Mac's Funds for Cancer Treatment

$80,673 of $100,000 goal

Raised by 1,128 people in 35 months
March 2015 marks a month in Mackenzie "Mac" DeClue’s life where everything was turned upside down.  The 29-year-old experienced a seizure that led to the eventual diagnosis of Grade IV Glioblastoma Multiforme (GBM) brain cancer, a particularly aggressive form of this disease.  Suddenly, Mac, who’d been healthy his entire life,  faced a new reality.  Family and friends from his current residence of Boston, MA and his hometown of Columbus, IN rushed to his side. Surgery successfully removed two tumors, however, Mac’s fight will continue as he begins treatment at the renowned Dana-Farber Cancer Institute in Boston, MA.

Even with a terrifying diagnosis and a future with many uncertainties and battles ahead, Mac’s wit, humor and intelligence continue to inspire and brighten the lives of those around him.  He is an MBA student and employee at Northeastern University and strives to continue the pursuit of his MBA while remaining positive and faithful in what the future holds.  He is truly an inspiration to his family and friends.

Everyone has been touched by cancer to some degree, and even as Mac's family has experienced the ever-intrusive grip of this disease before, here it invades again.  As it takes a village to raise a child, it takes a village to fight cancer.  Mac and his family can use any and all support as they embark on this long, difficult journey. Donations will afford Mac the best possible medical treatment at Dana-Farber, as well as relief in the stress of travel accommodations for his immediate family in Indiana as they make every effort to be by his side throughout this process.  All donations received go directly toward Mac’s care and supportive network.
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Hello everyone,

I apologize for not providing an update in quite some time. This past year has been quite the grind. I figured now was appropriate since it’s the holiday season and I try to provide an update at least once a year.

This past May 3rd, an MRI revealed that I was having a tumor recession and therefore required a tumor resection to remove this new growth. The following months had proved to be a bit of a smooth patch for me while I was able to recover and exercise and started to feel as normal as I had in months.

However, on 9/26/17, I started to experience some weakness and numbness on my left side (hand, forearm, shoulder). My coordination and balance were severely affected, as well. I found myself dropping things, unable to tie my shoes, put my pants on, etc.Less than a week later I started to feel some sharp and lingering headaches that eventually lead to me vomiting and having to go into the ED and get admitted overnight. They did a CT scan and MRI and we met the next morning for them to tell me that they thought I it would be best to do surgery on 9/29/17 to drain a bunch of fluid that had built up in the cavity of my brain where the tumor was removed. The fluid was creating pressure on the wall of my brain and resulting in the symptoms I described. This surgery was the previous MRI hsd also revealed some new tumor tissue so this surgery was not only to drain fluid. it was another tumor resection, as well.

Recovery from surgery went pretty well until on 10/9/17 I experienced the same headaches and vomiting and had to go into the ED again. This time, a surgery was done on 10/11/17 to insert an Ommaya catheter reservoir into my brain that would allow them to stick a needle through my skull to thendrain any fluid that was building up. This was surprisingly a painless procedure.I continued to have this procedure done three more times with the fluid eventually returning and building up each time. This would also result in my left side symptoms returning, so it was eventually decided that on 11/9/17 I would have another surgery to have a shunt placed to drain the fluid from my brain into my abdomen. I essentially have a tube running from my brain down the right side of my neck into my abdomen. The fluid is naturally absorbed and does not make me feel sick or have any negative impact on me.

It’s worth noting that with all of the procedures and surgeries I mentioned, the pathology reports showed they contained cancerous cells.

Leading up up to all of that, I was on a clinical trial taking keytruda. Since that seems to have been ineffective, I have started two new forms of chemo therapy that has started to have some positive effects so far in terms of reduced brain swelling . One is CCNU and the other is Avastin. Avastin I am taking through an IV while CCNU is through pill form. So far, I have reacted well to treatment in terms of side effects, which are relatively rare if they do happen to occur.

Despite the bumps along the way, I continue to feel pretty good both health-wise and in spirits. The holidays always help with that - more food and drinking, that is.

Despite this being a particularly rough stretch, there are some positives that have come way, as well. Again, things could always be worse. That much has become abundantly clear these past few months. Make sure to appreciate everything and everyone you have. It’s a cliché idea and thought, but it’s something I appreciate more and more these days.

I hope everyone has a great holiday coming up and enjoys their time at home with loved ones or whatever you might be doing. Please continue to send prayers, good energy and love my way and I’ll be sure to return the favor

With love and happy holidays,

Mac
+ Read More
Hello everyone,

I apologize for not providing an update in quite some time. This past year has been quite the grind. I figured now was appropriate since it’s the holiday season and I try to provide an update at least once a year.

This past May 3rd, an MRI revealed that I was having a tumor recession and therefore required a tumor resection to remove this new growth. The following months proved to be a bit of a smooth patch for me. I was able to recover and exercise and started to feel as normal as I had in months.

