Zuza's Battle Against Leukemia-AML

$52,900 of $50,000 goal

Raised by 369 people in 50 months

My name is Ellen Menefee and I have started this gofundme account on behalf of our dearest friends, Dagmara, Ryan, and their beautiful and precious 3 1/2 year old daughter, Zuza. February 24th 2015 was a day that will forever have changed their lives, tested their faith, and forced them to face a long emotional and terrifying road ahead of them with no certain end in sight. Zuza had been presenting with months of intermittent fevers, cough, weakness, bruising, and extremity pains and on February 24th Dagmara and Ryan learned that their baby girl had acute myeloid leukemia, or AML. AML is a leukemia that is second among two leukemias most commonly seen in pediatric cancers, but unlike the more common ALL seen amongst children in Zuza's age group, AML has a more treacherous treatment plan with additional chemotherapeutic drugs, broader side effect spectrum, and sadly a lower survival rate when compared with the more common ALL. The road ahead for this family is scary but with the determination and strength of both Dagmara and Ryan and the fight that three year old little Zuza is preparing to wage- they will kick CANCERS a** and make it through the darkness and come out on the other side with a healthy little Zuza. 

In preparation for induction chemotherapy, including both chemo that Zuza will receive through her IV as well as into the spaces surrounding her spinal cord and brain, they will be inpatient at CHW for a period no short of five months. They will be monitoring Zuza's cancer response closely and may need to tailor their treatment directions accordingly. The goal is to get Zuza's cancer into immediate remission- and keep her in remission, which will be followed by years ahead of additional chemotherapy, and the possibilities they face of potentional radiation treatment, relapse, and/or transplant. The treatment plan in essence is uncertain now- and Dagmara and Ryan live day by day getting their little girl through the grueling side effects she experiences- while maintaining one another through the most horrific experience no parent should have to face. 

Given Zuza's age and severity and gruelling nature of her cancer and treatment plan, Dagmara and Ryan are forced to take intermittent leaves from their jobs in order to care for Zuza day to day in the hospital while maintaining normalcy as best they can for their young child at home, a beautiful little one year old named Fin. They have had to adjust their lives for an indefinate period of time and must depend on the help of wonderful family and friends as they put all their energy, love, sweat, and determination in waging a battle against this ugly monster AML that threatens the life of their little girl. They will without doubt face tremendous financial struggle and emotional upheaval that no parent could prepare for or anticipate.  

Please join us in helping them to face this long battle ahead and consider donating to a fund established to aid in medical expenses, child care, ongoing day to day expenses, and any additional needs they come by.  Open your hearts as we all can only imagine deep down of the fear, isolation, and uncertainty these two parents face in the fight to save their little girl, Zuza. The less they have to worry about the practical things in life they can focus on getting their baby through this and CURED!

Much gratitude and many blessings to you. Both Dagmara and Ryan appreciate your generosity more than they can express during this difficult time. 

Ellen and Thomas Menefee

NOW HELP US GO VIRAL!!!!!!!!!!!!!!...AND SHARE!!


    For Dagmara, Ryan, Zuza, and Fin
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FEB 24th will be 2 years since diagnosis. Zuza is doing amazing. She is loving school and really into crafts. We have been traveling a lot as a family to beautiful and sunny places. We have been healing as a family. Zuza is now 5.5 years old and eating healthy, taking supplements, doing detox baths is just part of her daily routine. I am weeks to months away from officially going live with Zuza's Way - integrative care for pediatric cancer patients. It is my dream to help other pediatric cancer patients through and after treatment. Our Zuza is a miracle. God is good. Thank you for all you did for us during our darkest times. I will always be grateful for you. Always.
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Hello. I did not write because 2 months ago the labs scared us as her platelets dropped. We rechecked labs and everything is good. Everything is great. She is doing amazing. We are 15 months from therapy ending and 19 months from diagnosis.
Zuza had an amazing summer- we spent 1 month in Poland mostly for a holistic therapy horse camp. She started kindergarten - so cool.
We continue to work hard at home with a real food diet, juicing and supplements to keep her immune system in top notch shape.
SEPTEMBER is CHILDHOOD CANCER awareness month. Childhood cancer gets NO funding. But what is most frustrating to me that there are some great movements toward integrative cancer care in many cancer centers in America for Adults only. Children are still told nutrition does not matter and there is no focus on the whole child. I just recently did a lecture at a cancer camp about how much nutrition does matter and all the wonderful natural therapies to help these kids immune system.

