Wiedemann-Steiner Syndrome Warriors
Hi! I am a private duty caregiver for a family and the little girl I take care of was just diagnosed with this syndrome this past Thursday! Her family and I would love more information on this and interested in the clinic!! I can be reached at firstname.lastname@example.org. Thank you!!
Hallo. Mein Tochter 10 Jahre alt und hat WSS Syndrom. Ist jemand von Thüringen...????dan meld dich, !!!!
Hi, my son is currently being tested for this. He is almost 10 and I'm almost positive this is what he has. He look so much like the pictures I have seen and has similar symptoms. I would love to connect with some of you for questions and support. We are in the process of scheduling our second round of genetic testing. He has the anomaly in the gene identified as responsible for the genetic disorder. His father and I are awaiting genetic testing for ourselves.
Is there a group to join for WSS?
Hi, My 7year old son has just been diagnosed with WSS and I would to connect with other parents.
My beautiful, soon to be eighteen year daughter, Shayla was just diagnosed with WSS today. Is there a fb group I could be invited to? If not, I would like to start one!
Chris Straw, I sent you a fb message that I think went to your "other" folder. Welcome to the WSS family!
Just got a diagnosis for my son today of WSS who is 10 months old id love to connect with these other moms!!!
Hello, I'm the founder of Kabuki Syndrome Network. I couldn't find contact information for WWS. Could someone please contact me at email@example.com
Kayleigh, I just sent you a message via fb. It may go to your "other" folder.
Hi all! I would also love to make contact. My 6 year old daughter has recently been diagnosed with WSS
Catherine I have reached out to you on Facebook, please check your others folder
Hi I would love to make contact . Our 9 year old son has just been diagnosed with WSS