Hope for the Future
I was diagnosed and treated for Autoimmune Hepatitis in 2008. Despite seeing multiple specialists I never responded to treatment. I now have decompensated liver failure. Conventional medicine only offers me a liver transplant. Which I have decided not to do.
In August I took a turn for the worse. We were talking end of life and hospice. I was in the hospital every two weeks for months with hepatic encephalopathy. Which is basically a coma that left in will kill me as my brain marinates in ammonia my liver can no longer get rid of.
However my mother found a doctor in a city 600 miles away. She is the perfect doctor for me. She diagnosed me as having Lyme's and is treating me for that as well as several coinfections and other deficiencies which could be why I never responded to treatment.
We have been healing my liver with alpha lipoic and glutithione infusions every month, which is an essential part of my recovery. I am slowly regaining my health. My numbers are improving as well as my color, energy and my appearance. I have hope, but the treatments aren't covered by insurance. Or the expense of the trips and my copay on all my hospital bills already buried me. The only disability or funds I get at the moment amounts to 350 a month.
I hope to get to the place where I can work again. But until then I am a burden. The best temporary solution I can arrive at is spreading the cost of treatments and supplements and trips among those who chose to help.
Thank you for reading my story and for anything you may wish to give. Regardless if you would like more information to perhaps help a loved one or yourself in a similar sounding situation. Or just an update feel free to leave a message and I would love to hear from you. The greatest healing therapy is friendship and love.
I want to take a moment to thank all of you for your support, calls, texts, cards, letters, prayers and thoughts! They mean a lot!!! Rebecca's address is still the same as the last post. Love to all! Merry Christmas and Happy New Year!
This is Naomi again. Making an update per Rebecca's request. She has been in University of Washington Hospital for about a month now. She has moved out of ICU, into a more private room with a few less interruptions. Due to the infection she had her liver has quit working completely and her kidneys were shutting down. So they were giving her dialysis 6 hours per day in ICU but now are down to 4 to remove extra fluids and the toxins from her body. She is off stand by and back on the transplant list with one other person ahead of her. She has lost a lot of the extra fluids and is down to 140. She is pretty weak but has made huge strides in sitting up for long periods of time and stood up today 3 times!! We want to thank you again for your thoughts and your prayers. She sends her love. If you would like to write her as the days do get long there. Her address is
University of Washington Medical Center, 1959 NE Pacific St, Seattle WA 98195, Patient: Rebecca Jones, 4 Room 4308 SE. Love to all. Naomi