Friends and Family, I am asking for help. This is my 15-year-old niece, my brother Ken and sister in law Angela’s daughter. She is one of the bravest, toughest girls I have ever met. Last week, after not feeling well for a few days, we received the devastating news that she has been diagnosed with Acute Myeloid Leukemia with a FLT3 abnormality (a rare type of AML). This is a very fast and aggressive cancer, so they are treating it very aggressively with an inpatient chemo treatment and Maya will also need to have a bone marrow transplant. Needless to say, her parents do not want to leave her side and are missing out on work. They will be living out of this hospital for about 6 months. First and foremost, I am BEGGING for the most important thing, lots of prayers and love. This is most important, so please keep Maya and the Shapiro family in your prayers. The love and support they have received since they heard this news has been amazing so far. I am asking for any donations you can give so they can focus on caring for Maya and not have to worry about missing work. Maya could not be in better hands and is at a very renown hospital. Anything you can do to help ease the burden for Ken and Angela, along with their two sons, (one of whom will be going on his first deployment with the Marines next week- so extra prayers there too), would be more than appreciated. All donations will be going directly to Ken and Angela. If you would like to send anything to Maya directly in the hospital, you can ship to: Maya Shapiro Room P3116, Penn State Health Milton S. Hershey Medical Center, 500 University Drive, Hershey, PA 17033. Please share with all your friends and family.+ Read More
We are just over a week in from the transplant and Maya’s got a bit of a rough patch. She has a pretty bad case of mucositis and is in quite a bit of pain. Meds are helping to manage and we are hoping the body will start healing itself soon. Her sweet 16 is in just a couple of weeks (June 27th) but she will be quarantined to her room. She made an amazon wish list so if anyone would like to send her a gift or a bday card, you can either message me for my address or you can send directly to the hospital: Maya Shapiro Room P3116, Penn State Health Milton S Hershey Medical Center, 500 University Dr, Hershey PA, 17033. Gofundme will not allow me to copy the amazon wish list link, but if you just search “Maya Shapiro” under amazon wish list, it should be the only one to come up. Amazon doesn’t sell prayers or positive vibes...but please don’t forget those!! ❤️
Maya update! After a couple relaxing weeks at home, Maya went back into the hospital this week to start her final (hopefully) round of chemo. This isn’t a normal round of chemo, but part of the pre-transplant treatment. The harvest and transplant are scheduled for this coming Tuesday, so I will be reaching out again for continued prayers for both Kenny and Maya. The harvesting from Kenny will hopefully be an outpatient procedure. He may sore from the needle but he plans on only missing one day of school. Maya will be quarantined to her hospital room for 30-45 days post transplant and anything coming into the room will need super disinfected. So if anyone wants to send a card or well wishes, please mail directly to their house or mine, and we am disinfect properly before giving to Maya Thank you again for all the support, well wishes and prayers! ❤️
HMMS, the soccer league that Maya has played on for the past 7 years, did an amazing thing yesterday. They put together a “Maya Day”. They had #TeamMaya t shirts made for all the girls and in between games did a little number for Maya on the field. They made her a poster that all the girls signed and Maya loved it! It’s already hanging up in her hospital room. I just want to thank Bill, Rosemary and everyone else at HMMS for being so thoughtful and putting Maya Day together. It was a perfect day! Thank you!!!!
I know it’s been awhile since I gave an update on Maya, so thought I would share some good news. Last week she was able to go home for a few days and live a semi-normal life! She has a great time being at home with her family and sleeping in her own bed. As planned, she is back in the hospital for another round of chemo and had another bone marrow biopsy/spinal tap done yesterday. Hopefully we will get some good news on these results in the comings days/week. Maya and her entire family are so overwhelmed by the love and support they have received. Please keep the prayers going and continue to share her story! Thank you all!