Please help us save Little Vincent

My son Kyle and his fiancee Mikah's Little son Vincent was born with SMA ( Spinal Muscle Atrophy) a rare genetic disorder. He has the most severe form. The no walking, no sitting up, no breathing or eating on his own type 1. The type where death is inevitable anytime before age 2. He needs treatment asap or he will die soon. Previously there was no treatment and no cure. Now there is, however, he did not meet the Criteria to be in a trial study for this cure of Gene Replacement therapy. He needs to go to Madison Wisconsin to receive this Gene Replacement therapy which would save his life. He is 2 weeks old now, and they only give the Gene Replacement Therapy to infants 6 weeks old or younger. So time is of the essence! They are hopefully going to do a COMPASSION study for him. That means they will still give him the medicine he needs, but not through the trial study. So the medicine will not be paid through the study. We are trying to raise money to help them get to Wisconsin for the medicine he needs to survive. And money to help them pay for the medicine ( as will be tremendously expensive), gas money, lost wages, and other related medical expenses. Any and all help would be greatly appreciated.  Please please help save little Vincent. He is so beautiful and adorable. You look into his little face and wonder how could this happen? It isnt fair that he was born with this rare genetic disorder, and that he may never have a chance to live!!