reach Ryan's first treatment milestone of 8 months, the family could then better manage his treatment and preserve some normalcy to Ryan's young life.
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Greetings,

I wanted to give you all an update on Ryan's progress since our last update several months ago. Much has happened since then.

As you may know, we were very optimistic about the CAR-T cell treatment especially after Ryan was able to achieve remission within 28 days post-infusion. The goal was for him to have continuous "B cell aplasia" (no B cells in his blood or bone marrow) for at least 6 months. However, at the 3-month post-infusion mark Ryan had a bone marrow biopsy and the doctors found B cells beginning to form. The good news was that the B cells they saw were healthy (non-cancerous) but the doctors had previously explained to us that if his B cells return before the 6-month post-infusion mark, they know he will relapse.

Ryan then received another CAR-T cell infusion in April. Unfortunately, Ryan never achieved "B cell aplasia" after the second infusion which means that he is again losing his CAR-T cells. So far, the B cells appear healthy and non-cancerous but the doctors know that could change at any moment.

With that being said, the most viable treatment option for him at this point would be a bone marrow transplant. We are currently waiting to schedule a consultation meeting with the transplant team of doctors.

Please keep Ryan in your thoughts and prayers as he continues to battle this disease. And as always, we thank you and are grateful for your continued support.

On a positive note, this past weekend Ryan graduated from high school. Watching him walk across the stage was such a joyous occasion for our family!
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Greetings,

I have good news to share with all of you! We recently found out that Ryan is in remission! We are so grateful to the doctors and nurses who have helped and supported us along the way. Ryan will be monitored closely over the next several months and will get another bone marrow biopsy in about 3 months. If all goes well, he will be able to get his port taken out. I know he'll be happy about that.

Also, since the genetically modified T cells eliminate the B cells he has to get immunoglobulin replacement therapy (IVIG) to give him protection against infections. He will most likely need this therapy throughout his lifetime. The estimated annual cost for IVIG therapy is $30,000 per year so your donations will help offset his medical expenses now and going forward.

Thanks to all for your support and prayers.

With appreciation,
Molly
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Season Greetings from the Dellinger Family!

Next week will mark the beginning of a new chapter in Ryan's ongoing cancer battle. He will begin immunotherapy treatment at the Children's Hospital in Philadelphia. His genetically modified T-cells will be infused the day after Christmas and as those cells begin to kill the cancerous B-cells, he will most likely experience the side effects that typically occur with this treatment. We pray that his side effects will be mild and, most of all, that the treatment will put his cancer in remission. He will get another bone marrow test at the end of January which will tell us if his cancer is in remission.

Blessings to you and your families this holiday season! We are grateful for your continued support.
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The Dellinger family would like to thank Lindsay C. VanAsdalan and The York Dispatch for spotlighting Ryan's battle with Leukemia. We continue to be touched by the overwhelming flood of support and love from dear friends and the local community. You will find the article via the link below:
https://www.yorkdispatch.com/story/news/2018/11/08/hellam-twp-teen-high-risk-cancer-gets-second-shot-life/1921650002/
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$4,840 of $50,000 goal

Raised by 67 people in 10 months
Created August 18, 2018
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