148
148
6

Help Lauren Fight Lyme Disease

$52,912 of $135,000 goal

Raised by 151 people in 13 months
About me - My name is Lauren and I'm 35 years old. I have Late Stage Neurological Lyme Disease and need to raise $135,000 to receive advanced treatments in Germany and California, and pay for several medical devices to facilitate detoxification, as soon as possible. Without treatment, my condition will continue to worsen, and I don't know how much more I've got left in me.

The treatment and how funds will be used - The funds from this campaign will initially be used for a 3 Week Intensive Treatment at a German clinic that's had outstanding success treating patients like me with Late Stage Lyme Disease. It will also pay for advanced treatment in California, plus several medical devices to facilitate detoxification. The Lyme Disease treatments in Germany include:
- Systemic Whole-Body Hyperthermia
- Detoxification Program
- Initial and Final Lab Controls
- Dark field blood analysis
- VCS (visual contrast sensitivity test)
- CRS (cell regulation screening)
- Infusions with Vitamin C, chelation,     selenium, glutathione  procaine and/or antibiotics
- Ozone Therapy
- Singulet Oxygen Therapy
- Magnetic Field Treatment
- Laser Therapy
- Colon cleansing
- Plasmapharesis 

Germany Treatments (First Goal) - $40,000
Germany Round 2 - $20,000
Germany Round 3 - $20,000
California Treatments - $30,000
Detoxification Devices - $25,000

My Full Story

It all started in September 2012.

I had a night of horrific heart burn, chest pain, and nausea. I thought I was having a heart attack.

My husband was out of town. So, I toughed it out like I've learned to do hundreds of times since then. I didn't sleep that night and it never really went away, it became the most severe flu I've ever had. But, it was different than the flu...that's the only way I can describe it.

For the next 8-9 months I was able to function somewhat. I was an elementary school teacher and I would call in sick when I definitely couldn't make it. Most of the time though, I would push through.

I remember during that time the severity would kind of come and go, and that "worst flu" turned into constant symptoms of severe fatigue and weakness with a flu-like toxic feeling.

I didn't go to the doctor until June 2013. I guess I was hoping that it would get better and just go away.

Finally summer came, and I was excited to see what the doctor would do to "fix me up".

I learned it's not that easy... I became pretty much homebound and often in bed. I only left the house to go to the grocery store and sometimes family functions.

I cried pretty much every day that summer because I had never faced something like this, and I didn't know what to do. My husband kept telling me I have to be strong and do whatever it takes to find an answer.

After a couple of months, that really clicked, and I haven't looked back since.

I started researching and trying to find anyone with similar issues and what they did to get better. I did every cleanse, diet, and protocol I could find.

I committed myself 100% to everything I've done. Along with what I was doing at home, I was seeing Western doctors, and I also sought out help from Chinese homeopathic, Naturopathic doctors, Functional Medicine, and on and on.

I've seen about 20 doctors over the last 5 years.

In August 2013, I went back for the school year and was really sick, but again thought I could push through.

Finally, a test came back abnormal in September 2013. (What's funny through a health battle is you get excited over an abnormal test because it's an answer.)

I had Median Arcuate Ligament Syndrome (MALS), which meant ligaments were really compressing my celiac artery and not allowing blood flow, which can cause lots of digestive issues.

Around the same time the ER visits started, and it got to the point where I had to take a leave of absence, which led to me ultimately quit my job a few months later.

So, I put all my eggs in this basket, and had the MALS surgery in November 2013.

The end result...

Nothing. No improvements at all.

Next, I had an Angioplasty and still nothing. The surgeon gave up on me, and I continued to see other doctors and have more tests.

Months and years went by trying anything and everything I could to get any answers or any relief.

There has not been one day, one moment, where I have not felt very ill in the past 5.5 years. I didn’t like talking about it then and I still don't, but I have realized people cannot understand unless you tell them.

I really do not want anyone to feel sorry for me, I just want to be a normal healthy person who can do simple things like go out to dinner, go to the movies, be active, be social, drive, get my haircut, etc.

Symptoms continued to pile on over the next few years. I seriously thought I couldn’t get any worse, and I was seriously wrong because it seems the last two years I have reached depths that I truly did not know existed.

Sometimes I wonder how my body can endure so much and how I’m still alive.

Finally, I kept hearing about Lyme Disease, and I kept looking at the symptoms, but I wasn’t sure if I fit that illness (now I know it affects everyone differently and there are over 100 possible symptoms).

In my research, I also realized that it was something I definitely did not want because I had read many stories of how difficult it is to treat, especially the longer you have it.

So, after 3.5 years of chronic debilitating illness, I sought out a Lyme Literate doctor.

