Prayers for Addie Goose
Her parents are with her and doing all that they can while dealing with so much fear and anxiety. They said: "Watching her go through this is a parents' worst fear, a fear that can be overwhelming and heartbreaking. BUT...What we do know is that we have an amazing daughter. She is a fighter. She is strong, fiesty, determined, smart, beautiful, and very very special. We have seen glimpses of that special Goose when she's fiestily tried to rip out her trach or when she wiggled her pretty pink toe nails that match mommy's. We do know that there is a plan for her and that Heavenly Father loves her even more than we do. We'll continue to pray that with His help, she will find the courage and strength to battle back. Keep praying for her. She needs every one!!"
This amazing family needs our help. Addie is the oldest of three and is only 5 years old. This accident is devastating, and the last thing this family needs is to worry about how to pay for it all. We will post updates as we get them, you can also see them on the facebook page "Prayers for Addie Goose."
Please donate and share this with your friends and family. Thank you for your prayers, love, concern, and anything you can give to aid this family in their time of need.
This money is going to her parents Jonathan Randall and Alyssa Randall to help with her hospital bills and road to recovery.
Today was our second to last day at PCH and things are just awesome. Addie did fabulous at swallow therapy and they think she may be ready for 3/4 honey thickness on all liquids. Another tiny successful step forward. We had to say goodbye to our speech therapist, Miranda, today. I loved how good she was Addie, both with listening to her and with motivating her. I also feel like we became good friends and I'm super sad that she can't be our outpatient therapist too.
Addie also finished her neuropsych testing today. We'll review the results with the Dr in two weeks and no, she can't give me any idea which way things are leaning (yes, I asked), lol. When I came in at the end of the test, Dr Freeman looked up at me with this astonished look and held up a mini glider plane and said, "Um, she just built this with no instructions. I have ten year olds who can't do this!" Lol, they're doing a good job of boosting up my mom pride these days. She's not only a miracle, but a smart one too.
We also said goodbye to our school teacher, Mrs. Horton. Addie just loved school here and I know she's anxious to get back to her real school!
Addie didn't have OT or PT today because we got to go to the Phoenix Children's Museum for a couple hours. It was a blast. It felt like Addie was just a normal kid again, not one with a traumatic brain injury. She was very careful and smart with her body and her new limits, but she also pushed some boundaries and I was so impressed with how well she did. She acted just like she would have a couple months ago with less running and jumping but just as much eagerness to explore. In the center of this museum there is a giant climbing structure three stories tall. From the beginning, I said no way. But she was doing so great and had mastered everything else, so we did it and she climbed to the top of the three stories with no problems whatsoever (whereas my glutes are already sore from the climbing and bending we did). AND...she didn't limp all afternoon. She was wearing some different boots and we think that provided some extra support and cushion. She exclaimed a couple times, "Mom! My foot doesn't hurt!" I do have videos to post but they won't load while I'm in the hospital so I'll post them tomorrow!
But most importantly, tonight is the last night we have to sleep in a hospital separated from the rest of our family. Tomorrow is the day!!!!!!!
Awesome day today!! Addie is doing awesome with the swallow therapy and is graduating to milk on 3/4 honey thickness tomorrow instead of full honey. A week ago, she would have aspirated that! And today, Addie told her teacher, "My favorite therapy is swallow because it helps me get healthy." It's her only therapy with pain but I love her perspective that swallow is the best because it is helping her get better in the most important way right now. She seems to understand so well that her therapies are good and that they have a purpose. Never a complaining word from this girl. She sets such a good example of optimism. She also hasn't even seemed discouraged or frustrated with the new struggles she faces. She just takes it in stride, talking about getting better. I feel like Heavenly Father has just blessed her with an understanding of what happened and an understanding of her new mission right now: to get better. Seriously, never a complaint. I'm so impressed... Couldn't love her more.
She also did 2 straight hours of neuropsych testing. That's a long time! I couldn't be in the room for it, but Dr Freeman said she did great and loved all the activities they did. As Dr Freeman left, she walked over to the other nurses and whispered, "I just love her!! She is adorable!!" Lol, so I think Addie did okay, at least with participating and being cute. Tomorrow they'll finish the last hour of the test and then we wait for the results. Oh the waiting.
Addie also had her left ankle xrayed. It has continued to hurt, and the pain has been in a consistent place the last several days causing limping after just a few steps. They've been trying to find a source of the pain but have been unsuccessful. Today, after the PT and I spent a half hour watching Addie walk and testing and testing and testing and eliminating sources of pain, it's been determined that she most likely has/had a fracture.They also used a tuning fork which sends vibrations through the bones and the vibrations can cause pain in fractures. They used the tuning fork all over Addie's other bones with no reactions, but in her left inner ankle bone, she immediately said it hurt. So, she got an xray this afternoon which may show the fracture, but it's been so long since the accident it may have healed enough to not show up. Both the PT and Addie's inpatient rehab nurse practitioner believes this to be the source of the pain. Hopefully knowing this will help us get Addie walking pain free asap!
