Mollie's Medical Journey

$3,820 of $4,000 goal

Raised by 60 people in 26 months


19739454_1492545286.5458_funddescriptionOur story begins a few years ago...

Our family of 3 was going to be a family of 4 and we couldn't be  happier. The 3 of us found out that our new addition would be a girl! I was beyond excited and I'm pretty sure her dad and big brother were too. After the sonogram I was called back to talk to the doctor (Routine right? No worries.) I didn't imagine anything would be wrong. I did everything in my power to be the healthiest version of myself so that my baby would be also. So when I was told that my baby girl had a cleft lip and a rotated heart it felt almost indescribable. If you're a parent of a child with a birth defect, you know what I'm talking about. Scared, denial, grieving in a way. We went through an array of tests, ups and downs. We found out that Mollie had several holes in her heart, also known as VSD.

Fast forward to birth that is another story in itself (who's isn't right). We were under the impression Mollies holes had closed. We were so excited for that, and that she could feed pretty normally! She was beautiful. Another blow came the following day when we were told that she did still have multiple VSDs, one being moderate. She had issues with gaining weight for various reasons related to her heart defect and her submucous cleft palate. She was closely followed throughout her first year by an amazing group at Children's Hospital, Pittsburgh. (Cardio, Neuro, Cleft clinic) Mollie had lip repair surgery at 6 months. Her first year was scary but we absolutely felt so blessed to have her and wouldn't trade her for the world. We made it through together.

At her one year cardio appointment her M.D. felt the need to present her case in front of a team of cardiologists so that they could make a decision as to weather she would require surgery or not. Thank God the answer at one and at two years old was NO!

Mollies has been a normal functioning little girl that melts our heart and tests our patients. I was finally comfortable with the cardiology appointments because I could see how well she is doing. When we got the news that one of her valves was under stress due to the abnormal blood flow in her heart I was blown away. I was in denial in a way. Again, Mollie was presented in front of the pediatric cardiology team in Pittsburgh. This time it wasn't good news. She is scheduled for open heart surgery the end of May. The surgery isnt a guaranteed fix but the theory is that preventing the backflow of blood through the VSD will put less stress on the valve leaflet.

Im terrified. We love her so much. Her dad and I will both be on unpaid FMLA for her surgery and recovery, me for a month or more and him for 2 weeks. I left my job as a long term care nurse to do pediatric private duty less than a year ago (hence the no paid leave). I love what I do, but during Mollie's recovery I need to be home full time to nurse her. I hated the idea of asking for help, it's hard to even accept help- let alone ask. I just know that we are going to be in a tough place and if this were to happen to someone else, I know I would want to help that family. If you can donate monetarily, offer prayers, or words of encouragement it is appreciated more than you know.  If there is any extra money avaliable after our ordeal, we plan to continue to donate to children's hospital of Pittsburgh so that maybe another family can worry about their child and not so much finances.

**Update** Heart surgery is postponed because Mollie will need neurosurgery first. Yet another peice of the puzzle and another devastating blow.  We  found out that Mollie has fused vertebrea in her neck that is causing extra movement in the non fused vertebrae. This came as a complete shock ans was caught by chance at a routine cleft clinic appointment. The fusion with instability is very dangerous because a minor neck injury would cause spinal cord compression (frequently life altering damage or even death). Thank God this was caught prior to her being intubated for heart surgery. The road ahead will be long and difficult. Continued prayers appreciated.