I got the tests and in February 2016, I finally had my diagnosis - Late Stage Neurological Lyme Disease (these bacteria have greatly been attacking my central and peripheral nervous systems along with many other systems in my body).

I knew it was too late for antibiotics because they only help in the first month after a tick bite. I had researched and learned about strong herbal antimicrobials and I jumped in with that.

Almost immediately, it was as if I was waking up the bacteria and pathogens in my body and I probably was.

One night I would have searing pain down my spine, the next I would have burning pain in my legs and thousands of pins, the next the inner core of my body would be throbbing in pain.

It all happened really fast, the pain came crashing down. I went from someone who was sick with pain, to someone who was in incredible pain and was sick.

The symptoms became even more severe...

The worst flu-like/toxic/poisoned feeling, persistant nausea/rancid feeling in stomach, GI issues, food allergies, nutrient deficiencies, stomach pain/tenderness, loss of appetite, excessive thirst, heart palpitations/ flutters, weakness/dizziness- sometimes difficult to sit up or lift my arms, severe fatigue - like a force pushing me down, chest pain, severe head pain, neck pain, back pain, pain under my ribs, pelvic pain, liver pain, adrenal/kidney pain, severe nerve pain everywhere - (sometimes feels like nerves are eating me alive under my skin, every night and all night it feels like I’m burning alive, millions of needles under my skin, clawing under my skin, widespread pain and throbbing), electricity running up and down my body, electricity zapping me, buzzing/vibrating in my head, my core and under my skin, shortness of breath/air hunger, insomnia, fractured sleep, nightmares, bolting up from a deep sleep gasping for air, the air getting sucked out of my lungs and gasping for air as I’m awake laying in bed, waves of feeling like I’ll pass out all day long, constant lightheadedness, brain fog, difficulty thinking, cognitive issues, racing mind, depression/anxiety - which is caused by an overactive electrical system, limited mobility, pain in my bones- especially back bones, spine and shoulders, joint pain, creaky joints, jaw pain, tooth pain, facial pain, sore throats, sensitivity to sound and touch, skin crawling feeling, feels like bugs walking under my skin, sensitivity to visual motion, hyper sensitivity to EMFs, severe muscle pain, life feeling surreal or dream-like, depersonalization, “fight or flight mode”, suicidal thoughts, disoriented, crushing head pain, seizures/tremors/convulsions.

Literally there is not one part of my body that does not have pain, except the tip of my nose. Many of these are constant, some come and go throughout the day, some are every night; it’s always the worst at night.

The biggest problem and what is most terrifying for me is the Herxeimer/herxing/die-off reactions. If living with Lyme feels like death, than herxing feels like murder.

What happens is my system gets completely overloaded with the toxic die-off of the bacteria. The toxic die-off causes an extreme inflammation response within my whole body.

It causes all symptoms to be a 14/10, has caused many hospital visits, constant tremors and seizures of my body lasting 20 hours long and not sleeping for days at a time.

The excruciating pain and vertigo make me feel like I leave my body because the pain is so extreme everywhere.

Herxing reactions can cause septic shock and death. There is no other time I feel closer to death than when my body is seizuring in pain.

In November and December 2016 things really reached a new low. I was living in a constant herx.

I would cry every day to my husband that I just wanted to die... but what I really want more than anything is to live.

I would cry because I just could not be ME, this disease truly has destroyed my life.

Without your health, you and I have nothing.

Over the last year, we've tried dozens of protocols and treatments. However, my symptoms continue to worsen.

I have absolutely no memory of what it feels like to be healthy, and you never ever get used to this, it’s impossible.

This is just a glimpse, just a little description of what life has and continues to be like. It’s much worse than anything I could ever describe.

You have to live it to know it - day after day, month after month, year after year. It’s like being a prisoner in your own body.

Honestly, I feel extremely uncomfortable asking for money, but with these funds I will be able to get treatment in a German clinic that's had outstanding success treating patients like me with Late Stage Lyme Disease.

Unfortunately, insurance doesn't cover any of these treatments.

So every donation however small is a tremendous help!

All funds raised go towards my urgent medical treatment.

I need to raise $135,000 for this first clinic (advanced treatments in Germany), 2 more rounds of treatment in Germany,
a clinic in California to repair the damage, and several devices to facilitate detoxification (to help with herxing), as soon as possible.

Thank you for reading my story and for your help.

Lauren
+ Read More
We spent almost a full month in Germany for Lauren's first round of treatment. We stayed at the hospital and had around the clock care from doctors and nurses. They also had great food. It was such a huge relief to be so well taken care of!

