Migraines Suck: Jacque Needs Relief
We made our goal and are waiting to throw our donor party on Saturday, March 28st, 2015 at 3pm until whenever, maybe even Sunday. We never know.
*** MARK YOUR CALENDAR + SAVE THE DATE! ***
Hello friends and family.
As you may know, my wife Jacque has suffered chronic migraines for years (that's her picture as a kid with no migraines at the top as the main image). Over 20 years. It has been unbelievable that she has been able to have much of a life and we've all seen what she's gone through and how it affects her and our family.
I am asking you to consider helping us with funding a life-changing operation for her migraines. With YOUR help, we can give her smile back.
Some background on how we got here. Remember this is a 20+ year journey, so I'm leaving a lot out:
- Childhood migraines became worse and worse over the years.
- We started with a neurologist for years. No luck.
- Did all the MRI-style stuff, checked for tumors, CAT scan, changed diets and all that stuff.
- Followed advice from quite a few friends that suggested remedies.
- Went to a migraine center in Houston. They said "Come back when you have more insurance." Really.
- Eventually started going to Pain Management Centers. Tried everything from Morphine to OxyContin.
- Jacque became physically addicted to OxyContin. 6 months of detox.
- Moved to a new Pain Management Center. After years... nothing more than pain meds like Hydrocodone.
- They recommended a procedure we couldn't afford ($50,000.00+) and our insurance wouldn't cover it.
- Left them to be treated by our PCP.
- Jacque saw an ad for the Migraine Treatment Center. Similar thing to the above procedure, but THEY TAKE OUR INSURANCE!
- They also said the price was more than we had expected (over $60,000 now) and is increasing significantly next year so we had to do it immediately.
Now that we have started this journey with the Omega Procedure at the Migraine Treatment Center, we have made some amazing strides that indicate to us that the Omega Procedure is going to be successful:
- We went through all of their intake questions, talked to their doctors and their finance people.
- YOU helped raise enough money for our first procedure!!!!!! Thank you, Thank You, THANK YOU!
- We had the "Trial" system surgery yesterday, where they implanted electrodes to simulate the Omega device. (12/9/14).
- It is an AMAZING success. NO MIGRAINES!
On Friday, she goes back into surgery to remove the Trial device (you can see it taped on her head, above). Then we return home while she heals for approximately 2-3 weeks. She isn't supposed to MOVE during that time and she WILL have her migraines return. Ugh.
After she heals, we come back for the real implant surgery where they push the real leads up her back and around her head. It's not nearly as simple as what was just done and we expect THREE MONTHS of recuperation from that.
Here is a rendering of what she can expect when the device is in her head and under her skin. Yes, the battery is implanted, too, and requires external charging "through" the skin!
There are TWO procedures left. Removing the Trial device, which allowed her to know the real device should work as expected, and the implantation of the final unit itself.
Each of these procedures has costs associated with them. When we started, we estimated that we would need $6500 for everything, but as we have started going down this road, we have realized that there are more bills coming from additional providers, such as the anesthesiologist and who knows what else.
We simply do not have that kind of money. I mean, who does?!?
If you are so inclined, our family would appreciate it if you could give any amount so we can get closer to our goal. If for some reason we either earn more money than we ask for or need, we'll put it toward the kids' college fund or something that benefits THEM.
Below is more information about the whole procedure with links to learn more. I think it would be good if you saw how this affects people. It is life-changing and I want to give this to Jacque so badly.
We are asking everyone to SHARE this page on social media, whether they can donate or not. It is a huge help just getting the word out.
What is the Omega Procedure? In short, it is a long-term, adjustable, reversible and drug-free solution for chronic migraine pain. The Omega migraine procedure is an innovative surgical procedure that provides long-lasting relief for people who suffer from chronic, debilitating migraine pain. The procedure is based on neurostimulation, which has been used for more than 40 years to treat chronic pain. Patients who respond to neurostimulation experience an 80% to 100% reduction in migraine pain. Learn more at: https://migrainecenters.com/omega-procedure/
Where is the Dallas Migraine Treatment Center? https://migrainecenters.com/locations/dallas-migraine-treatment-center/
Can I learn more about the procedure? Just watch this video! https://www.youtube.com/watch?v=XopkMtUXdkk
Is there MORE I can learn about this procedure? Sure! Just sign up for a webinar here: https://migrainecenters.com/seminars/
What is neurostimulation? Neurostimulation uses light electrical currents to activate or modulate neurons. Physicians and medical researchers have successfully used the approach for more than 40 years, and now are able to use neurostimulation to treat chronic migraine pain. For migraine sufferers who have not found relief with prescription migraine medications or other treatments, neurostimulation can be a long-term solution. More here: https://migrainecenters.com/migraine-pain/treatment-options/neurostimulation/
Thank you for taking a look and considering helping. Updates are posted here as they happen. Please follow our journey to become, hopefully, pain-free and help Jacque regain her smile!
