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Ride for Roz

$44,080 of $30,000 goal

Raised by 830 people in 15 days
Roz was born a beautiful and healthy little girl in 2010, but it was shortly after her 2nd birthday that she suddenly began to have seizures, intense seizures.  Over the next year and a half, her seizures became increasingly debilitating. Roz failed 5 different seizure medications and went through rigorous epilepsy surgery testing.

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On February 5, 2014, a neurosurgeon placed 120 electrodes directly on Roz’s brain. We soon found out that her entire right hemisphere was constantly seizing and we would need to disconnect it.  A week later, she underwent a 9-hour functional Hemispherectomy.  When she awoke from her surgery it was without the use of her entire left side of her body, she was also now blind in the left half of both her eyes. Roz remained in the hospital for 6 weeks and went through extensive in-patient therapy twice a day.

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It was then that we were told that Roz has an extremely rare condition called Rasmussen Encephalitis and she is 1 of only 500 worldwide ever diagnosed with this devastating and very rare disease.

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Today, Roz is one amazing, strong and determined, 8-year-old little girl, but she still has many struggles. She has surgery induced Cerebral Palsy /Hemiplegia, Hemianopsia, Central and Obstructive Apnea, GERD, bowel issues and some learning delays.

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We are in need of a reliable vehicle for Roz’s medical trips throughout the year. Our current SUV has over 160,000 miles, a nonworking gas gage, constant engine light on, failing heat, and most of all, it does not allow for Roz to be independent.

Roz goes to therapy weekly which, is a two-hour round trip so that she can get the best therapy for her condition. In addition, we travel at least 3 times a year to Cincinnati Children’s Hospital, which is 3 hours round trip. These trips are just for her routine appointments and don’t include any special appointments or tests.

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Roz and our family would love to get a Honda Odyssey van so we can get her safely to her numerous appointments. This van provides safety features such as rear seat viewing cameras so we can keep an eye on her for any signs of distress while we are driving.  It also provides room for her medical stroller that comes with us anywhere we go and lastly we can add adaptive handles and steps that allow Roz to get in and out easily and independently.

Chive Charities has helped us keep Roz safe at home by providing us with much-needed medically related equipment and when they asked if there was anything else their community could assist us with, we humbly requested help purchasing this $30,000 vehicle. This van would take away one more worry for us and help us provide comfort, safety, and independence for Roz.

Thank you, everyone, for your generous support of Roz and our family!

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Roz says that she is SUPER DUPER amazed at how awesome strangers are! She is blown away that people who don’t know us are being so generous. She can’t wait to be like all the other kids getting in a car with ease and not feel people staring at her.

We never dreamed we’d hit this goal and they tell us that Chive Nation doesn’t tend to stop when a goal is hit! If these generous donations continue we wanted to let you know we will finally complete the many home improvement projects we haven’t been able to afford to do that will make our home safer for Roz. We will be fixing our uneven flooring and incomplete trim work in the kitchen as well as installing safety rails on both sides for our front porch steps. We will also purchase a safer pool ladder for Roz for the hot summer days when she wants to take a swim and create a covered outdoor play area for her to enjoy!

Thank you Chive Nation and all the amazing donors! KCCO - Roz and Family
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Roz is so excited to see her goal is getting so close!!! She can’t wait to get an Odyssey so she can get in and out like all her friends!

Thank you so much from Roz & her family
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$44,080 of $30,000 goal

Raised by 830 people in 15 days
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