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Pia's ALS Fund

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Buenos Días a todo. 

I am seeking to raise money on behalf of my mother Pia who has recently been diagnosed with Motor Neurone Disease also known as Amyotrophic Lateral Sclerosis ( ALS).

 AL S , commonly referred to as Lou Gherig's disease, is an ugly disease by many names that has taken countless lives but has no cure.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

A terminal progressive disease with no cure.
¡Qué lástima!


Pia has been exhibiting symptoms since December 2016 and was officially diagnosed in April  2017.

She  is now using a breathing machine to assist her breathing and has already lost most use of her legs and is using her walker to get around short distances but will soon begin transitiong to a wheelchair. 

A little background on my mother - 
Pia is a New Jersey native currently residing in Newport News, Virginia. She is 48 years young, a wife to a retired army veteran of 22 years, and mother of three ranging in age from 19-26. 

 Pia is an accountant that loves rescuing Great Danes, and has been volunteering  with the Mid Atlantic Great Dane Rescue League for over 10 years. When she is not spending her time with the animals she is volunteering at the shelter for abused women. And offering free legal advice to victims of domestic violence. 
Our mother is just a kind soul that has devoted her life to giving to others. Now is the time that she needs people to give to her.

While insurance is helping to pay for some of her expenses, sadly it isn't enough. 

We will be using the donations to pay for an in home nurse, her medical bills, cremation and memorial costs, a wheelchair, modifications to the home and car to accommodate her wheelchair. We would also like to surprise her with a trip to Paris. It's been on her bucket list since she was a young girl.  Unfortunately, ALS progresses quickly often taking the lives of its victims within a year of diagnosis. With possibly months or less to work with, now is the time. If we raise enough money we would love to be able to make a dream come true before her health declines too much further and she is unable to travel. 

Any leftover money from her campaign we would love to donate to ALS research to find a cure.


Please help our family in this time of need. Anything that you can give would be greatly appreciated.
Muchísimas gracias a todo.

Organizer

Taj Burgos Sultan
Organizer
Newport News, VA

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