Safe travels for Tyler
Our family is reaching out to all those who are able and willing to donate for a full size HANDICAP ACCESSIBLE VAN for our family. The van pictured above isn't exactly what were looking for, Posted to give an idea of what Tyler's needs are.
Please read Tylers story.
Tyler is a very happy, caring and goofy 12 year old boy. His strength and courage amaze us every day. He attends school in Bigfork Mt. where they have gone above and beyond in accomodating his needs and saftey with being in a wheelchair.
7 years ago we recieved a diagnoses of Duchenne Muscular Dystrophy for Tyler who was 5 at the time.
Duchenne Muscular Dystrophy (DMD) is the most common fatal genetic disorder. It is caused by the absence of dystrophin which is a protein that helps keep muscle cells intact and undamaged. With the lack of dystrophin muscle cells are easily damaged. This causes progressive muscle weakness and leads to serious medical issues. Particulary to the heart and lungs. DMD
is known to be genetic from the mothers side. In Tylers case he is part of the 35% that are part of a random spontaneous mutation. Although there are treatments that may help slow the progression, there is currently no cure for DMD. It is a life long struggle but with advancement in cardiac and respiratory care life expectancy is increasing.
In August of 2014 Tyler was placed in his automatic wheelchair due to not being able to walk safley anymore. We had to hurry and move as our home was not handicap accesible. With the help of family and friends we were able to find a home, but then came the problem of transporting Tyler and is chair safely. We drive a suburban and had to purchase a wheelchair ramp that we could attach to the hitch behind it. Tyler will drive his chair to the passenger door, we pick him up from the chair and place him in the seat and then attempt to drive the chair to the back of the suburban and get the chair on the ramp. If its raining or snowing we have to cover the chair as well so moisture won't ruin the battery.
This way of transportation is not safe for Tyler or ourselves.
With Tylers condition comes lots of doctors appointments that we need to travel for so he recieves neccessary care. He sees his very wonderful primary doctor every three months and his most amazing physical therapist once a week in Kalispell MT. He also has to travel to see his cardiologist, pulmonologist, and orthopedist and travels twice a year for MDA visits to Shriners in Spokane Wa. We are also starting visits at Shriners in Portland Or. to be a part of a study to help find medicine that can treat DMD.
For more information on Duchenne Muscular Dystrophy please click on link below.
Please help us in making our son as comfortable as possible on his journeys.
The Mischke Family
We had a great turn out for our storage sale. The temps reached over a 100 degrees and people still came out to show support. Thank you to Bonnie Hoffman, Misty Osler, Danielle Mischke, and Karen Bradstreet for helping in that grueling heat.
Thank you to the Women of Bethany, Ferndale sewing Circle, and The Small Bible Group for your support. Also, thank you to Bethany Lutheran Church for allowing us to take up shop in the church and all the support you have offered
Thank you to Thorsens's Gallery in Bigfork for letting us use your space during Festival of the Arts and for all the help and support you have offered. We had a great time during the Festival of the Arts and met alot of great people. Thank you to Bonnie Hoffman for helping and arranging all that you do. Without your help and support I probably would be crying in a corner pulling my hair out by now.
Tyler had summer camp this past week and had a wonderful time. Thank you MDA. It's a pleasure to see him happy and smiling.
Thank you to everyone who has helped, supported, and prayed for our family. We greatly appreciate all the support we have received from all.
Hugs to all. We love you.
Everything that God allows to come our way is with a purpose.. he even uses the greatest error and the deepest pain to mold us into a person of worth and value.
Ritu Ghatourey quotes
I believe that GOD only gives us what we can handle. It may seem to be to much and painful at times but it is what we take from it that makes us the people we are today. We grow form it and use it to guide and help others who may need help later in life.
I have a deep appreciation and love for all those we have met along this journey of our lives. Without them Tyler's dream of having a van wouldn't be possible. Thank all of you who have shared, donated and prayed for our family. You are forever in our thoughts.
April Mischke and Family
Everyday Tyler shows determination and strength in doing all he can with what he is given, and he does it with a smile. I can not express the patience and strength I have learned from him.
Thank you to all who are helping our family repay a generous gift for Tyler. Please read Tyler's story and continue to share and donate so we may repay the donor who so graciously helped us get Tyler the transportation he required.
Please continue to share and donate as we try to raise enough funds to pay back the lender for their generous gift.