Ossie Boys Fund
Donation protected
Meet my cousin,
eleven-year-old Ossie Robinson.
Here he is on October 16th. He’d just been awarded ‘Man of the Match’ at Everett Rovers.
He’s not an ordinary boy. He’s played football for Everett Rovers since he was four, and was scouted by both Watford and Arsenal football clubs. He’s a dedicated, extremely talented footballer. Check out the pride in those eyes as he holds that coveted trophy. The football kit hides another part of his story, though, a harsher, darker part.
Meet eleven-year-old Ossie.
He’s not an ordinary boy.
In July 2013, aged just seven, he was diagnosed with neuroblastoma, a cancer of the nervous system. It’s rare for this disease to be diagnosed at such a late age. Most children are diagnosed before age five, usually before one year of age.
Ossie had stage 3 intermediate-risk neuroblastoma. Scans revealed a solid mass surrounding large parts of his abdomen.
It’s no secret that chemotherapy can be a gruelling process. The drugs used to destroy the cancer cells have side effects that can range from unpleasant to devastating.
Ossie has endured round after round of intense chemotherapy and other treatments. He’s suffered allergic reactions to some of the chemotherapy drugs, so the treatments make him extremely unwell.
In January 2014, a ten-hour operation removed the initial tumour, and a six-month course of oral chemotherapy kept the disease at bay. In July 2014, the cancer returned, necessitating a further four hours of surgery to remove a further tumour.
Teams at Great Ormond Street Hospital and University College London Hospital have worked tirelessly to find new ways to treat Ossie’s cancer, but the disease has continued to progress. Ossie now has eight tumours.
He has endured long separations from family and friends, including times when even contact with his parents was limited because treatments have left him radioactive. His godmother Nikki even went as far as signing a disclaimer, opening herself up to possible harm from the radiation, so she could help Ossie’s mother care for him.
He’s suffered the horrific effects of all these treatments, but in the end, all it could do is slow the progress of the neuroblastoma.
Ossie is in hospital again now,
and very poorly.
His family’s hope is that the disease can be held at bay until he’s able to join a new medical trial, but at present there is nothing suitable for him. Last Christmas was spent in hospital, and it seems likely that this year will be no different.
If you’ve been moved by any part of Ossie’s story, or if you’ve taken some value from my website and would like a way to pay it forward, this is your chance. I’m raising funds to help Ossie’s family fund the treatments he needs, including the possibility of travelling abroad to access clinical trials.
For more information about Ossie, you can check out his personal site, Ossie Boy’s Fund.
Ossie has not been classed as critically ill but has a 10% survival rate and this is why i want and need to share this with the world and get as much help as i can to increase his chances of the life that he deserves.
Ossie is going through a series of tests to get him prepared for a treatment that will be ready within the next 6 months. the situation we find ourselves in, is that we need to raise the £500k within this time to make this operation and treatment happen. The treatment is done at the Memorial Sloan Kettering Cancer Center
1275 York Avenue
New York, NY 10065
These are the people that have the potential to save Ossie's life and we need as much help as we can find to make this happen.
It would mean the world to me and my whole family if you help us get to where we need to be and save his life. we have been trying so hard as he is such a special boy as are all the children that suffer from this horrible disease. He seriously isthe bravest boy i know and is a true inspiration to me and my very own personal hero.
Thank you for taking the time to read through this and if you donate, a very special love comes deep from within our whole families hearts xx
eleven-year-old Ossie Robinson.
Here he is on October 16th. He’d just been awarded ‘Man of the Match’ at Everett Rovers.
He’s not an ordinary boy. He’s played football for Everett Rovers since he was four, and was scouted by both Watford and Arsenal football clubs. He’s a dedicated, extremely talented footballer. Check out the pride in those eyes as he holds that coveted trophy. The football kit hides another part of his story, though, a harsher, darker part.
Meet eleven-year-old Ossie.
He’s not an ordinary boy.
In July 2013, aged just seven, he was diagnosed with neuroblastoma, a cancer of the nervous system. It’s rare for this disease to be diagnosed at such a late age. Most children are diagnosed before age five, usually before one year of age.
Ossie had stage 3 intermediate-risk neuroblastoma. Scans revealed a solid mass surrounding large parts of his abdomen.
It’s no secret that chemotherapy can be a gruelling process. The drugs used to destroy the cancer cells have side effects that can range from unpleasant to devastating.
Ossie has endured round after round of intense chemotherapy and other treatments. He’s suffered allergic reactions to some of the chemotherapy drugs, so the treatments make him extremely unwell.
In January 2014, a ten-hour operation removed the initial tumour, and a six-month course of oral chemotherapy kept the disease at bay. In July 2014, the cancer returned, necessitating a further four hours of surgery to remove a further tumour.
Teams at Great Ormond Street Hospital and University College London Hospital have worked tirelessly to find new ways to treat Ossie’s cancer, but the disease has continued to progress. Ossie now has eight tumours.
He has endured long separations from family and friends, including times when even contact with his parents was limited because treatments have left him radioactive. His godmother Nikki even went as far as signing a disclaimer, opening herself up to possible harm from the radiation, so she could help Ossie’s mother care for him.
He’s suffered the horrific effects of all these treatments, but in the end, all it could do is slow the progress of the neuroblastoma.
Ossie is in hospital again now,
and very poorly.
His family’s hope is that the disease can be held at bay until he’s able to join a new medical trial, but at present there is nothing suitable for him. Last Christmas was spent in hospital, and it seems likely that this year will be no different.
If you’ve been moved by any part of Ossie’s story, or if you’ve taken some value from my website and would like a way to pay it forward, this is your chance. I’m raising funds to help Ossie’s family fund the treatments he needs, including the possibility of travelling abroad to access clinical trials.
For more information about Ossie, you can check out his personal site, Ossie Boy’s Fund.
Ossie has not been classed as critically ill but has a 10% survival rate and this is why i want and need to share this with the world and get as much help as i can to increase his chances of the life that he deserves.
Ossie is going through a series of tests to get him prepared for a treatment that will be ready within the next 6 months. the situation we find ourselves in, is that we need to raise the £500k within this time to make this operation and treatment happen. The treatment is done at the Memorial Sloan Kettering Cancer Center
1275 York Avenue
New York, NY 10065
These are the people that have the potential to save Ossie's life and we need as much help as we can find to make this happen.
It would mean the world to me and my whole family if you help us get to where we need to be and save his life. we have been trying so hard as he is such a special boy as are all the children that suffer from this horrible disease. He seriously isthe bravest boy i know and is a true inspiration to me and my very own personal hero.
Thank you for taking the time to read through this and if you donate, a very special love comes deep from within our whole families hearts xx
Organizer
Gary Fullwood
Organizer
