Please help our son Jax

Hello this our son Jax. He was born with a rare heart defect called tetralogy of fallot there are less then 20,000 cases per year. Unfortunately Jax is one of these rare cases. He has been in children's icu since he was born on 9-13-16 in children's hopsital of Pittsburgh which is over an hour away for us. He will require open heart surgery possibly more then one before he can come home. He is on heart medication through his iv to keep his artery open in order for his heart to pump blood to his lungs without this medication our son would not survive. He is a little over 5lbs now and cannot have surgey until he gains weight. He has been having complications with getting infection in his intestines which can be life threatening for him and he cannot eat while on antibiotics to fight the infection. Jax got this infection again just yesterday while we were there visiting they found it and stopped his feeds. Its the second time in a month he has gotten this infection .I had a c section and still cannont work and with traveling back and fourth to Pittsburgh and all the added stress both physically and emotionally it has been hard for me to heal. This leaves Brandon as our only income . He is only working part time right now because of our trips to be with our son Jax in Pittsburgh. Its already hard to make ends meetand with surgery coming up he wont be able to work at all. The fear of our financial hardship is becoming more real everyday . So is the fear of us not being able to see our son and to hold our son as he fights for his life everyday. Your donations will help give us the ability to spend time witj our little miracle Jax.