Prayers & Donations for Baby Jace

I know that GOFUNDME's can be a dime a dozen, but this is something I feel God is convicting me to do for this family. They are very dear to me, Caleb (11) is my son's friend & teammate. Jamie (left) and Jordan (far right) allowed my husband to work with them last year while he was on Summer break from Coaching. Ben (my husband) even went and visited them the day their twin babies were born.

^ That's him & Jace.

A few months ago baby Jace had to have surgery because his skull fused too soon. It was supposed to be an in and out kind of surgery...which on babies everything is scary, but it shouldn't have been this. I'm not sure exactly what happened (I'm sure Jamie can explain it with the proper medical terms better) but Jace's little brain went without oxygen for a long time. The day this happened the doctors weren't sure if he'd live through the night. When he did, the doctors said he'd never breathe on his own and be off of the machines. I remember sitting at the kitchen table that night and my husband started to pray for "peace & comfort" for the family and I said no, We are praying the big, scary prayer. We are asking for a miracle for this baby and we are going to be a part of it.

Well fast forward several months and the little Miracle Baby is not on a breathing machine, he is home and improving everyday! He is grasping things and making sweet baby noises. You can follow their updates on facebook at 

https://www.facebook.com/groups/275444339533757/

Jamie is a nurse and she's been doing tireless research on different therapies and approaches to take with Jace to maximize his life. His potential. In her research she found a Doctor in New Orleans named Dr. Harch who specializes in Hyperbaric Oxygen Chamber therapy.  It is a very expensive set of treatments and she'll have to stay in NO for the duration of the treaments (two months or so). She has been given some good news that it starts soon and her family is allowing her to use their camper so she doesn't have to pay for a hotel while she is there but the expenses are still there. 

If you could pray for them, join the group for updates and possibly donate to their campaign I would greatly adore you. This is something our community can do for this baby. Jame & Jordan will do anything for their kids, money isn't going to stand in their way. 

If you are local to Arkadelphia there is an account graciously opened by Bill Wright and the lovelies at Southern Bancorp just ask for Jace Golden's account or you could mention Jamie or Jordan Golden or Kim or Robert Ursery. 

With love to Jamie, Jordan, Caleb, Jensyn and Jace,
Nikki Chandler




Jace was born with sagittal synostosis where his sagittal suture on his skull was fused. He had an endoscopic surgery on April 14th, 2017 to open the suture up in order for his brain to have room to grow as he gets older. During surgery, sweet baby Jace suffered massive blood loss leading to cardiac arrest. After being resuscitated and incision closed, they did a brain scan where it showed a subdural hemorrhage. The next night, he showed signs of further bleeding and after another scan, he had multiple hemorrhages along with a midline shift of his brain and several other factors that leaned towards brain damage of the whole right hemisphere of his brain. He was rushed to emergency surgery where the right hemisphere of brain was pale, nonpulsatile, and very swollen. All signs of brain damage to the entire area. His soft tissue and protective membrane to brain were torn in multiple places. They performed a duraplasty and a right sided craniectomy. He again suffered massive blood loss and cardiac arrest. After the second surgery, the scans showed that due to the amount of blood loss and loss of oxygen to his brain, that his entire right side and part of left side of brain were non functioning. We were told he would never breathe on his own, and never move his left side of body, and that was if he ever made it out of the this. He had seizures for several days with the highest count of 40 in one day. Jace is a miracle! He was on a ventilator for 11 days when he started to breathe on his own. Little by little we saw him come back to us. He started to move his left side and opening his eyes. He spent 2 weeks in the PICU at Arkansas Children's Hospital and a total of 38 days in the hospital. Jace has made miraculous progress. He is behind developmentally and testing at 0-1 month level. He has increased muscle tone which causes his muscles to stay tense the majority of the time. He does not cry, does not smile or laugh and is very weak on his left side. This treatment for him could make his potential shine through. When you look at his sweet face, you can see he is just trying to burst out. These treatments can help him in every area he is having difficulty with. It can help get rid of the dead brain tissue and restore it with new. This is a chance for Jace's future. Jace and his Mom will be living in New Orleans for 2 months while he gets these treatments.
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