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Epilepsy Medications for Christmas

$1,665 of $1,900 goal

Raised by 32 people in 19 months
  
1 out of 3 people with Epilepsy are pharmacoresistant, meaning their seizures are not controlled with one or multiple medications.







I have been battling epilepsy for over 10 years.  The most difficult part was the constant experimenting of different medications in search of one that might help to control the seizures, and the things that trigger them.

For me, those triggers are loud noises, flashy or bright lights, shaking or vibrating sensations, and stress. Ironically, I work in the live music industry (concerts and festivals) where bright lights and loud sounds are unavoidable. My condition hinders my performance and often prevents me from working.  

I have taken dozens of medications at various dosages with no significant improvement to my condition. Many of the medications came with unpleasant and sometimes dangerous side effects.

 A few months ago my hospital gave me samples of some medications that were relatively new to the market (Aptiom, Lyrica and Fycompa). When I added them to my existing regimen, the seizures stopped.

For the first time since I was diagnosed I felt like I had control over my life. I was able to work safely and efficiently. I was able to focus on what is important to me such as family, friends and music. I got back some of the things I had missed out on for years.  

Unfortunately two of these medications are not covered by my healthcare provider, due to the high prices charged by pharmaceutical companies. The samples I was given ran out and I could not afford to purchase more.

Cases like mine are becoming more common. Rising prescription prices in America are draining the wealth out of middle class families forcing them to cut spending in other areas or to stop taking the medications. (See Consumer Reports)





I am now in the position of having to choose between buying medications for myself, or having a Christmas dinner and presents for my son and family. I have never had a seizure free holiday with my son, Aiden.

Are you looking for a charity that will have an immediate impact?  A gift from you will directly purchase the medications Albiom and Fycompa over the holidays.  Thank you in advance for your support.


Here is a quick look at the cost of these medications...
Fycompa (2mg/bedtime)
Aptiom  (200mg/daily)


Thank you for taking the time to read my story. I encourage you to watch the video posted in the link below and to support the lawmakers who are pushing to regulate prices and hold pharmaceutical companies accountable. 


Please share this on Facebook and Twitter so I can reach other compassionate people like yourself.


Click here for video: Bernie Sanders on prescription price gouging. 



***Please include your mailing address when making a donation so we can send you a homemade Christmas card!***


If you want to get to know me, check out my Facebook profile. Feel free to message me with questions.  

Christopher Ehrsam



 
+ Read More
Not being able to think...staring off...frustrated and angry...it's not fair.
+ Read More
Thanks to your support I am able to stay on my medications for another 2 weeks. Thank you Tubs for the CBD isolate that helped get me through the rough patches! You make a hell of a good product! Love you brother.

Please consider a donation to help me get medications throughout the holidays. If there is anything I can do for you in exchange for a donation or pay (artwork, promo, dishes, etc.) please send me a PM. My goal is to stay medicated over Christmas and until my next gig in January. Thanks for taking the time to read this.
+ Read More
I have over $20k in hospitalization bills for a seizure study and about $800/mo prescription costs have me beat down. I am a single father and I don't know how other epileptics do it. My campaign is aimed toward relief so I can provide for my family over the holidays and still keep up on my medical bills. Your donation is appreciated.
+ Read More
Seizure Hospitalization Cost Relief has reached 50% of its goal. Thanks to Karen, Chris and Mark.
+ Read More
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$1,665 of $1,900 goal

Raised by 32 people in 19 months
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DL
$25
Duncan L
15 months ago
CP
$50
Charles Poresky
17 months ago
$100
Anonymous
18 months ago
PW
$20
Pearl Weepers
18 months ago
$50
Anonymous
18 months ago
JK
$40
Jessica King
19 months ago
$50
Melissa Malick
19 months ago
$25
Matt Brophy
19 months ago
$150
Scott Bennett
19 months ago
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$50
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19 months ago
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