Thanks for taking the time to visit my page.
Sincerely,
Emily Weller
(Mollie's Mom)
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I feel like I should update you all, you have been so kind and supportive throughout our journey with Mollie. We were at Children's hospital yesterday for a routine visit at the cleft Clinic. After a day full of suprises, tests, and meeting a neurosurgeon, geneticist, multiple PAs- we found out that Mollie has a fusion between the vertebrae in her neck, which is yet another peice to her puzzle. Thank God we found out prior to heart surgery (scheduled for next week) because the abnormality could have potentially compressed her spinal cord, causing paralysis, while she is intubated. So now we wait, and wonder, and continue to pray and hold her a little tighter. The surgeons need to decide weather or not she will need neurosurgery before cardiac. Please continue to pray for my little girl, my family, and for her health care providers. This was a devastating curve ball.
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Wow, above goal. Thanks again to everyone that has contributed in any way. We are comforted in knowing that our financial worries really wont be much of a concern. We also feel uplifted because we know how many people are rooting for us, and are praying for Mollie. I recently talked to a mom with a child that has been through several open heart surgeries with Mollies surgeon. She reports "He's the best heart surgeon in the world!" Thank God. We just cannot wait to get past all of this hardship. Thankyou to all that have made it a little easier.
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Wow guys... literally overwhelmed by all of your support and donations. I can't thank you all enough. We are so blessed to have such amazing people in our lives. I will be sure to keep you posted and can't wait to be able to share some good news with you all. Thanks again for your continued prayers and support for our family
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Read a Previous Update
Britney Donato
26 months ago
1
1

We love you guys. Sending lots of prayers your way!

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Morgan Roller
26 months ago
1
1

Sending ❤ and prayers to all of you.

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Kayla Rose Deloe
26 months ago
1
1

Hey! I know how you feel. My daughter Annabell was born with a large VSD and multiple other defects. She had to have open heart surgery when she was 1 week old. Please feel free to message me if you need to talk. My daughter is two now and is a happy healthy as can be little girl. She also had a chromosomal abnormality. Its called 16p13.3 deletion. Please like I said if you need to talk feel free to message me. I can also point you in the direction of some great support groups for us heart moms. God bless! And prayers!

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Mitch Weller
26 months ago

Absolutely blown away by everybody's kindness and generosity. We appreciate everything. While the money is appreciated to get us through a few weeks of no income, the kind words, prayers, and encouragement are what mean most. We love and appreciate you all.

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$3,820 of $4,000 goal

Raised by 60 people in 26 months
Created April 18, 2017
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EB
$25
Elysia Bailey
25 months ago

Continued prayers coming your way!!

MS
$100
MARY SHOEMAKER
25 months ago

Oh, Mitch & Emily, please know that I will pray very hard for all of you. Love you all

ZS
$30
Zayne Shaffer
26 months ago
AC
$50
Ashley Clark
26 months ago

Prayers and best wishes!

NM
$20
Nate McAninch
26 months ago
CA
$50
Christine Aaron
26 months ago

Sending good vibes and love your families direction, Mitch.

MW
$30
Mick and Beth Wachob
26 months ago
DS
$50
Dick and Judy Struthers
26 months ago

Praying for you and your family.

$50
Michael Maholtz
26 months ago

I hope everything goes well!

JW
$75
Jolene Wiesner
26 months ago

Johnny and I are sending good vibes your way! We hold a special place in our hearts for your amazing family, and are so lucky to have you guys in our lives. We love you all, and are here for you.

Britney Donato
26 months ago
1
1

We love you guys. Sending lots of prayers your way!

+ Read More
Morgan Roller
26 months ago
1
1

Sending ❤ and prayers to all of you.

+ Read More
Kayla Rose Deloe
26 months ago
1
1

Hey! I know how you feel. My daughter Annabell was born with a large VSD and multiple other defects. She had to have open heart surgery when she was 1 week old. Please feel free to message me if you need to talk. My daughter is two now and is a happy healthy as can be little girl. She also had a chromosomal abnormality. Its called 16p13.3 deletion. Please like I said if you need to talk feel free to message me. I can also point you in the direction of some great support groups for us heart moms. God bless! And prayers!

+ Read More
Mitch Weller
26 months ago

Absolutely blown away by everybody's kindness and generosity. We appreciate everything. While the money is appreciated to get us through a few weeks of no income, the kind words, prayers, and encouragement are what mean most. We love and appreciate you all.

+ Read More
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