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Matthew Reisig Medical Fund for Guillain-Barre

$19,600 of $30,000 goal

Raised by 223 people in 2 months
Created March 6, 2019
This is Matthew Reisig, a fun-loving, devoted husband to his wife, Ashley. He is also a new father to his daughter, Ayla, who has just turned one years old!


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On March 2nd, Matthew woke up unable to use his legs and was rushed to the hospital. Before this happened, Matthew was healthy and active - apart from having the flu a few days prior. Upon reaching the hospital, he was diagnosed with Guillain-Barre Syndrome.


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Guillain-Barre Syndrome is a rare condition that occurs when the immune system targets the body’s nerves that travel to the arms and legs instead of an illness (the flu), causing weakness and paralysis to limbs while affecting breathing.

Matthew currently has no sensation or use of his legs, has very limited use of his arms and is having large breathing difficulties that could result in him needing breathing assistance and a feeding tube.

To make matters worse, Matthew and Ashley’s 11-month old baby, Ayla, has been having seizures, adding even more stress. Ashley is having to balance testing and doctor’s appointments for Ayla with also being at Matthew’s side as he is treated in the ICU. As you can imagine, this has been a very difficult time for their family.

With proper hospital care and intense rehabilitation, some patients are able to recover from GBS, but Matthew will need all the support he can get!

The goal of this Go-Fund-Me is to cover some of Matthew and Ashley’s expenses and to help them out financially, as neither of them will be able to work in the foreseeable future and Matthew may be looking at a long recovery from this illness.

If you are able to donate, it would be so appreciated and would help them tremendously during this very difficult time! If you are not able to donate, please feel free just to reach out and let them know you are thinking of them :) I know Matthew already feels very touched by all the love he has received so far, and continuing to provide that for him is very important!

Thank you!


For more information about Guillain-Barre Syndrome:
http://www.guillainbarresyndrome.org/


UPDATE:

Thank you SO much for everyone who has donated or reached out in support of Matthew and Ashley! I know that it means so much to them!!

In the last 24 hours, Matthew has been placed on life support as he is unable to sustain his own breathing at this time. He also has a feeding tube in. He is fighting hard and, at times, is able to communicate with his eyes when Ashley uses an alphabet board. But, as you can imagine, this most recent development has been very difficult to see.

Please keep sending love and support!

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Update on Matt - Day 63

2 months in ICU

Matt had a better day today. His most productive day yet actually. We are one day closer to getting out of here and off the vent. Matt went into his chair two separate times today and did a total of 3 hours in his chair and 3.5 hours on optiflow!! He is weaning and I’m proud of him, as usual.

He is moving more and more every day. He can wiggle his whole body. He can move his arms and is slowly getting more control of the movements. Today when I was taking too long to do something he lifted his arm and looked at his wrist . Again, he’s always trying to make me laugh. He can’t move his fingers yet but I’m sure that will come any day. As for his legs, he can move them a lot above the knees but so far we’re still waiting for below the knees. This process is painfully slow but he is progressing.

He let me clip his nails today and I clipped his finger ‍♀️. He also let me soak his feet in warm baby oil filled shower caps to help his super dry feet. I managed to not hurt him doing that.

He got a little but more sleep last night but still not much. I’m hoping tonight is even more.
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Update on Matt - Day 62

Today was rough. Matt hasn’t slept and last night was the worst sleep. He was up probably every 30 min. He tried not waking me up but he needs me sometimes because I’m the only one who can understand what he’s trying to say. I get tired and frustrated sometimes because sometimes the things he wants can seem so easy for a nurse to do. Then I feel guilty for getting frustrated and Matt feels guilty for waking me and we’re btkh still just exhausted.

The kicker to the crappy night was when Matt peed at 5 am. He no longer has to have a catheter in because his bladder is working but since he can’t move still he has to have a urinal placed by a nurse. For some reason they can’t seem to get this angle right so when they removed it at 5am they spilled it on him ‍♀️. This has happened many times and it’s super frustrating. It makes Matt annoyed that I didn’t just wake up and makes me feel guilty that I didn’t just wake up. This is just one of a number of frustrating things that come with this disease.

After that crappy night Matt was grumpy and exhausted. He tried to do his physio but he was so tired he just couldn’t finish. After that he didn’t want to get in his chair or do the optiflow. He did get into his chair for about 30 min so that they could switch out his bed because it had a bump under his butt that was driving him nuts. Other than that we took a rest day today. My wish for this evening is that he has a great restful sleep and I have a restful sleep so that we can be back at it tomorrow to keep fighting for our future.
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Update on Matt - Day 61

We keep having successful days. Matt is continuing to spend 2/3 hours a day on optiflow and I’ve lost track of how many days he’s got into his chair.

Today, a nurse Matt had a few weeks ago came in to turn him because his nurse was on break. I asked him to show her how he can move his arm and when he did it his whole arm flew up high enough to tough his face!! We were both shocked . Even Matt was laughing and smiling when it happened. He didn’t even want to try because he was so tired and I was like, you have to show her. Then that happened.

He has no infection in his lungs and they’ve decided to start doing X-rays of his lungs once a week instead of every other day and they are doing blood work twice a week instead of every day. Things are continuing to look up. Since his lungs are getting stronger, he is tolerating being put flat a little better too because he can breathe a little easier. This makes turns and cleans a little less stressful. It still causes him anxiety but the amount is less.

Now I just need to get this constant anxiety out of my brain so that I can appreciate all of his improvements properly.
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Update on Matt - Day 59

Matt is getting a little bit better every single day. We are both so tired though. Matt’s soooo tired from the moment he gets up in the morning and then the moment he goes to sleep and can’t sleep. He’s in so much pain, neuropathic pain in his feet that’s so bad he can’t barely stand it. On top of that, since he’s doing active physio now his entire body is also sore because he’s working it out daily.

He’s amazing though. He was in his chair for 2.5 hours today and he did Optiflow for around 2 hours. They also deflated the cuff that holds up his trach while he was doing optiflow. I don’t know exactly what that means but I know it makes the process even more difficult. It was very difficult for Matt near the end and when we called the respiratory therapist to come and put him back on the vent it took them 40 min to get there. They were all busy in other rooms with people who were doing worse. Matt’s vitals were all stable so even if he felt like he couldn’t breath, he was.

We were pretty upset about this whole situation and then then later the doctor came in and said that they had actually been testing him to see how he would do. I’m not sure if that was a cover for not coming fast enough or if it was real or how I feel about it but Matt wasn’t happy with it.

They’re making it up to him by letting me bring in daisy to see him tomorrow though.
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$19,600 of $30,000 goal

Raised by 223 people in 2 months
Created March 6, 2019
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