I think about all of you and how your donations helped us more than you will ever imagine.

WE are So Very Blessed.

thank you.
Dagmara
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10 month labs look good. We have had fun traveling to jamaica and florida and now are looking forward to spring and summer. Zuza loves her weekly dance class and enjoys doing lots of crafts at home.
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8 months post chemo labs look great. We are all doing well except for the week around labs it seems we all go nutty until we see the labs are wonderful. Zuza is skiing once per week with dad and taking dance classes 2x per week. We are gearing up to go on vacation to the sun and ocean again which will be healing again. FEB 24th is the 1 year anniversary of Zuza's diagnosis.
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Read a Previous Update
Ryan Beine
50 months ago
1
1

To our family and friends: First many blessings to all of you. Your Prayers And energy have already given our family strength in what we thought could be our darkess hour.......unfortunately we received news today that our precious little angel has a rare combination of two subtypes of AML one of which will force bone marrow transplant after 3months of daily chemo she will be hospitalized indefinitely. What I have learned about this terrible disease is that no child show ever have to endure cancer! It is truly a monster!!! What I have learned from our daughter is that she is braver and stronger than I could ever imagined a 3 yr old to be.... We found ourselves being comforted by her has she stroked our faces as we cried. We have never felt so much pain yet we have never been so strong standing together....Zuzu is surrounded by love and we will never stop fighting with her and for her....Again thank you to all who have donated and continue to send positive energy and prayer our way... Appreciate everyday, hug you children, tell your spouse they are your rock live your life with no regrets! Many many blessing to you all .... We are truly humbled, The Beine's

+ Read More
Lindsay Manchester Weatherly
41 months ago

Not a day goes by that I don't think Zuza. My daughter, 3 1/2, went to Waukesha Montassouri prior to our recent move to Denver. I cannot imagine what you have gone through and continue to go through... Many blessings to you all. Sending positive energy and health your way. I hope Zuzu continues to be such a happy and strong little girl. Thinking of you always...

+ Read More
Anneliese Pratt
45 months ago

God bless you and your family Ryan. I am so happy to hear that Zuza is home. Our prayers and thoughts are with you and your family on your road to recovery and remission.

+ Read More
Margaret Hafemann-Falk
47 months ago

I'm praying for all of you, Ryan I remember when Dagmara was pregnant with her. You are what Dad's are role-modeled after, your warm heart and genuine love was what grabbed me when I started at AS. I must say the day Lauren told me I cried so hard in the parking lot I couldn't even start my car, I knew how she was such a miracle that finding out she was sick broke my heart. I think it was because I know you and Dagmara and how wonderful the both of you are that it hurt the most. I will continue to give you big hugs every time I see you, my prayers will keep coming your way forever!:)

+ Read More
Sara Hockey
49 months ago

http://www.youcaring.com/medical-fundraiser/help-rachael-twigg-teach-cancer-a-lesson-/315456 Help a teacher out.

+ Read More
Colleen Christensen
49 months ago

Adalyn says HI to Zuza and misses her a lot. We think of your family often and send healing hugs your way. How do we get Team Zuza shirts?

+ Read More
Jennifer Reynolds McLeod
50 months ago

Not a day goes by that I do not offer up prayers to God so that he can find the strength to give you for your fight. In the recent picture of Zuza, I see such pure innocence, and I shed tears knowing that her fight is just beginning. I lift Zuza up to God's hands knowing that he will provide her, and you, with comfort in your hours of despair, faith when there seems to be little, hope in that God's plan will see you through to the light at the end of the tunnel and love for every minute of every day. My family has added you to our weekly church blessings and you have so many praying for you. God Bless your family.

+ Read More
Dan Teska
50 months ago

With every day our prayers are stronger and deeper for little Zuza. May God embrace her and surround her in his love and power to heal.

+ Read More
Amy Bauer
50 months ago

Beine Family~ you are in my thoughts and prayers and couldn't even imagine what your family is going through. Stay strong Zuza has great family and friends watching over her.

+ Read More
Anne Wanggaard
50 months ago

Prayers are with all of you. You are all very loved!!!

+ Read More
Nicole Joy
50 months ago

You are loved little Zuza!!!

