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ROC Stop Seizures

$2,708 of $5,000 goal

Raised by 51 people in 8 months
Formerly “Epilepsy Transportation,” this fundraiser is so much more as we now additionally are in need of help to cover medical bills, lost wages, and more. This all started when in October 2018, Ryan had possibly the worst seizure that he has had since his diagnosis of epilepsy in 2011.

Unfortunately, the seizure was so bad that Ryan is unable to drive himself any more.  He is now stuck with car payments, insurance costs, etc for a car that is not being used and can’t be sold because it’s value is half of the loan amount due.

I therefore reached out, on behalf of Ryan and as his wife, for help to raise the money needed to bring down or pay off the loan so that Ryan could sell the car for its true value. This would also help to provide funds for public transportation and relieve some of my burden as primary transportation for the whole family.

After starting the campaign, I realized the need is so much more. First, There were the bills from the emergency 911 visit to the hospital after his October seizure in another state. Then Ryan learned that his type of epilepsy may have been misdiagnosed so he underwent a week long hospitalized monitoring. As the medical bills added up from all of this, the testing was inconclusive. Ryan will have to do the testing again in about a year. All of the testing could show that Ryan is a candidate for brain surgery, which may actually cure the epilepsy.

After the testing was completed, Ryan had the seizure they needed to observe during the testing. In fact he had not just one, but two seizures within a week’s time. One of the seizures resulted in another 911 call and both caused him to miss work without any sick pay available to him.

This fundraiser may have started as Epilepsy Transportation but the help is needed for transportation, medical costs, and hopefully a cure.
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Ryan has had GI issues that may or may not be related to the epilepsy. Either way, after a week off of work with no paid time off available to Ryan, another hospital medical bill on the way, a new medication with a $250 copay, and further epilepsy and GI testing and treatment, we are reaching out again for help with donations and spreading the word.
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Ryan is kicking some butt losing weight and trying to get these seizures under control. Losing weight, eating well, and getting rest help but it’s not a cure.
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Some may have noticed already but we have changed the name of this campaign. It didn’t seem right to keep it about transportation when there are other factors involved. Please like and share our new campaign ROC Stop Seizures.

Please also join our Facebook group of the same name where you can learn more about Epilepsy, seizures, and our efforts to stop the seizures. The group can be found at https://www.facebook.com/groups/397794477651908/?ref=share.
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Ryan was diagnosed seven years ago with Epilepsy. During the seven years he has been to different doctors and been on just about every seizure medication. This month, he started with a new doctor who recognized that the doctors in the past have been diagnosing Ryan with the wrong kind of epilepsy and therefore treating it with the wrong medications. Next month, Ryan will be hospitalized in order to have every test run in the book to be absolutely certain as to the type of epilepsy and the treatment plan required.

We are so hopeful for a better quality of life after the testing but we are still looking at another six months or so before we even know what the test results are and what the panel of doctors recommend as to how to proceed. In the meantime, we are not only facing the car costs, public transportation costs, and all the incidental financial problems but now we also have the added medical costs and stemming financial issues from this week long hospitalization.

Whether or not you have already helped, please join us for Epilepsy Awareness Benefiting Epilepsy Transportation. It is an online fundraiser that we are holding November 16 through November 25th, the last half of Epilepsy Awareness Month.

The event will include trivia to raise epilepsy awareness as well as drawings, a silent auction, and vendors. Please find the event on Facebook and join us. As always, please also feel free to share the event and this link.
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$2,708 of $5,000 goal

Raised by 51 people in 8 months
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CD
$50
Cathleen Dovolis
5 mins ago
$250
Martina Slajerova
19 hours ago
LR
$18
Lesley Rowland
23 hours ago
$50
Anonymous
1 day ago
$50
Frank Priebe
24 days ago
LR
$60
Lesley Rowland
24 days ago
$95
Anonymous
24 days ago
$10
Rae White
1 month ago
$25
Anonymous
3 months ago
CD
$50
Cathleen Dovolis
6 months ago
or
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