Fighting "The Suicide Disease"

$2,395 of $5,000 goal

Raised by 42 people in 32 months
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Holley Pesina is a 30yr. old married mother of four from Bulverde, TX.  She survived a traumatic brain injury at age six from being ran over by a car and now  is fighting a rare facial nerve disorder called trigeminal neuralgia AKA in the medical world as "the suicide disease " and hemifacial spasm for 14yrs.  Trigeminal neuralgia (TN) Is regarded as one of the most painful diseases known to man . Many afflicted with the disease take their own lives due to the intolerable pain. Trigeminal neuralgia (TN), is a chronic pain condition that affects the trigeminal or 5th cranial nerve, one of the most widely distributed nerves in the head. The nerve has three branches that conduct sensations from the upper, middle, and lower portions of the face, as well as the oral cavity, to the brain.The intensity of pain can be physically and mentally incapacitating and causes excruciating shocking, stabbing, or burning pain with stimuli such as talking, chewing,  or touch. Even the slightest breeze, talking, eating or touch can trigger pain like a butcher knife to the face for a TN sufferer. Hemifacial spasm is a rare neuromuscular  disorder of the 7th cranial nerve which causes involuntary muscle contractions (spasms) on one side of the face. There currently is no cure for either disorders. We are raising money to help the family pay for medical expenses and for traveling a top surgeon in her disorder for a repeat brain surgery. We are hoping to raise enough to help her with expenses when traveling to specialists in her disease. Holley has already undergone two brain surgeries in the past. First surgery was when she was 6 yrs. old and was ran over by a car suffering  a decompressed skull fracture having to have her skull reconstructed and second surgery in 2008 to decompress vessels around the trigeminal and facial nerves located in the brainstem. Several other painful procedures were done and different combinations of meds to try to help relieve Holley's severe facial pain but have been unsuccessful. Holley remained active doing what she loved working as a RN helping others but now is unable to work and support her family due to the severity of the pain causing tremendous stress on top of pain.Thank you for anything your able to help donate to contribute for her family.

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Met with neurosurgeon Raymond Sekula today and had some testing today. He discovered a blood vessel adhered to the trigeminal nerve probably due to scar tissue so another brain surgery is scheduled this Thursday in Pittsburgh to separate the vessel from the nerve and to explore around it. Also the facial spasming is not hemifacial spasm he discovered it is another type of facial disease and is going to explore around it as well. Thank you all for the prayers! Please continue to pray for the Pesina family. They will need help and support through this!
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Advanced MRI authorized for Sunday. Set to head out to Pittsburgh tomorrow.
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Appointment sent to see Dr. Raymond Sekula for Monday at 8:30. He's an expert in cranial nerve disorders. Advanced MRI and more testing to be completed and hopefully a answer to get pain controlled. Again thanks to those for donations and prayers.
http://www.upmc.com/Services/neurosurgery/experts/Pages/raymond-f-sekula.aspx
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We're having some issues with the insurance unfortunately and Holley isn't able to go to her appt in Houston because of it. But we are fighting it and we're going to do whatever it takes to get her to a trained specialist in her disorder.
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Read a Previous Update
Christina Cecil
32 months ago
1
1

May Your Faith in God keep You Strong. We are unable to help donate as we have a serious medical condition we are going through with our family. But wanted go let You know... We are Praying for You... and God Bless All of You Who Are Able to Financially Help❤️

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Kristin Tanner
16 months ago

My mom suffered from TN for years after being misdiagnosed in the late 90's. She was taking 2400mg of Neurontin every day. Enough to tranquilize an elephant, but made the episodes less frequent. There is a doctor at Shand's hospital in Gainesville, FL who performs an outpatient procedure whereby a block is injected to the nerve root thru the inside of the mouth. My mom had the procedure done and has lived pain free for over 15 years. Reply to this comment if you want the name of the doctor.

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Jamie Hague
31 months ago

holly i too had trigeminal neuralgia. my vascular decompression surgery was performed by Dr Hillary Fleming in Reno, Nevada. I pray you find comfort. i had a small section of my skull removed to relieve the pressure (i was ran over by a car too by the way) and the nerve was wrapped in Teflon. your surgical scar seems entirely different from mine so perhaps you didn't have the same procedure. i'm so sorry you"re having to go through this suffering. i endured for 5 years before my surgery in 1995 left me pain free.

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Summer Houchin
31 months ago

This is a You rube video on a MVD if any of you aren't sure what they do exactly. https://youtu.be/9Sz4vKsJde0

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Summer Houchin
31 months ago

I love you sis Please don't give up!

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$2,395 of $5,000 goal

Raised by 42 people in 32 months
Created July 1, 2015
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$20
Anonymous
14 months ago
JF
$100
James Fowlkes
16 months ago

God bless you and keep you wrapped in His loving arms.

$20
Anonymous
16 months ago
$25
Anonymous
28 months ago
$20
Anonymous
30 months ago
Christina Cecil
32 months ago
1
1

May Your Faith in God keep You Strong. We are unable to help donate as we have a serious medical condition we are going through with our family. But wanted go let You know... We are Praying for You... and God Bless All of You Who Are Able to Financially Help❤️

+ Read More
Kristin Tanner
16 months ago

My mom suffered from TN for years after being misdiagnosed in the late 90's. She was taking 2400mg of Neurontin every day. Enough to tranquilize an elephant, but made the episodes less frequent. There is a doctor at Shand's hospital in Gainesville, FL who performs an outpatient procedure whereby a block is injected to the nerve root thru the inside of the mouth. My mom had the procedure done and has lived pain free for over 15 years. Reply to this comment if you want the name of the doctor.

+ Read More
Jamie Hague
31 months ago

holly i too had trigeminal neuralgia. my vascular decompression surgery was performed by Dr Hillary Fleming in Reno, Nevada. I pray you find comfort. i had a small section of my skull removed to relieve the pressure (i was ran over by a car too by the way) and the nerve was wrapped in Teflon. your surgical scar seems entirely different from mine so perhaps you didn't have the same procedure. i'm so sorry you"re having to go through this suffering. i endured for 5 years before my surgery in 1995 left me pain free.

+ Read More
Summer Houchin
31 months ago

This is a You rube video on a MVD if any of you aren't sure what they do exactly. https://youtu.be/9Sz4vKsJde0

+ Read More
Summer Houchin
31 months ago

I love you sis Please don't give up!

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