Nikki's med testing/research funds
Donation protected
"Our medical journey has just begun"
I consider myself a medical research junkie; I love to read and my first choice is a medical article or any on health. But I had never read anything on EDS before so for that I thought that EDS was a made up illness for unknown medical symptoms. Yes, I confess and ask for your forgiveness!
6 months ago my daughter was diagnosed with EDS (Ehlers-Danlos Syndrome 1,2,3 type) as well as POTS, AND MCAS (mast cell activation syndrome).
My thoughts were it can't be real because this diagnose includes a long list of multi-chronic and painful symptoms including the kitchen sink! I was sure the doctors had no clue on what they were telling us. It was unreal to me! I had to take time to digest all the information and accept the truth about EDS.
This is where our medical journey has begun for our entire family.
I was ignorant to the real information and high number of people affected by EDS, POTS, MCAS and how world wide it's spread. Today I know better.
I have become an active learner and constantly researching for leaders in pain management techniques with EDS patients to help support my daugher's pain.
Where will it lead us? This I am not sure but I can only pray and hope for a miracle in EDS research!
EDS is real and know it's in my home!
I am thankful to the websites like EDS AWARENSS, CHRONIC PAIN PARTNERS, they have elevated my learning process in my new life journey to help support my daughter who is dealing with all sorts of lifetime adjustments.
In our medical search for a miracle we came in touch with Dr. Chopra, a world leader in pain management for EDS, and MCAS.
Nicole has been awarded an appointment with Dr. Chopra for this August to evaluate her condition and manage her pain symptoms for a better quality of life.
We are very grateful and excited for her appointment but required to travel to RI. Once Dr. Chopra becomes involved in Nicole's treatment, he will be a leading MD consultant in all her treatments and for all other doctors to follow with Nicole’s lifetime medical journey.
Due to her severe chronic pain, TMJ, and fibromyalgia she has begun preliminary treatment. She is an active volunteer with EDS research and in EDS awareness.
She strongly believes in medical research for EDS and is optimistic new help is on it's way to help so many people suffering from this debilitating condition.
I am reaching out to Go-fund me to help with her travel expenses and medical bills.
Our goal is $6,000 and any left over money will be donated to EDS Awareness.
We need your support!
Tina Papanicolaou
I consider myself a medical research junkie; I love to read and my first choice is a medical article or any on health. But I had never read anything on EDS before so for that I thought that EDS was a made up illness for unknown medical symptoms. Yes, I confess and ask for your forgiveness!
6 months ago my daughter was diagnosed with EDS (Ehlers-Danlos Syndrome 1,2,3 type) as well as POTS, AND MCAS (mast cell activation syndrome).
My thoughts were it can't be real because this diagnose includes a long list of multi-chronic and painful symptoms including the kitchen sink! I was sure the doctors had no clue on what they were telling us. It was unreal to me! I had to take time to digest all the information and accept the truth about EDS.
This is where our medical journey has begun for our entire family.
I was ignorant to the real information and high number of people affected by EDS, POTS, MCAS and how world wide it's spread. Today I know better.
I have become an active learner and constantly researching for leaders in pain management techniques with EDS patients to help support my daugher's pain.
Where will it lead us? This I am not sure but I can only pray and hope for a miracle in EDS research!
EDS is real and know it's in my home!
I am thankful to the websites like EDS AWARENSS, CHRONIC PAIN PARTNERS, they have elevated my learning process in my new life journey to help support my daughter who is dealing with all sorts of lifetime adjustments.
In our medical search for a miracle we came in touch with Dr. Chopra, a world leader in pain management for EDS, and MCAS.
Nicole has been awarded an appointment with Dr. Chopra for this August to evaluate her condition and manage her pain symptoms for a better quality of life.
We are very grateful and excited for her appointment but required to travel to RI. Once Dr. Chopra becomes involved in Nicole's treatment, he will be a leading MD consultant in all her treatments and for all other doctors to follow with Nicole’s lifetime medical journey.
Due to her severe chronic pain, TMJ, and fibromyalgia she has begun preliminary treatment. She is an active volunteer with EDS research and in EDS awareness.
She strongly believes in medical research for EDS and is optimistic new help is on it's way to help so many people suffering from this debilitating condition.
I am reaching out to Go-fund me to help with her travel expenses and medical bills.
Our goal is $6,000 and any left over money will be donated to EDS Awareness.
We need your support!
Tina Papanicolaou
Organizer and beneficiary
Tina Papanicolaou
Organizer
Chicago, IL
Bertina Papanicolaou
Beneficiary