+ Read More
Ellen Menefee
50 months ago

You people are amazing!

+ Read More

$52,900 of $50,000 goal

Raised by 369 people in 50 months
Created February 28, 2015
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$50
Anonymous
39 months ago
$10
Anonymous
42 months ago (Monthly Donation)
$25
Anonymous
43 months ago
$10
Anonymous
43 months ago (Monthly Donation)
$20
Anonymous
44 months ago
$10
Anonymous
44 months ago
SS
$15
Sammy Schneiker
44 months ago

We are both out of the hospital now! And let's keep it that way :) I hope you are having a good time with your friends and family at home!

$10
Anonymous
44 months ago (Monthly Donation)
$200
Anonymous
45 months ago
Ryan Beine
50 months ago
1
1

To our family and friends: First many blessings to all of you. Your Prayers And energy have already given our family strength in what we thought could be our darkess hour.......unfortunately we received news today that our precious little angel has a rare combination of two subtypes of AML one of which will force bone marrow transplant after 3months of daily chemo she will be hospitalized indefinitely. What I have learned about this terrible disease is that no child show ever have to endure cancer! It is truly a monster!!! What I have learned from our daughter is that she is braver and stronger than I could ever imagined a 3 yr old to be.... We found ourselves being comforted by her has she stroked our faces as we cried. We have never felt so much pain yet we have never been so strong standing together....Zuzu is surrounded by love and we will never stop fighting with her and for her....Again thank you to all who have donated and continue to send positive energy and prayer our way... Appreciate everyday, hug you children, tell your spouse they are your rock live your life with no regrets! Many many blessing to you all .... We are truly humbled, The Beine's

+ Read More
Lindsay Manchester Weatherly
41 months ago

Not a day goes by that I don't think Zuza. My daughter, 3 1/2, went to Waukesha Montassouri prior to our recent move to Denver. I cannot imagine what you have gone through and continue to go through... Many blessings to you all. Sending positive energy and health your way. I hope Zuzu continues to be such a happy and strong little girl. Thinking of you always...

+ Read More
Anneliese Pratt
45 months ago

God bless you and your family Ryan. I am so happy to hear that Zuza is home. Our prayers and thoughts are with you and your family on your road to recovery and remission.

+ Read More
Margaret Hafemann-Falk
47 months ago

I'm praying for all of you, Ryan I remember when Dagmara was pregnant with her. You are what Dad's are role-modeled after, your warm heart and genuine love was what grabbed me when I started at AS. I must say the day Lauren told me I cried so hard in the parking lot I couldn't even start my car, I knew how she was such a miracle that finding out she was sick broke my heart. I think it was because I know you and Dagmara and how wonderful the both of you are that it hurt the most. I will continue to give you big hugs every time I see you, my prayers will keep coming your way forever!:)

+ Read More
Sara Hockey
49 months ago

http://www.youcaring.com/medical-fundraiser/help-rachael-twigg-teach-cancer-a-lesson-/315456 Help a teacher out.

+ Read More
Colleen Christensen
49 months ago

Adalyn says HI to Zuza and misses her a lot. We think of your family often and send healing hugs your way. How do we get Team Zuza shirts?

+ Read More
Jennifer Reynolds McLeod
50 months ago

Not a day goes by that I do not offer up prayers to God so that he can find the strength to give you for your fight. In the recent picture of Zuza, I see such pure innocence, and I shed tears knowing that her fight is just beginning. I lift Zuza up to God's hands knowing that he will provide her, and you, with comfort in your hours of despair, faith when there seems to be little, hope in that God's plan will see you through to the light at the end of the tunnel and love for every minute of every day. My family has added you to our weekly church blessings and you have so many praying for you. God Bless your family.

+ Read More
Dan Teska
50 months ago

With every day our prayers are stronger and deeper for little Zuza. May God embrace her and surround her in his love and power to heal.

+ Read More
Amy Bauer
50 months ago

Beine Family~ you are in my thoughts and prayers and couldn't even imagine what your family is going through. Stay strong Zuza has great family and friends watching over her.

+ Read More
Anne Wanggaard
50 months ago

Prayers are with all of you. You are all very loved!!!

+ Read More
Nicole Joy
50 months ago

You are loved little Zuza!!!

+ Read More
Ellen Menefee
50 months ago

You people are amazing!

+ Read More
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