42
42
10

Mother of 4 Battling Breast Cancer

$2,905 of $10,000 goal

Raised by 44 people in 9 months
After a lot of self reflection, I've decided to sallow my pride and ask for help.
I am a single mother of four girls. My oldest passed away when she was 8 years old (she should be 19 now) from a brain tumor. My youngest daughter has Down syndrome.
In 2012 I was diagnosed with breast cancer. I had a lumpectomy which left positive margins followed by a mastectomy which still left positive margins. In April of this year I noticed a lump on the other side. In May I found out I had breast cancer again. This time I would need a mastectomy on the other side and a chest wall resection on the side from 2012. I've traveled 3 hours each way to UF Health's Cancer Center to assure the best possible outcome, (I did not have a good experience being treated locally in 2012). At UF Health they did genetic testing which revealed I have a mutation in a gene that basically corrects and controls cells. This mutation will increase my chances of developing all kinds of cancer.
This is the most devastating part, I could have passed this gene onto my children. My oldest daughter who passed away from a brain tumor most likely had the gene. I feel a great amount of guilt daily about this. Two of my daughters came back negative for the gene. Although my youngest, my little angel with downs tested positive. This is a rare genetic mutation, many doctors have never heard of it much less treated it. We are currently trying to establish long term care somewhere closer than UF Health in Gainesville.

Here's where I'm asking for your help.... Due to the unexpected medical expenses, gas, tolls, hotel rooms, food, and wear and tear on my van (I just received an estimate from Honda for over $5000 in repairs) I am financially strapped.
Normally I have a garage sale every year to raise money to purchase toys for the children in the hospital during the holidays in memory of my daughter. I would still love to do this BUT I need to raise money to cover my financial obligations and prepare for on going treatment. I feel very guilty asking for help again. Many wonderful people helped us tremendously when my oldest daughter was fighting cancer years ago. I honestly hate to ask for help again but after swallowing my pride, I know I can't do this alone.
+ Read More
Since I updated last, I had several MRI's. On Dec. 7th I will get the results. Although I still need MRI's of all of my extremities. The normal procedure would take about 8 hours for both my arms and legs. They are currently working on a new protocol for all four in less time. That MRI should be scheduled soon. The two biopsies the dermatologist took came back benign. I have one more biopsy that needs to be done on the suspicious spot.

Alexis was sedated and had her full body MRI, ultrasounds and blood work. We met with her oncologist yesterday. The MRI of her brain came back clear, she has a clusters of swollen lymph nodes just under her right collar bone and another clusters near her right kidney. There is also some fluid or narrowing of her spinal cord near C5-7. They are now sending the scans to a neurosurgeon to review. Alexis will have two more ultrasounds by Dec. 13th, if the lymph nodes are the same size or larger she will need a surgical biopsy before Christmas. The blood work the oncologist ordered seems to be lost. They are still trying to locate it before we have to do the numerous labs again. Her oncologist was hoping the blood work would helps us understand what's going on with lymph nodes. I hope they find the blood work soon, Alexis is going through enough and does not need to repeat this too.
We are trying to decide if Alexis will return to school or stay home until after the ultrasound. With all the viruses going around and many sick children still attending school, she could catch a virus and that could contribute if not cause her lymph nodes to increase in size. We do not want yo do the surgical biopsy unless it is needed. We are working with her doctors and trying to figure out what is best for Alexis.

We hope everyone had a wonderful Thanksgiving and enjoys the holiday season. Thank you for checking on us.
+ Read More
It’s been awhile since my last update. We have been busy, many doctors appointments, Halloween and two birthdays. Amanda is now 14 and Alexis turned 12.
Last week I saw the dermatologist who found two concerning spots. They were removed and sent to pathology. I will hopefully get the results by the end of next week.
Today we are at the neurologist for two of my girls. On Friday I begin my whole body MRI again. Ugh! I will be scanned for about 3 hours on Friday. Then I get to go back on Saturday morning for another 2 1/2 hours of scanning. I will be very happy to get that over with and pray they don’t find anything.
On Tuesday, it’s Alexis’s turn. She will be sedated then have her whole body MRI, two ultrasounds and bloodwork.
Then on Thursday I will see my oncologists for the results of the MRI and the biopsy of the “suspicious” spot.
And then on Friday we are back in Orlando to see the GI to find out why Alexis is randomly vomiting and not digesting her food properly.
We are all looking forward to the holidays. We need a little time away from the doctors, hospitals and procedures. It will be nice to do something, anything else.
Please keep out family in your prayers. And if you could share our GoFundMe page, we would greatly appreciate it. The medical, gas, tolls, and van repairs are adding up quickly. Thank you for your love and support!
+ Read More
Suspicious .... Not the words I wanted to hear from my oncologists.
On Wednesday, I saw my oncologists and showed her the new tiny bump I have. She is ordering a full body MRI to make sure this is not a metastasis from cancer somewhere else in my body. Due to my genetic mutation I have a high risk of developing cancer anywhere. I just had a full body MRI in June. It typically takes 5+ hours, I am Not looking forward to it.
I explained my history with my imagining appearing benign and asked her if we could biopsy the spot anyway. My oncologist agreed. She will do it at my next appointment in about 3 to 4 weeks, I should find out my appointment date tomorrow. She is hoping we will have the MRI done before then (depending on how quickly my insurance authorizes the full body scan), regardless she will do the biopsy then.
So now I have to wait and wonder if it's really bad or nothing at all. I'm trying to be positive but to be honest I am very worried. Please keep us in your prayers. Thank you!
+ Read More
We saw Dr Blumenfeld today for Alexis's six week follow up since surgery. Her eyes look great. They are still healing but so far so good.
I wish I had video.... After her appointment we got into the elevator and Alexis started jumping up and down. When I asked why she was doing that, she said "like Elf, mommy", "come on mommy it's fun, do it!". She jumped up and down, laughing so hard until we reached the first floor.
Now I'm not sure I will start jumping up and down elevators but I think I'm going to follow my daughters lead and try to relax a bit and find joy in the simplest things. Today was a good day!
+ Read More
Read a Previous Update

$2,905 of $10,000 goal

Raised by 44 people in 9 months
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$175
Anonymous
4 months ago
MS
$20
Michael Steuer
7 months ago
$25
Catalina Schreader
8 months ago
DC
$100
Derinda Clark
8 months ago
TR
$25
Terry Rushbrook
8 months ago
$25
Hali Epstein Panzak
8 months ago
JL
$100
Jim Lindsay
8 months ago
JN
$100
Jennifer Nifakos
9 months ago
MP
$25
Michelle Paradise
9 months ago
$25
Julianti Albrecht
9 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.