Medical cost for Caiden

We are asking for help for our child Caiden he was diagnosed with a rare disease called "NF1" (Neurofibromatosis type 1) at the age of 7 with this he will being to develop non cancerous tumors all over his body and will need to have them removed but the worst part is the tumors that will develop on the nerve stem of his eyes and brain which will be cancerous and will have to be remove there is the possibility of him losing his eye sight they are giving to the age of 10 but could be sooner there isn't any meds that can help him with this so we are hoping for the best but the money will help with all the trips to St. Louis for his check up seeing how we are now down a vehicle and we have to miss work to make sure he is taken care of anything will help with our journey down this road to make sure he has the best care Caiden is an active boy but knowing that soon that will go away makes it that worst so please help us help him thank you so much