Tomorrow is an exciting day! She gets to go on an outing to the Children's Museum! We're going with a couple other kids from the hospital and I'm very interested to see how Addie adjusts to all the chaos there. It will be a good test! Wish us luck!! Goodnight!!
Monday: back to the therapy grind!. Today was a good day. We got a lot of answers and made some big decisions. First, Addie's hips look great! They said there were no breaks or anything to be concerned about. So now we just strengthen, strengthen, strengthen! Her regular PT hadn't seen her since Friday and she couldn't believe the progress she's made! Addie got to play a Wii game in PT today that worked on her balance. She loved it! She also got to shoot rockets using her foot to stomp an air bellows to launch them into the air. I love all these creative ways to get her to balance and work on her leg strength. Our PT (Crystal) also talked about early discharge and that she would be recommending it at our rounds meeting tomorrow morning. We're super interested to hear what everyone has to say tomorrow!
Addie also got her stitches out today! For some reason I view this as very symbolic. The stitches were the last piece of medical equipment on Addie's body and I love knowing that from here on out it's just her. She also had her throat scope done today. I'm sure we'll get more information in rounds tomorrow, but what the doctor told us as he finished is that everything looks really healthy. He was able to watch her swallow and he said things looked great and he even suggested testing her on the next thinnest liquid. That's great news! So glad to know that there doesn't seem to be any significant damage to the vocal cords or swallow area. I'm sure he'll take some time to look at the images he took a little closer, so we'll know more tomorrow.
Addie has also started becoming more restless at night. We've had to use melatonin the last two nights to help her fall asleep but she has been waking up several times through the night saying she can't sleep. We'll be looking into other options tonight to maybe help her get a more restful night's sleep. She's been looking fairly exhausted by about 5 o'clock these days.
One other thing we've noticed as Addie becomes stronger and less medicated, more small issues continue to show up. Things that were previously masked by her weakness or by the medications are now more visible. Today her OT and I noticed that her left eye was really struggling to follow images. She then did a vision test and we determined that her vision prescription is still correct. She's still able to see very small writing from far distances with her glasses in both eyes. However, when she's asked to track a moving object with her left eye, she loses it very easily. The good news is that she hasn't lost any eyesight, we just need to retrain her left eye muscles! And now that we know that this problem exists, OT will be adding eye strengthening exercises to every session.
We also committed to do PCH therapy through the hospital for the foreseeable future. We're still looking into options for Addie's swallow therapy. We're hoping that if we can find something closer to home, then we can move her OT and PT to the PCH East Valley. But for now, Jon and I feel good about going forward with all her therapies at the PCH hospital. This is certainly not convenient in any way, but I feel like having that consistency and being able to do all her therapies in one place will allow us to simplify our lives a little bit. Again, that might change as we get time to do more research, but at least we have a plan moving forward.
As I mentioned earlier, tomorrow is rounds. I love rounds. I'm excited to hear what they have to say tomorrow! Pictures are of Addie cuddling with me just before they removed her stitches. And she really wanted to take a picture of the giraffe she built!
Today was a fabulous day! Addie got her ng tube out!!! She is tube free!! And the drs listened to my complaining and said they'd be a little more lenient with her liquids. She did great with them today and it wasn't so stressful! And she has taken the swallow therapy in stride and doesn't even act like it bothers her anymore. Go goose!
She also has become more stable walking so they've stopped using the gait belt which is so nice. Now she can walk by herself or holding my hand. She was even allowed to climb ladders and go down slides at the playground with her PT. She is getting her balance back more too. She took a bath today and it went so smoothly compared to her last bath! She is visibly getting stronger. She can dress herself and use the bathroom by herself. We love seeing her do these independent everyday actions! Our speech therapist even suggested that she is doing so well, they might even consider discharging her before Friday, but who knows. They won't discuss that until Tuesday at the earliest.
Addie also had a special visitor today: a giant St. Bernard dog. He weighed 180 lbs (!!) and Addie just loved him. All 180 lbs of him climbed up on to her bed...his panting shook her whole bed! And she got to go shopping at the hospital store with all of the Rehab Bucks she's earned. For every therapy or hard thing, they reward with Bucks and then the kids get to cash them in for tons of prizes. Addie came back loaded!
Tonight we've had a little concern with Addie's heart rate and vitals. She had a really hard time falling asleep and was tossing and turning for a couple hours. They think this is due to her med withdrawls. She dropped one med yesterday, one today, and will drop another tomorrow. They will likely hook her up to an EKG through the night to monitor her better. It could be she just needs a little more medication to help her get through it. After 2 hours of restlessness, Jon turned on Primary songs and he said she finally fell asleep. If you're still up, pray that her vitals will return to normal and that her body will tolerate the decline in medications. She's a tough Goose and we know she'll work through this next hurdle with a little prayer! Thank you!!!
I'm so glad to hear she is improving. Thanks for keeping us all updated. We send our love Ramirez famiky (aka Andrew low's sister) ❤❤❤❤
Prayers continue ❣
We are so sorry. Lot of Prayers from Salt Lake City friends.
Brodie told us last night of your little girl. We are praying. So sorry.
Sending prayers for this sweet little girl and to the entire family.