Support for Willow Mae's disease

my daughter Willow was rushed to CHKD by ambulance due to a swollen& hard belly. After many tests, X-rays, catscans, echoes, and labs they found hemangiomas and tumors in her liver. It is about twice the size of a normal liver. This disease is called infantile hepatic hemangioendothelioma. This disease is extremely rare and there is only about 23 cases in the entire country. With this disease being as rare as it is and chkd never seeing this before in their hospital we were again transported again by ambulance to Washington DC for her to stay in their hospital and have specialists try to fix this for her. Her daddy won't be able to join us in Washington due to working trying to pay all of our bills. With now on top of that medical Bills. We have found out willow has to get a liver transplant & I was recently tested to be her living donor & approved to do so as well. Never in my life did I think I would be going through this. And also we are so young and not prepared financially whatsoever. Any help would mean the absolute world to my family.  We will be in DC for a couple months after transplant as well and it's going to be extremely hard for us. My sweet little baby has been so strong and brave through this process and I know she will continue to be. Just please pray for her. She needs it & so do I.
 Thank you all for all your support, prayers, and concern. It's more than appreciated.