Maya's Medical Fund

My beautiful daughter, Maya, was born into this world and blessed my life on July 24th  2009. Although i was young at the time i knew the minute i laid eyes on her my entire life had changed and from that point on she was the only thing in my life worth living for. On December 23rd 2009 little did we know our lives would change forever, and my baby girl would begin to fight for her life day after day. After being life flighted to the Childrens Hospital of Atlanta, My beautiful innocent baby girl was diagnosed with Ornithine transcarbamylase deficiency, OTC deficiency is a disorder that attacks the X chromosome in your body. This disorder is usually worse for boys because of having only one X chromosome due to the fact in females the second X chromosome can pick up some of the "slack" and help resist against the disease. The first time Maya was reviewed by the transplant board for the procedure she was deemed "too healthy for transplant," and therefore put on a two year waiting list. During those two years of ups and downs fighting for her life she was hospitalized on three seperate occasions and as such was reconsidered by the Transplant Committee. During the reconsideration of the transplant they deemed her sick enough to be placed onto the transplant list at a "Number 30." In August of 2011, blood work was ordered to be done in order to move her higher up, and as a result of that blood work she was placed as a 1B on the transplant list, one tier below highest priority at 1A!!!!!!! On September 19th 2011, one of the most bittersweet moments of our entire lives had finally arrived. We recieved the call that my baby was finally getting her transplant. Another family had lost their baby boy and selflessly donated his organ so that Maya could have one more chance at life. If the family of that little boy reads this, we would like to say that we are eternally grateful, and cannot thank you, nor God, enough times for giving Maya another chance. Your son lives on through my daughter and we teach her daily to remember and rejoice that.

The money we are requesting comes at another hard crossroads. Maya is now 6 years old (4 years after her transplant) and she has begun to reject her liver transplant. Her medicine costs are outrageous and at the time mine, nor her fathers jobs have the option of healthcare for us. She is on three medications daily right now. 1. Cellcept--921.99 for a 30 day supply. 2. Tacrolimus--1059.19 for a 30 day supply. and 3. Predisolone--26.99 for a 30 day supply. The money will be used for her medications as well as hospital bills, clinical visits, and ONLY other healthcare costs for maya.

We need this money as soon as possible to be able to get her the medicines and clinic visits she so desperately needs. We cannot thank you enough for your time/donations/prayers. We have made it so far and if it takes to my last breath on this Earth i will do everything in my power to make sure my babygirl lives just as long and healthy life or longer than i do. She has a heart of gold and donates her toys and anything else she can to help  other sick children. Going through this situation has made her one of the most special little girls ive ever met in my life and her purpose has yet to be met. She has lives to change, and your donation will see to it that she is able to be around long enough to change those lives.

THANK YOU ALL SO MUCH FOR YOU TIME. PLEASE DONATE, OR JUST SAY A PRAYER AND LEAVE A COMMENT. EVERYTHING HELPS!!!!!