Pagalba Mykolui ir Gabrieliui
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"Pirmą kartą išgirdau apie autizmą kai dvynukams Mykolui ir Gabrieliui buvo du su puse metukų. Tai skambėjo kaip baisus nuosprendis: ,, Jūsų vaikai autistai, ponia. Pagalvokite apie ateitį. Suraskite jiems gerą internatą ir ten juos palikite. Vis vien nieko gero iš jų nebus. Jūs gi viena, o nemokyti jie nė prie ūkio netiks…“ Pusė metų nebyliai žvelgiau į vaikus. Sunkiai suvokiau, kodėl tokie judrūs ir mieli vaikai bandę kalbėti – staiga nutilo. Lyg visa vaikystė paniro į chaotišką baimių liūną. Autizmas man buvo lyg vagis, pavogęs iš manęs vaikus ir sielos ramybę… ir artimuosius. ,,Būtum žinojusi, kad tokie gims, būtum geriau abortą pasidariusi“. „Tokie vaikai neturėtų gyventi“ – skambėjo iš pačių artimiausių lūpų. “ (ištrauka iš mamos Audronės laiško)
Dvynukams Mykolui ir Gabrieliui- 5 metai. Abiems vaikams diagnozuotas sunkus autizmas, pusės kūno nejautra bei emocinis elgesio pasipriešinimas . Autizmas - tai smegenų vystymosi nukrypimas, raidos sutrikimas, socialinių įgudžių trukūmas, o kartais visai jo nebuvimas. Berniukams reikalinga priežiūra ištisą parą. Jie neturi baimės jausmo, jie turi nejautrą skausmui, nebijo ugnies, puola į gilų vandenį.. Jei autizmas ar autizmo spektro raidos sutrikimas negydomas, daugelis vaikų neišvysto pakankamų, net paprasčiausių socialinių įgudžių.
Mama Audronė nuo pat diagnozės pradžios bandė ieškoti bent kokios pagalbos, tačiau Lietuvoje labai sunkiai yra integruojami vaikai su protine negalia .
“Aš palaipsniui tapau invalidų motina, kurios vaikų nepageidavo nei darželiai, nei bendruomenė”.
Aštrūs žmonių komentarai, žvilgsniai į Mykolą ir Gabrielių tik dar labiau apsunkino ir taip nelengvą ir skausmingą vienišos mamos gyvenimą.
Šiuo metu Audronė su vaikais gyvena Klaipedoje ir bando savo meile nors kiek palengvinti jų visų nelengvą gyvenimą … Ne, ji nesiskundžia ir net nebeverkia, nes jau visos ašaros seniai išlietos, visos naktys prarimotos. Egzistencija ir tiek, -sako ji . Bet dvynukų mama turi svajonę nors kiek padėti savo vaikams ir sau. UK yra spec. darželiai, pritaikyti tokiems vaikams, o jų tėvams yra sudarytos visos sąlygos dirbti ir auginti vaikus su įvairiomis negaliomis. Galbūt jie ir nepagis , bet bent dalinai išmoks -prisitaikys prie buities, o ir mamai bus už ką nusipirkti valgyti. Šiuo metu apmokėjus patarnavimus , bei nupirkus vaikams sauskelnių , jos gaunamos pašalpos beveik nebelieka, o juk kažkaip ir maitintis reikia, vaikam vitaminų nupirkti, rūbelių..
“Ne jau aš neturiu nei mažutės vilties oriai gyventi, auginti vaikus, gauti reikiamą pagalbą ir nebijoti likti pasmerkta “..
Labai prašome visų prisidėti prie šios jaunos mamos svajonės. Visa informacija dėl UK jau gauta , beliko sutvarkyti tik visus dokumentus . 7000 eurų , tiek reikia šiai dienai Audronei apmokėti kraustimąsį, draudimą, pradinį ugdymo įstaigos mokestį, bei būsto nuomos užstatą. Vėliau viskam užsidirbs ji pati, nes darbo ši moteris nebijo, svarbu vaikai bus saugūs.
"First time I learned about autism was when my twins Mykolas and Gabrielius were 2.5 year old. It sounded like a life sentence: "Your kids have autism, and you should think about your own future. take them to some lunatic asylum and leave them there. they are useless, they will never be normal!" ... for half a year I was learning to live with the diagnosis, I was studying and observing them... It was hard to grasp why these two active, lively, cute babies who had tried to learn to talk, couldn't manage these other wise easy tasks for healthy normal developing children. It seemed like their entire childhood with hopes and dreams collapsed into the dark abyss. Autism seemed like a thief to me, who stole my kids and my peace of mind..