Lauren had a full schedule of therapies and treatments. Some were relaxing and others were brutal. The main treatment was 2 whole body hyperthermia where she was put to sleep and her temperature very carefully raised to 107 degrees ( this kills all of the lyme). It was done safely in an intensive care unit facility.

The actual treatment is simple. It's after the treatment, the herxing (die off) of lyme bacteria, viruses, and other pathogens that is so extremely difficult. Lauren was very sick and in bed most of the time in Germany, but I was able to wheel her around town once, which was really nice.

When we returned home in early March, nothing could have prepared us for what happened. Lauren endured weeks which turned into a few months of terrible herxing. It was much worse than we were expecting. The first few weeks, we were concerned she could go into toxic shock. We stayed in close contact with Germany and her doctor at home.

We made it through that difficult time, but Lauren wasn't improving. It became clear that we would need to return to Germany for more treatment, specifically a blood cleansing called plasmapheresis to help her body detox.

So, in early June we returned to Germany for three more plasmapheresis (whole body blood cleansing) treatments. They also ordered an extensive list of tests to see what else could be making her still so sick and in terrible pain.

Each treatment filters her blood completely two times. Blood is taken from one arm, passed through a machine that separates the plasma from the red and white cells, then the plasma is filtered to get out all the toxins, etc. And the blood filters back in through the other arm. After every treatment, a bag of brown or orange gunk is taken from the body.

After, these treatments, Lauren is sleeping better and has an appetite again. Signs that her immune system is working. Any other improvements may be seen over the next few weeks.

Also, a couple tests came back while we were there. We now know that Lauren has mercury toxicity. The doctor said that her cells are loaded with mercury and very low in nutrients.

Another test showed that her kidneys are full of toxins, which is from trying to filter out so much the last few years.

Having heavy metal toxicity is common with Lyme disease because the metals give a good home to the lyme bacteria. This result came as a surprise though, because she had a past test show no metals.

It was this specific test in Germany that tested the red blood cells, which finally gave us another answer and direction to pursue. The doctor strongly feels the mercury is what's causing her to be so ill.

So onward and upward. We are happy to have more answers. We are still waiting on more test results. Lauren is on a three month protocol to help rid her of the mercury and to get nutrients into her cells.

The doctor recommends that she come back to Germany in a few months for one more round of treatments. So, we are planning on one more round in September.

Then, once that's finished, we are planning to do treatment to restore the damage done from the Lyme to her nerves, muscles, organs, etc.

Even though it's difficult and often slow moving, we are hopeful that we're moving in the right direction. We keep moving forward with God leading the way.

Again, we are SO very thankful to all of you for your donations, support, and continued prayer through this journey!!

As long as there is breath in our lungs and our hearts are beating, we keep fighting for that day of restored health!!
+ Read More
We're Germany bound!!

Getting to the plane was took some time and patience but we're here and so excited (and nervous) to get started with treatment.

We're so incredible thankful for everyone's support and how quickly this came together - all because of you.
+ Read More
We are SO incredibly grateful and humbled by the outpouring of support from everyone!! Thank you all very much for your generous donations, prayers, and kind words of encouragement. So many donations from family, friends, and strangers, and we greatly appreciate every one big and small. Several very high donations have led to us unexpectedly surpassing our first goal within two weeks!! Your kindness truly means the world to us!!

Currently, Lauren is still very ill, weak, and in constant agonizing pain. She is having more frequent and severe seizure/ tremor episodes every night. Thankfully, we have found a wonderful and very smart Dr. that specializes in Lyme disease. She is helping with medication until we are able to get to the clinic, and she is a great doctor for long-term care.

The doctor in Germany has reviewed all of Lauren's information and has approved her for treatment. With her condition and seizures, he is recommending the longer 3 week treatment program. Thankfully, we were able to schedule treatment for mid-February. So, we are making it from one day to the next, sometimes one moment to the next until we are there. The treatment program is very intense, but they are used to helping the most severe cases, so we know she is in good hands. At this point, we are excited, a little nervous, and praying for a miraculous recovery. I will continue to keep everyone updated. Thank you all!!


+ Read More
Read a Previous Update

$52,912 of $135,000 goal

Raised by 151 people in 13 months
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
LC
$25
lindsay carpenter
7 months ago
KF
$200
Kamba Family
7 months ago
JS
$100
Jeanine Stiles
7 months ago
WH
$100
Wayne Heim
7 months ago
DH
$300
David Hakes
7 months ago
DH
$100
Denise Haller
11 months ago
LK
$100
Lynette Kosloskus
11 months ago
KH
$100
Kerri Hannan
11 months ago
JK
$100
Jonathon Kamba
12 months ago
BN
$200
Brad Noyes
12 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.