Zuza's Battle Against Leukemia-AML
My name is Ellen Menefee and I have started this gofundme account on behalf of our dearest friends, Dagmara, Ryan, and their beautiful and precious 3 1/2 year old daughter, Zuza. February 24th 2015 was a day that will forever have changed their lives, tested their faith, and forced them to face a long emotional and terrifying road ahead of them with no certain end in sight. Zuza had been presenting with months of intermittent fevers, cough, weakness, bruising, and extremity pains and on February 24th Dagmara and Ryan learned that their baby girl had acute myeloid leukemia, or AML. AML is a leukemia that is second among two leukemias most commonly seen in pediatric cancers, but unlike the more common ALL seen amongst children in Zuza's age group, AML has a more treacherous treatment plan with additional chemotherapeutic drugs, broader side effect spectrum, and sadly a lower survival rate when compared with the more common ALL. The road ahead for this family is scary but with the determination and strength of both Dagmara and Ryan and the fight that three year old little Zuza is preparing to wage- they will kick CANCERS a** and make it through the darkness and come out on the other side with a healthy little Zuza.
In preparation for induction chemotherapy, including both chemo that Zuza will receive through her IV as well as into the spaces surrounding her spinal cord and brain, they will be inpatient at CHW for a period no short of five months. They will be monitoring Zuza's cancer response closely and may need to tailor their treatment directions accordingly. The goal is to get Zuza's cancer into immediate remission- and keep her in remission, which will be followed by years ahead of additional chemotherapy, and the possibilities they face of potentional radiation treatment, relapse, and/or transplant. The treatment plan in essence is uncertain now- and Dagmara and Ryan live day by day getting their little girl through the grueling side effects she experiences- while maintaining one another through the most horrific experience no parent should have to face.
Given Zuza's age and severity and gruelling nature of her cancer and treatment plan, Dagmara and Ryan are forced to take intermittent leaves from their jobs in order to care for Zuza day to day in the hospital while maintaining normalcy as best they can for their young child at home, a beautiful little one year old named Fin. They have had to adjust their lives for an indefinate period of time and must depend on the help of wonderful family and friends as they put all their energy, love, sweat, and determination in waging a battle against this ugly monster AML that threatens the life of their little girl. They will without doubt face tremendous financial struggle and emotional upheaval that no parent could prepare for or anticipate.
Please join us in helping them to face this long battle ahead and consider donating to a fund established to aid in medical expenses, child care, ongoing day to day expenses, and any additional needs they come by. Open your hearts as we all can only imagine deep down of the fear, isolation, and uncertainty these two parents face in the fight to save their little girl, Zuza. The less they have to worry about the practical things in life they can focus on getting their baby through this and CURED!
Much gratitude and many blessings to you. Both Dagmara and Ryan appreciate your generosity more than they can express during this difficult time.
Ellen and Thomas Menefee
NOW HELP US GO VIRAL!!!!!!!!!!!!!!...AND SHARE!!
For Dagmara, Ryan, Zuza, and Fin
Zuza had an amazing summer- we spent 1 month in Poland mostly for a holistic therapy horse camp. She started kindergarten - so cool.
We continue to work hard at home with a real food diet, juicing and supplements to keep her immune system in top notch shape.
SEPTEMBER is CHILDHOOD CANCER awareness month. Childhood cancer gets NO funding. But what is most frustrating to me that there are some great movements toward integrative cancer care in many cancer centers in America for Adults only. Children are still told nutrition does not matter and there is no focus on the whole child. I just recently did a lecture at a cancer camp about how much nutrition does matter and all the wonderful natural therapies to help these kids immune system.
I think about all of you and how your donations helped us more than you will ever imagine.
WE are So Very Blessed.
To our family and friends: First many blessings to all of you. Your Prayers And energy have already given our family strength in what we thought could be our darkess hour.......unfortunately we received news today that our precious little angel has a rare combination of two subtypes of AML one of which will force bone marrow transplant after 3months of daily chemo she will be hospitalized indefinitely. What I have learned about this terrible disease is that no child show ever have to endure cancer! It is truly a monster!!! What I have learned from our daughter is that she is braver and stronger than I could ever imagined a 3 yr old to be.... We found ourselves being comforted by her has she stroked our faces as we cried. We have never felt so much pain yet we have never been so strong standing together....Zuzu is surrounded by love and we will never stop fighting with her and for her....Again thank you to all who have donated and continue to send positive energy and prayer our way... Appreciate everyday, hug you children, tell your spouse they are your rock live your life with no regrets! Many many blessing to you all .... We are truly humbled, The Beine's
Not a day goes by that I don't think Zuza. My daughter, 3 1/2, went to Waukesha Montassouri prior to our recent move to Denver. I cannot imagine what you have gone through and continue to go through... Many blessings to you all. Sending positive energy and health your way. I hope Zuzu continues to be such a happy and strong little girl. Thinking of you always...
God bless you and your family Ryan. I am so happy to hear that Zuza is home. Our prayers and thoughts are with you and your family on your road to recovery and remission.
I'm praying for all of you, Ryan I remember when Dagmara was pregnant with her. You are what Dad's are role-modeled after, your warm heart and genuine love was what grabbed me when I started at AS. I must say the day Lauren told me I cried so hard in the parking lot I couldn't even start my car, I knew how she was such a miracle that finding out she was sick broke my heart. I think it was because I know you and Dagmara and how wonderful the both of you are that it hurt the most. I will continue to give you big hugs every time I see you, my prayers will keep coming your way forever!:)
http://www.youcaring.com/medical-fundraiser/help-rachael-twigg-teach-cancer-a-lesson-/315456 Help a teacher out.
Adalyn says HI to Zuza and misses her a lot. We think of your family often and send healing hugs your way. How do we get Team Zuza shirts?
Not a day goes by that I do not offer up prayers to God so that he can find the strength to give you for your fight. In the recent picture of Zuza, I see such pure innocence, and I shed tears knowing that her fight is just beginning. I lift Zuza up to God's hands knowing that he will provide her, and you, with comfort in your hours of despair, faith when there seems to be little, hope in that God's plan will see you through to the light at the end of the tunnel and love for every minute of every day. My family has added you to our weekly church blessings and you have so many praying for you. God Bless your family.
With every day our prayers are stronger and deeper for little Zuza. May God embrace her and surround her in his love and power to heal.
Beine Family~ you are in my thoughts and prayers and couldn't even imagine what your family is going through. Stay strong Zuza has great family and friends watching over her.
Prayers are with all of you. You are all very loved!!!
You are loved little Zuza!!!
You people are amazing!