Messiah The hemophilia warrior. Help him fight
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This is Messiah Aiden Smith, the love of my life. Messiah was diagnosed with hemophilia A severe with inhibitors. Hemophilia A, also called factor VIII (FVIII) deficiency is a genetic disorder caused by missing or defective factor VIII, a clotting protein. 18 months ago, Messiah who had just been learning to walk fell and hit his little head. As a result, he suffered a major subdural head bleed and had right side paralysis from a stroke.
He was rushed from the Turks & Caicos Islands to doctors hospital in the Bahamas to undergo a lifesaving craniotomy. They saved his life! We spent 6 weeks in the icu/ccu and I never left his bed side! After getting his seizures under control he began his physical therapy and occupational therapy to help get him back on his feet again.
Eventually, Messiah began to develop inhibitors which prevented the factor VIII treatment from working to form a clot to stop bleeding.
We were flown from the Bahamas to Canada where he received more specialized care, extensive physical therapy and a cranioplasty at SickKids Hospital.
We’ve been through a lot! He’s only two years old, but my sweet baby worked hard to get on his feet and survive his brain injuries. We found a home and a place of comfort while living at the @ronaldmcdonaldcharityhousetoronto. Our home away from home❤❤❤❤♥❤❤❤. It was tough to live there while seeing other children come and go, while Messiah and I were placed there for over a year.
Eventually, it was our time to leave and the Turks & Caicos sent us to the UK to start over where he will continue to receive treatment. Unfortunately, things have not been going as expected. Since here 12/12/18, Messiah has been receiving treatment and care from the Hospital… but we are homeless. We’ve been running into a lot of obstacles due to the fact that I am not a citizen of the UK although Messiah was issued a British passport and documents from the Turks & Caicos.
We need help raising money to get a place and supplies while we get things sorted. We are open to donations… a temporary place to lay our heads… resources… anything helps! Everyone he meets he leaves an imprint on them, so please look in your heart and give imagine it were your son.
He was rushed from the Turks & Caicos Islands to doctors hospital in the Bahamas to undergo a lifesaving craniotomy. They saved his life! We spent 6 weeks in the icu/ccu and I never left his bed side! After getting his seizures under control he began his physical therapy and occupational therapy to help get him back on his feet again.
Eventually, Messiah began to develop inhibitors which prevented the factor VIII treatment from working to form a clot to stop bleeding.
We were flown from the Bahamas to Canada where he received more specialized care, extensive physical therapy and a cranioplasty at SickKids Hospital.
We’ve been through a lot! He’s only two years old, but my sweet baby worked hard to get on his feet and survive his brain injuries. We found a home and a place of comfort while living at the @ronaldmcdonaldcharityhousetoronto. Our home away from home❤❤❤❤♥❤❤❤. It was tough to live there while seeing other children come and go, while Messiah and I were placed there for over a year.
Eventually, it was our time to leave and the Turks & Caicos sent us to the UK to start over where he will continue to receive treatment. Unfortunately, things have not been going as expected. Since here 12/12/18, Messiah has been receiving treatment and care from the Hospital… but we are homeless. We’ve been running into a lot of obstacles due to the fact that I am not a citizen of the UK although Messiah was issued a British passport and documents from the Turks & Caicos.
We need help raising money to get a place and supplies while we get things sorted. We are open to donations… a temporary place to lay our heads… resources… anything helps! Everyone he meets he leaves an imprint on them, so please look in your heart and give imagine it were your son.
Organizer and beneficiary
GM GM
Organizer
Darren Smith
Beneficiary
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