The Cain Family
Billy, Jacque, Tuesday and Matthew
This info is a bit old, so apologies for that.
Jacque's device is, in fact, broken in one quadrant. Her rear right quadrant of her head is malfunctioning and the helpful people at St. Judes reset the other three quadrants and turned off the 4th malfunctioning quadrant. The only answer to it is to completely replace the entire system. This, of course, requires an entire new operation and an installation of a whole new system. Originally it would have cost $77,000.00 without insurance.
We are unsure why the fourth quadrant malfunctioned but it is not where her headaches are concentrated, so we've chosen not to pursue having it fixed especially considering the five-year lifespan which is nearly halfway over. X-rays were taken and nothing seemed to be amiss, so the fourth quadrant is a mystery.
The doctor responsible for perhaps fixing the fourth quadrant is not on our insurance and was utterly unaffordable. Luckily this quadrant is of the least concern to her. You might ask, how much would that Dr. cost us? We couldn't afford it and we don't even remember how much it was. Now we're just concerned with replacing it once it's expired its fifth year.
Jacque says "The device is expected to last for 5 years and if I had to choose a quadrant to malfunction it would have been the one that malfunctioned. I still am getting great relief from this strange contraption. It must still be augmented with drugs and pain medicine but it is life-saving."
We really don't know what's going to happen once we reach the end of this product's life cycle. I don't know if our current insurance will cover a replacement, but odds are that it won't. This journey is far from over but we're going to try to keep fighting.
Again, thank you all for your support and concerns, and if anyone wants to contact us with questions about this device and relief, please let us know.
We called St. Jude and set up an appointment to have it looked at. She had to live without the zapper, as we've come to call it, for a few weeks while we waited for the appointment.
I should mention that they do all maintenance appointments free.
Turns out that one of her "leads" (the one in her back right) was shorting out, essentially, so we needed to get her an x-ray to figure out what's really happening. Apparently, the paddle cannot control the device at all if there is a short. In the meantime the representative turned that quadrant off so she can use the other three until we can learn more.
She says it is very distracting, to say the least. Like a piece of the puzzle is missing.
Last week, we went to the doctor only to find out their x-ray machine had broken the day before. So now we're waiting for a new appointment next week.
I fear that we may have to take her back up to Dallas for another operation. No idea how that's going to work or anything else, but I wanted to let everybody know what was going on since this has been the most amazing life-changing experience we had never expected to have, and you have all come along for the ride.
More as it becomes clear.
The Austin Clubhouse showed this video at their Annual Fundraiser Luncheon and it almost DOUBLED their goal.
So, your donations to Jacque's migraine treatment have allowed her to return to the Clubhouse and to get a job. And they have multiplied greatly and made a huge impact to many, many people that need the help just as badly.
Congratulations, you are saving the universe! We are so blessed to have such great friends!!
For the family, it's been stress that we never wanted to recognize. Now that the migraine pain is lifted, we're having family time. Just that alone is such a difference and blessing. The kids WANT to sit together with us and get that family vibe we haven't had in a long time. Bizarre, honestly. It's also helping us get to more issues that were kind of boiling under the surface, and that's amazing to see. Having had more time to spend with the family over the last few years, it's great to watch this transformation. Just phenomenal.
I am so very glad this is working for Jacque. Going back to her old self must feel like a long overdue homecoming after a tour through hell. Hugs to her, you and the kids. Enjoy!
Yasmine, thank you for your comment! We left a lot out on purpose because I wanted to keep this entire saga focused upon "Western" medicine. Jacque has CPTSD from childhood trauma (no details here), which means that she has a HUGE problem with people she doesn't know well touching her or manipulating her body, much less putting needles in her skin. Even a super close friend that is a massage therapist was unable to make any progress because her body tightens during that type of manipulation. There is no point in debating the efficacy of alternative medicine here, but I welcome a discussion on my Facebook wall. I have many practitioners that can share their thoughts as well.
Medical Cannibus is not available in Texas. :(
Have you tried medical cannabis?
We have tried quite a few things recommended by friends and they were not successful. Others would exacerbate her PTSD, so they were not possible.
I have read your commentary above and you say you have left alot out, does this include chiropractic work on your wife's spine? Putting something into your body is simply not something you should consider lightly, which I am absolutely sure you have thought of that. Alternative medicines have the same if not greater successes, yeah I can hear it now, rubbish! yeah but you know what it takes two to tango on the alternative medicine side, yep you have to keep doing it and you have to exercise. Good luck whichever way you go.