"If you had known before they were born, you could have had an abortion .... ", "Kids like that shouldn't be alive" - these thoughts were vocalized by my closest people ........ ( taken from Audrone's letter)
Twins Mykolas and Gabrielius will turn 6 in November. They were both diagnosed with low functioning autism, impaired social communications and interactions, lack of social and emotional reciprocity. they also have hemianesthesia from their waist down (thus hurting themselves without feeling it and having to use diapers all the time). Autism spectrum disorder (ASD) refers to a group of complex neurodevelopment disorders characterized by repetitive and characteristic patterns of behavior and difficulties with social communication and interaction. The symptoms are present from early childhood and affect daily functioning. Twins need 24/7 care. They need help with developing their emotional and social skills so that they could function in the society. Twin's mother Audrone since their diagnosis has been trying to find that special care for them, any sort of help .. Unfortunately Lithuania is still very primitive and doesn't provide any help for people with mental illnesses, parents are left to face their problems alone. "I slowly became a mother of mental retards who were not welcome anywhere- including day care centers and special needs centers." People staring and insulting her made it really difficult for Audrone to move forward. Today Audrone with her twins live in Klaipeda (3rd biggest town in Lithuania). She doesn't complain or cry.... She says all the tears are cried out during her sleepless nights.. She doesn't "live" anymore, she just exists and does what any mother would do.. what's best for her children.
But she has a DREAM. a dream that would help her find a special care for her twins, care that they deserve, and that she could go to work and be human again. her dream is to move to the United Kingdom, where people CARE, where special needs are being taken care of, where "different" people are considered a part of the society and integrated , and respected. Maybe they will never be "normal", but they can learn how to adapt and adjust. And Audrone will be able to buy good quality food, vitamins and supplements which are crucial for special needs kids. "It seems like in Lithuania I don't have any hope to live with dignity and respect that we all need... and to do what every mother wants to do- raise her kids the best way she can, be worthy and not condemned by her own country"....
Please , we ask everyone of you, help this young beautiful mother reach her goal, chase her dream! She has a strong plan, detailed information regarding emigration to the U.K. all she needs is to take care of paperwork and 7000 Euros to pay for insurance, move, rent , etc. Audrone is not afraid of work, she will be happy to get any job for herself as long as her children get the care they deserve.
Thank You
Sincerely,
Chicago Mothers Foundation
Dvynukams Mykolui ir Gabrieliui- 5 metai. Abiems vaikams diagnozuotas sunkus autizmas, pusės kūno nejautra bei emocinis elgesio pasipriešinimas . Autizmas - tai smegenų vystymosi nukrypimas, raidos sutrikimas, socialinių įgudžių trukūmas, o kartais visai jo nebuvimas. Berniukams reikalinga priežiūra ištisą parą. Jie neturi baimės jausmo, jie turi nejautrą skausmui, nebijo ugnies, puola į gilų vandenį.. Jei autizmas ar autizmo spektro raidos sutrikimas negydomas, daugelis vaikų neišvysto pakankamų, net paprasčiausių socialinių įgudžių.
Mama Audronė nuo pat diagnozės pradžios bandė ieškoti bent kokios pagalbos, tačiau Lietuvoje labai sunkiai yra integruojami vaikai su protine negalia .
“Aš palaipsniui tapau invalidų motina, kurios vaikų nepageidavo nei darželiai, nei bendruomenė”.
Aštrūs žmonių komentarai, žvilgsniai į Mykolą ir Gabrielių tik dar labiau apsunkino ir taip nelengvą ir skausmingą vienišos mamos gyvenimą.
