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ROC Stop Seizures - We Need a Cure for Epilepsy!

$2,914 of $10,000 goal

Raised by 56 people in 10 months
My husband, Ryan (ROC), was diagnosed with Epilepsy as an adult in about 2011. He has been through everything and back to put an end to his seizures. I knew Ryan when he was diagnosed but did not start dating him or get married to him until several years after his diagnosis. After we got married, we learned so much more about how Epilepsy can impact a person’s life. Every day our marriage only gets stronger as we deal with seizures, medication side effects, loss of Ryan’s driving privileges, searching for a possible cure, medical expenses, and having to explain to our toddler why we can’t go certain places or why daddy is sick. We continue to fight Ryan’s epilepsy as a family.

Every time Ryan has a seizure, it causes him at least a day out of work. Sometimes, he has myclonic jerks indicating a major seizure on the way so he takes a rescue medication to hold off the seizure. However the rescue medication makes him so sleepy that if he has to take it in the morning or middle of a workday, there is more time off of work.

Consequently, Ryan is out of paid time off and losing pay each time he is out of work. My salary on its own is not enough to pay all of our family’s bills and expenses. Money raised is used for:

Medical bills - still determining full amount as Ryan has needed ongoing ER visits and hospitalizations

Medication - $260/month

Housing and utilities - $1500/month

Food and supplements - $400/month

Transportation - $50/month

Lost wages - $1000 and still counting

I am reaching out on behalf of Ryan and our family to ask for your help. Not just help with our immediate needs for day to day expenses but for help with ongoing expenses that could lead to a cure and to allow us to pay it forward to others in the same situation.
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While dealing with medication side effects and being worked up for possible surgery, Ryan/Roc is raising Epilepsy awareness by completing a virtual ride across America.
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Ryan has had GI issues that may or may not be related to the epilepsy. Either way, after a week off of work with no paid time off available to Ryan, another hospital medical bill on the way, a new medication with a $250 copay, and further epilepsy and GI testing and treatment, we are reaching out again for help with donations and spreading the word.
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Ryan is kicking some butt losing weight and trying to get these seizures under control. Losing weight, eating well, and getting rest help but it’s not a cure.
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Some may have noticed already but we have changed the name of this campaign. It didn’t seem right to keep it about transportation when there are other factors involved. Please like and share our new campaign ROC Stop Seizures.

Please also join our Facebook group of the same name where you can learn more about Epilepsy, seizures, and our efforts to stop the seizures. The group can be found at https://www.facebook.com/groups/397794477651908/?ref=share.
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$2,914 of $10,000 goal

Raised by 56 people in 10 months
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BO
$50
Brandon Onstead
2 months ago
CM
$50
Cheryl & Marc Miller
2 months ago
LS
$50
Laura S
2 months ago
DT
$36
Debra Troublemaker
2 months ago
BC
$20
Bette C
2 months ago
CD
$50
Cathleen Dovolis
2 months ago
$250
Martina Slajerova
2 months ago
LR
$18
Lesley Rowland
2 months ago
$50
Anonymous
2 months ago
$50
Frank Priebe
2 months ago
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