However, on 9/26/17, I started to experience some weakness and numbness on my left side (hand, forearm, shoulder). My coordination and balance were severely affected, as well. I found myself dropping things, unable to tie my shoes, put my pants on, etc.Less than a week later I started to feel some sharp and lingering headaches that eventually lead to me vomiting and having to go into the ED and get admitted overnight. They did a CT scan and MRI and we met the next morning for them to tell me that they thought I it would be best to do surgery on 9/29/17 to drain a bunch of fluid that had built up in the cavity of my brain where the tumor was removed. The fluid was creating pressure on the wall of my brain and resulting in the symptoms I described. This surgery was the previous MRI hsd also revealed some new tumor tissue so this surgery was not only to drain fluid. it was another tumor resection, as well.

Recovery from surgery went pretty well until on 10/9/17 I experienced the same headaches and vomiting and had to go into the ED again. This time, a surgery was done on 10/11/17 to insert an Ommaya catheter reservoir into my brain that would allow them to stick a needle through my skull to thendrain any fluid that was building up. This was surprisingly a painless procedure.I continued to have this procedure done three more times with the fluid eventually returning and building up each time. This would also result in my left side symptoms returning, so it was eventually decided that on 11/9/17 I would have another surgery to have a shunt placed to drain the fluid from my brain into my abdomen. I essentially have a tube running from my brain down the right side of my neck into my abdomen. The fluid is naturally absorbed and does not make me feel sick or have any negative impact on me.

It’s worth noting that with all of the procedures and surgeries I mentioned, the pathology reports showed they contained cancerous cells.

Leading up up to all of that, I was on a clinical trial taking keytruda. Since that seems to have been ineffective, I have started two new forms of chemo therapy that has started to have some positive effects so far in terms of reduced brain swelling . One is CCNU and the other is Avastin. Avastin I am taking through an IV while CCNU is through pill form. So far, I have reacted well to treatment in terms of side effects, which are relatively rare if they do happen to occur.

Despite the bumps along the way, I continue to feel pretty good both health-wise and in spirits. The holidays always help with that - more food and drinking, that is.

Despite this being a particularly rough stretch, there are some positives that have come way, as well. Again, things could always be worse. That much has become abundantly clear these past few months. Make sure to appreciate everything and everyone you have. It’s a cliché idea and thought, but it’s something I appreciate more and more these days.

I hope everyone has a great holiday coming up and enjoys their time at home with loved ones or whatever you might be doing. Please continue to send prayers, good energy and love my way and I’ll be sure to return the favor

With love and happy holidays,

Mac
+ Read More
Hello everyone,

I apologize for not providing an update in quite some time. This past year has been quite the grind. I figured now was appropriate since it’s the holiday season and I try to provide an update at least once a year.

This past May 3rd, an MRI revealed that I was having a tumor recession and therefore required a tumor resection to remove this new growth. The following months proved to be a bit of a smooth patch for me. I was able to recover and exercise and started to feel as normal as I had in months.

However, on 9/26/17, I started to experience some weakness and numbness on my left side (hand, forearm, shoulder). My coordination and balance were severely affected, as well. I found myself dropping things, unable to tie my shoes, put my pants on, etc.Less than a week later I started to feel some sharp and lingering headaches that eventually lead to me vomiting and having to go into the ED and get admitted overnight. They did a CT scan and MRI and we met the next morning for them to tell me that they thought I it would be best to do surgery on 9/29/17 to drain a bunch of fluid that had built up in the cavity of my brain where the tumor was removed. The fluid was creating pressure on the wall of my brain and resulting in the symptoms I described. This surgery was the previous MRI hsd also revealed some new tumor tissue so this surgery was not only to drain fluid. it was another tumor resection, as well.

Recovery from surgery went pretty well until on 10/9/17 I experienced the same headaches and vomiting and had to go into the ED again. This time, a surgery was done on 10/11/17 to insert an Ommaya catheter reservoir into my brain that would allow them to stick a needle through my skull to thendrain any fluid that was building up. This was surprisingly a painless procedure.I continued to have this procedure done three more times with the fluid eventually returning and building up each time. This would also result in my left side symptoms returning, so it was eventually decided that on 11/9/17 I would have another surgery to have a shunt placed to drain the fluid from my brain into my abdomen. I essentially have a tube running from my brain down the right side of my neck into my abdomen. The fluid is naturally absorbed and does not make me feel sick or have any negative impact on me.

It’s worth noting that with all of the procedures and surgeries I mentioned, the pathology reports showed they contained cancerous cells.

Leading up up to all of that, I was on a clinical trial taking keytruda. Since that seems to have been ineffective, I have started two new forms of chemo therapy that has started to have some positive effects so far in terms of reduced brain swelling . One is CCNU and the other is Avastin. Avastin I am taking through an IV while CCNU is through pill form. So far, I have reacted well to treatment in terms of side effects, which are relatively rare if they do happen to occur.

Despite the bumps along the way, I continue to feel pretty good both health-wise and in spirits. The holidays always help with that - more food and drinking, that is.