Šiuo metu Audronė su vaikais gyvena Klaipedoje ir bando savo meile nors kiek palengvinti jų visų nelengvą gyvenimą … Ne, ji nesiskundžia ir net nebeverkia, nes jau visos ašaros seniai išlietos, visos naktys prarimotos. Egzistencija ir tiek, -sako ji . Bet dvynukų mama turi svajonę nors kiek padėti savo vaikams ir sau. UK yra spec. darželiai, pritaikyti tokiems vaikams, o jų tėvams yra sudarytos visos sąlygos dirbti ir auginti vaikus su įvairiomis negaliomis. Galbūt jie ir nepagis , bet bent dalinai išmoks -prisitaikys prie buities, o ir mamai bus už ką nusipirkti valgyti. Šiuo metu apmokėjus patarnavimus , bei nupirkus vaikams sauskelnių , jos gaunamos pašalpos beveik nebelieka, o juk kažkaip ir maitintis reikia, vaikam vitaminų nupirkti, rūbelių..
“Ne jau aš neturiu nei mažutės vilties oriai gyventi, auginti vaikus, gauti reikiamą pagalbą ir nebijoti likti pasmerkta “..
Labai prašome visų prisidėti prie šios jaunos mamos svajonės. Visa informacija dėl UK jau gauta , beliko sutvarkyti tik visus dokumentus . 7000 eurų , tiek reikia šiai dienai Audronei apmokėti kraustimąsį, draudimą, pradinį ugdymo įstaigos mokestį, bei būsto nuomos užstatą. Vėliau viskam užsidirbs ji pati, nes darbo ši moteris nebijo, svarbu vaikai bus saugūs.
"First time I learned about autism was when my twins Mykolas and Gabrielius were 2.5 year old. It sounded like a life sentence: "Your kids have autism, and you should think about your own future. take them to some lunatic asylum and leave them there. they are useless, they will never be normal!" ... for half a year I was learning to live with the diagnosis, I was studying and observing them... It was hard to grasp why these two active, lively, cute babies who had tried to learn to talk, couldn't manage these other wise easy tasks for healthy normal developing children. It seemed like their entire childhood with hopes and dreams collapsed into the dark abyss. Autism seemed like a thief to me, who stole my kids and my peace of mind..
"If you had known before they were born, you could have had an abortion .... ", "Kids like that shouldn't be alive" - these thoughts were vocalized by my closest people ........ ( taken from Audrone's letter)
Twins Mykolas and Gabrielius will turn 6 in November. They were both diagnosed with low functioning autism, impaired social communications and interactions, lack of social and emotional reciprocity. they also have hemianesthesia from their waist down (thus hurting themselves without feeling it and having to use diapers all the time). Autism spectrum disorder (ASD) refers to a group of complex neurodevelopment disorders characterized by repetitive and characteristic patterns of behavior and difficulties with social communication and interaction. The symptoms are present from early childhood and affect daily functioning. Twins need 24/7 care. They need help with developing their emotional and social skills so that they could function in the society. Twin's mother Audrone since their diagnosis has been trying to find that special care for them, any sort of help .. Unfortunately Lithuania is still very primitive and doesn't provide any help for people with mental illnesses, parents are left to face their problems alone. "I slowly became a mother of mental retards who were not welcome anywhere- including day care centers and special needs centers." People staring and insulting her made it really difficult for Audrone to move forward. Today Audrone with her twins live in Klaipeda (3rd biggest town in Lithuania). She doesn't complain or cry.... She says all the tears are cried out during her sleepless nights.. She doesn't "live" anymore, she just exists and does what any mother would do.. what's best for her children.
But she has a DREAM. a dream that would help her find a special care for her twins, care that they deserve, and that she could go to work and be human again. her dream is to move to the United Kingdom, where people CARE, where special needs are being taken care of, where "different" people are considered a part of the society and integrated , and respected. Maybe they will never be "normal", but they can learn how to adapt and adjust. And Audrone will be able to buy good quality food, vitamins and supplements which are crucial for special needs kids. "It seems like in Lithuania I don't have any hope to live with dignity and respect that we all need... and to do what every mother wants to do- raise her kids the best way she can, be worthy and not condemned by her own country"....
Please , we ask everyone of you, help this young beautiful mother reach her goal, chase her dream! She has a strong plan, detailed information regarding emigration to the U.K. all she needs is to take care of paperwork and 7000 Euros to pay for insurance, move, rent , etc. Audrone is not afraid of work, she will be happy to get any job for herself as long as her children get the care they deserve.
Thank You
Sincerely,
Chicago Mothers Foundation
Fundraising team: Chicago Mothers Foundation (3)
Vilties Aitvarai
Organizer
Lemont, IL
Ieva Eva
Team member
Gaiva Leoniene
Team member
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