Mobility for Morgan Faid
Donation protected
Hi! I'm Morgan. I'm a LARPer, a SCAdian, a crafter, and generally, an active person. I like to get out and do things. I'm an active staff member of the Barony of Stonemarche, and an officer, and I work every year at making Market Day at Birka happen. I LARP, and help staff a LARP with friends I support. All of these things require a lot of movement. That mobility and activity has been slowly eroding over the last few years.
Around age twenty-eight I started experiencing dizziness, light headedness, sudden feverish sweats and faint feeling. I had constant overwhelming joint pain, dislocations, and random rashes and swelling under my skin.
It took until my early thirties to get a diagnosis. I have Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia, and Mast Cell Activation Syndrome. The long and short of that whole mess is that I have joint instability, problems regulating my blood pressure, temperature, and balance, and I get randomly allergic to things.
The last few years I've been getting by with a manual chair on occasions where I need the option to be sitting, or where standing for long stretches isn't possible for me. It isn't ideal. I've known it wouldn't be forever, but recently I used it to attend the "Yes on 3" in support of my MA friends. I left with a palmar dislocation of my right thumb and thoracic outlet syndrome in my left shoulder/chest. Using my chair in any environment which isn't flat and indoors is clearly not working.
I've been saving for an electric, and researching the best options for outdoor chairs. However, I've come to realize it's not going to be an option in the next year or two at the rate I'm able to save. I would really like to regain my participation and mobility before then.
Sadly, my insurance will not help at all, and my FSA isn't big enough to cover the cost. Anthem has offered me a standard Invacare hospital transport manual wheelchair instead, which I really can't use. It's far worse than my manual chair and would mean relying on someone else for all my mobility at LARPs, SCA events, and so on.
My aim is to get the Eagle HD , foldable so I can fit it in someone else's car and use it both indoors and outdoors. It's transportable by plane and has two batteries that sit in the armrests (the long silver bars) so I'm never without a charge. I've asked only for what I haven't already saved, myself.
My winter is full of events I'd really like to use such a chair at. I'd also like to be able to do errands and things out of the house without tiring so easily or stressing constantly about tiny curbs and hills. If you've got something to spare, I'd be forever grateful for a donation to help me get my mobility back for activities, LARPs, SCA events, shopping, errands, and more.
Around age twenty-eight I started experiencing dizziness, light headedness, sudden feverish sweats and faint feeling. I had constant overwhelming joint pain, dislocations, and random rashes and swelling under my skin.
It took until my early thirties to get a diagnosis. I have Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia, and Mast Cell Activation Syndrome. The long and short of that whole mess is that I have joint instability, problems regulating my blood pressure, temperature, and balance, and I get randomly allergic to things.
The last few years I've been getting by with a manual chair on occasions where I need the option to be sitting, or where standing for long stretches isn't possible for me. It isn't ideal. I've known it wouldn't be forever, but recently I used it to attend the "Yes on 3" in support of my MA friends. I left with a palmar dislocation of my right thumb and thoracic outlet syndrome in my left shoulder/chest. Using my chair in any environment which isn't flat and indoors is clearly not working.
I've been saving for an electric, and researching the best options for outdoor chairs. However, I've come to realize it's not going to be an option in the next year or two at the rate I'm able to save. I would really like to regain my participation and mobility before then.
Sadly, my insurance will not help at all, and my FSA isn't big enough to cover the cost. Anthem has offered me a standard Invacare hospital transport manual wheelchair instead, which I really can't use. It's far worse than my manual chair and would mean relying on someone else for all my mobility at LARPs, SCA events, and so on.
My aim is to get the Eagle HD , foldable so I can fit it in someone else's car and use it both indoors and outdoors. It's transportable by plane and has two batteries that sit in the armrests (the long silver bars) so I'm never without a charge. I've asked only for what I haven't already saved, myself.
My winter is full of events I'd really like to use such a chair at. I'd also like to be able to do errands and things out of the house without tiring so easily or stressing constantly about tiny curbs and hills. If you've got something to spare, I'd be forever grateful for a donation to help me get my mobility back for activities, LARPs, SCA events, shopping, errands, and more.
Organizer
Morgan Leander Blake
Organizer
Hillsborough, NH