Despite this being a particularly rough stretch, there are some positives that have come way, as well. Again, things could always be worse. That much has become abundantly clear these past few months. Make sure to appreciate everything and everyone you have. It’s a cliché idea and thought, but it’s something I appreciate more and more these days.

I hope everyone has a great holiday coming up and enjoys their time at home with loved ones or whatever you might be doing. Please continue to send prayers, good energy and love my way and I’ll be sure to return the favor

With love and happy holidays,

Mac
+ Read More
Hi everyone,

It has been almost exactly one year since I created this fundraising page. When I was presented with the idea to create this page, I thought I'd be lucky to raise a few thousand dollars to help out with everything, but my expectations were off by a mile. The generosity and overall response was hard to wrap my head around.

A year later, I continue to battle brain cancer (GBM) through the help of my team at Dana-Farber. I have MRI's once a month and meet with my team to discuss the results. I am still on various medications, but definitely fewer than I was a year ago.

While there is no new cancer growth, I have had blood pooling in the cavity where the tumor was removed. This is not that unusual, but it is a concern and is only healed through rest and not overexerting myself. Eventually, the blood will reabsorb into my brain, but that will take some time. It's a setback but will eventually right itself.

Looking back a year from now, it's easy to see the steps I've taken towards getting better, but there is still a long way to go and that timetable is a complete mystery to me. I wish I could say that it will be smooth and that I'll gradually get better over time, but as I was told from the beginning, this is not going to be easy and there is a long road ahead of you.

This has by far been the hardest year of my life, but I have to agree with what I've heard many other cancer patients say: "cancer makes you a better person." I hate this disease, but I can see how it puts things in perspective and helps you grow as an individual.

I want to thank all of you for the support you've shown me this past year, and thank you for any additional support you can provide.

Thanks again,

Mac

P.S. I have hair again.
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Read a Previous Update
Courtenay Pedersen
35 months ago
1
1

My mom had/has the same cancer as you as well as stage 4. The treatment she received was radiation that didn't make the tumour shrink or grow. She has been using a treatment called avastin. Every two weeks she has has taken this treatment for the past year. Her tumour has decreased in size by 94% . She surrounds herself with positive people and positive thinking and we like to think its a huge attribute to her recovery. If this isn't the treatment you are using it's something to look into. It have my family a miracle. Wishing you nothing but the best xo

+ Read More
Nerissa Dowling
21 months ago

This place in India is meant to be absolutely amazing https://www.hcgoncology.com and if you are spiritually inclined at all you could have a session with a good medical intuitive. They can tune into what's going on psychically. Wishing you full recovery. ♥

+ Read More
Jenny Williams
35 months ago

Mac, I don't know you but I saw on 60 minutes people who are willing to have the polio virus injected in to their tumor and many are surviving, but only those getting the smallest amounts. It is truly amazing!! This is progress in the cancer treatment field at Duke University. You can find all of the information here and it may save your life! http://www.cbsnews.com/news/polio-cancer-treatment-duke-university-60-minutes-scott-pelley/

+ Read More
Nicole Da Silva Joana
35 months ago

I just want to say that you're strong and you're going to win this war;) stay strong!!! Much love from Portugal

+ Read More
Davie Williams
35 months ago

very sad to hear your story my friend you'll definetly be in my prayers.

+ Read More
Ruth Recker
35 months ago

While I do not know this young man, my heart goes out to he and his family. It's a horrible illness and my prayers go out to him.

+ Read More

$80,673 of $100,000 goal

Raised by 1,128 people in 35 months
Created March 26, 2015
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Courtenay Pedersen
35 months ago
1
1

My mom had/has the same cancer as you as well as stage 4. The treatment she received was radiation that didn't make the tumour shrink or grow. She has been using a treatment called avastin. Every two weeks she has has taken this treatment for the past year. Her tumour has decreased in size by 94% . She surrounds herself with positive people and positive thinking and we like to think its a huge attribute to her recovery. If this isn't the treatment you are using it's something to look into. It have my family a miracle. Wishing you nothing but the best xo

+ Read More
Nerissa Dowling
21 months ago

This place in India is meant to be absolutely amazing https://www.hcgoncology.com and if you are spiritually inclined at all you could have a session with a good medical intuitive. They can tune into what's going on psychically. Wishing you full recovery. ♥

+ Read More
Jenny Williams
35 months ago

Mac, I don't know you but I saw on 60 minutes people who are willing to have the polio virus injected in to their tumor and many are surviving, but only those getting the smallest amounts. It is truly amazing!! This is progress in the cancer treatment field at Duke University. You can find all of the information here and it may save your life! http://www.cbsnews.com/news/polio-cancer-treatment-duke-university-60-minutes-scott-pelley/

+ Read More
Nicole Da Silva Joana
35 months ago

I just want to say that you're strong and you're going to win this war;) stay strong!!! Much love from Portugal

+ Read More
Davie Williams
35 months ago

very sad to hear your story my friend you'll definetly be in my prayers.

+ Read More
Ruth Recker
35 months ago

While I do not know this young man, my heart goes out to he and his family. It's a horrible illness and my prayers go out to him.

+ Read More
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