Praying for a Normal life (no more pain)
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(A little history) 4 years ago, I was diagnosed with a very rare facial nerves’ disease called Trigeminal Neuralgia (TN). TN is said to be the worst pain known to mankind and it is also called the suicide disease. My TN started out mild and was controlled with medicines like Gabapentin and Carbamazepine. Little over a year ago the meds stop working as they should. My Neurologist added a new medicine name Lamotrigine and remove the Gabapentin. She also increases the strength of the carbamazepine from 200mg 3 times a day to 400mg, 3 times a day and the lamotrigine started at 200mg 2 time a day. After months on not responding to the meds, she increases the lamotrigine to 400mg 2 times a day. These meds made me dizzy, nauseous and sometimes even passing out. By this time, I was taking 800mg of Lamotrigine, 1200 mg of carbamazepine and not to mention my blood pressure 150mg and diabetes meds 500mg, a total of 2,650mg or meds every day.
In November 2018 the pain got worse by the day and by early December 2018 I went to the urgent care twice regarding this condition. On December 22, 2018, I was rushed to the emergency room by the fire rescue, at this point, I could not eat or drink or open my mouth to talk, the pain was so severe. I had lost 10lbs in one week of torture by pain. On December 24, I beg the doctor to release me so that I could go home and spend Christmas with my family because the only thing that they gave me was morphine to make me sleep. On February 18, 2019, I had brain surgery to fix the problem. The surgery was to lessor the root of the nerve and this should “fix” the issue. I went into the surgery room with one problem and came out with two. When I came out of surgery, I had Bell’s palsy and my Trigeminal Neuralgia was still there. (Bell's Palsy is a condition where one side of the face hangs lower than the other, one eye appears larger, your mouth is lean to one side, no movement whatsoever on that side of the face. This affects you eating, smiling, talking, etc.)
At this point, I am trying every option known to man to get some relief from this dreadful illness. There is an option for some neurologist to inject Botox into the nerve to restrict the nerve for overreacting. These neurologists, however, do not accept Medicaid and to pay out of pock is a large amount, which I can not afford to pay. Did I mention that I was out of work for 2 months and when I went back to work it is only part-time which is only 16 hrs. per week? I had applied for short-term disability but was denied. I am a single mother with a car note, a mortgage, utilities and so one. This is only the short end of my story. My pride would not allow me to ask, because I was thought to figure it out, but I have exhausted all my options and have no other choice but to ask for your help, so that I may sleep, talk, brush my teeth and even eat a proper meal.. this is an urgent matter and I needed to try this new option like last year, so please assist as soon as possible. Thank you and God blessed you.
In November 2018 the pain got worse by the day and by early December 2018 I went to the urgent care twice regarding this condition. On December 22, 2018, I was rushed to the emergency room by the fire rescue, at this point, I could not eat or drink or open my mouth to talk, the pain was so severe. I had lost 10lbs in one week of torture by pain. On December 24, I beg the doctor to release me so that I could go home and spend Christmas with my family because the only thing that they gave me was morphine to make me sleep. On February 18, 2019, I had brain surgery to fix the problem. The surgery was to lessor the root of the nerve and this should “fix” the issue. I went into the surgery room with one problem and came out with two. When I came out of surgery, I had Bell’s palsy and my Trigeminal Neuralgia was still there. (Bell's Palsy is a condition where one side of the face hangs lower than the other, one eye appears larger, your mouth is lean to one side, no movement whatsoever on that side of the face. This affects you eating, smiling, talking, etc.)
At this point, I am trying every option known to man to get some relief from this dreadful illness. There is an option for some neurologist to inject Botox into the nerve to restrict the nerve for overreacting. These neurologists, however, do not accept Medicaid and to pay out of pock is a large amount, which I can not afford to pay. Did I mention that I was out of work for 2 months and when I went back to work it is only part-time which is only 16 hrs. per week? I had applied for short-term disability but was denied. I am a single mother with a car note, a mortgage, utilities and so one. This is only the short end of my story. My pride would not allow me to ask, because I was thought to figure it out, but I have exhausted all my options and have no other choice but to ask for your help, so that I may sleep, talk, brush my teeth and even eat a proper meal.. this is an urgent matter and I needed to try this new option like last year, so please assist as soon as possible. Thank you and God blessed you.
Organizer
Judene Green
Organizer
Hollywood, FL
