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Mateo's Medical Expenses

$11,216 of $5,000 goal

Raised by 109 people in 3 months
Created March 8, 2019
Our nephew, Mateo, was born to my brother and his wife (Lester and Sandra Silla) on March 4th and has had many complications following his birth. He has been transferred to CHLA (Children's Hospital Los Angeles) so they can further manage his care.


This is what we know so far about Mateo's condition:

1. Acute Renal Failure - Mateo will start dialysis until expected recovery of function.

2. Acute Gastric Perforation - Mateo had surgery to repair his intestines and has been on antibiotics to prevent sepsis. So far, bleeding has been controlled and infection has been prevented.

3. Imperforate Anus - Mateo will need a colostomy bag until doctors are able to reconstruct it.

4. Seizures - Mateo is taking anti-convulsants (anti-seizure medication). Doctors are still not sure what is causing seizures and are doing tests to find out.

5. Anemia - Mateo has already had several blood transfusions and will continue to have them as needed.


Mateo will need to continue these treatments and will stay in the hospital during this time. We are unable to anticipate what sort of care he will need beyond this. The family’s out of pocket expenses with insurance will be approximately $5,000. We are kindly asking for any donation to help our nephew and his family. All donations will go directly to Mateo's mom and dad (Lester and Sandra) to pay for Mateo's hospital bills and any additional money raised will be used towards Mateo’s aftercare.


Please keep Lester, Sandra, Liam, and Mateo in your prayers and thank you so much,
Othello and Jesica Silla
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Update April 2019 continued (from Lester Silla, Mateo's dad)

Current Situation

Currently Mateo remains in NICU.
PD has been suspended since yesterday morning, due to fluids leaking around the catheter.
The blood clot in the brain remains untreated.
There is a clot in the PICC line. The medical team still needs access to the PICC line to draw blood, give transfusions, and give IV. The doctors are monitoring the clot.
Mateo recently started some bottle feeding with formula. He also gets some milk via a G-Tube.

Future Plans

Mateo may get transferred to the Kidney floor to continue with PD. It seems that the nephrologist and PD nurse are called every day to address problems with PD.
Doctors may eventually treat the blood clot to the brain with blood thinner.
The medical team is trying to determine what caused all of these problems. Hematology and genetics are working on Mateo’s case.
Mateo is not going home this month according to a Director of the NICU. We are hoping Mateo can come home in May or June.


Epilogue
We know that the road ahead for our family will have many challenges. We have the following thoughts:
If blood thinner is used to treat the blood clot in Mateo’s brain, will the blood thinner cause uncontrollable bleeding in other areas?
Will Mateo’s kidneys come back?
Will Mateo need a kidney transplant?
Is it safe for Mateo to have his colon surgically attached to his anus?
What other surgeries will Mateo require?
What type of neurological/physical problems will Mateo have?
What other problems will Mateo encounter?
When will Mateo be released from the hospital?
What will Mateo’s quality of life be?
We don’t know what the future holds for our son. Ultimately, only God knows our son’s future. During our darkest moments in the NICU, we found ourselves constantly praying to the Lord and reading Scripture. I found myself constantly thinking of these two Scriptures:
“Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.”
‭‭Philippians‬ ‭4:6-7‬ ‭NIV‬‬
https://www.bible.com/111/php.4.6-7.niv
“Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.”
‭‭Psalms‬ ‭23:4‬ ‭KJV‬‬
https://www.bible.com/1/psa.23.4.kjv
We are very grateful for the many people that have helped us and continue to help us in this trying situation.
We are thankful to the Kaiser and CHLA medical team for providing excellent care to our son.
We are thankful for our relatives, friends, GoFund me partners, and others who have prayed for us, provided emotional support, provided financial support, provided housing, provided transportation, provided food, took over parenting duties for Mateo’s brother, and other practical support.
Ultimately, we are also very thankful to the Lord Jesus for His mercies on our family and son.
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Update April 2019 (from Lester Silla, Mateo's dad)

Earlier this month our son, Mateo, turned one month old. Mateo has spent his entire life in a hospital NICU. To say this is a challenging time for our family is a vast understatement. I can safely say that we’ve never had endured as much suffering in our lives until now. Normally I don’t like to post anything too personal on social media (or GoFundMe), but since I’ve shared Mateo’s part of Mateo’s story with you, I believe I owe you all a brief summary of what’s been going on:

1. Mateo was born at Kaiser Permanente Woodland Hills on March 4. 

a. Mateo was born with imperforate anus. Basically Mateo’s colon didn’t connect to his anus so Mateo was unable to poo. 

b. Mateo was transferred within a few hours of birth to Kaiser Permanente Sunset (Los Angeles). 

c. Doctors at Kaiser Sunset performed an ostomy surgery so Mateo could poo in a bag. 

2. Early in the morning on March 6, the doctors informed us that Mateo had severe internal bleeding and had lost a lot of blood.

a. The doctors suspected that the bleeding was from the stomach or intestines. 

b. The surgeon informed us that he would attempt to save our son, but could not guarantee anything. 

c. The surgery lasted perhaps 3 or 4 hours. 

d. After the surgery, the surgeon informed us that the bleeding was caused by necrosis of Mateo’s stomach. 

i. Necrosis is when tissue dies.

ii. Necrosis in infants is extremely rare. The surgeon had only seen necrosis in an infant one other time in his career of 20 years +. 

iii. The surgeon cut out the dead tissue of the stomach and sewed the remaining healthy stomach back together. 

e. The surgeon warned us that the next 24 to 48 hours were critical to Mateo’s survival. 

3. On March 7, the nephrologist (kidney doctor) informed us that Mateo’s kidney’s had shut down due to the loss of blood. We discussed the following with the nephrologist:

a. Mateo’s kidneys may restart within 24 to 48 hours. 

b. Mateo would need dialysis if the kidneys needed longer than 48 hours to restart. 

c. We should consider a transfer to Children’s Hospital Los Angeles (CHLA) for dialysis on Mateo since Kaiser does not offer dialysis to infants. 

d. We agreed with the nephrologist, and Mateo was transferred to CHLA later that day. 

4. There are two forms of dialysis available to infants that I know of. 

a. Peritoneal Dialysis (PD) 

i. This involves filling the peritoneal cavity (near the belly) with a sugar water solution. 

ii. The sugar water sits in peritoneal cavity for a while and attracts the toxins. 

iii. The toxins exit when the peritoneal cavity is drained. 

iv. This form of dialysis is generally much safer than hemodialysis.

v. Mateo was not a candidate for peritoneal dialysis because he just had major surgery to his midsection a few days prior.

b. Hemodialysis via a CVVH machine.

i. This involves surgically attaching a catheter to the infant’s heart. 

ii. The machine extracts the blood from the body of the infant and cleans the blood through the machine. 

iii. This form of dialysis is highly risky and may cause problems such as heart attacks. 

iv. This was the only method of dialysis available to Mateo upon admission to CHLA. 

5. Hemodialysis was attempted maybe four or five times from March 9 to March 14. 

a. Hemodialysis was successful during the first attempt for roughly 24 hours. The machine then clotted and stopped functioning. 

b. The next time hemodialysis was attempted, Mateo nearly had a heart attack.

c. The subsequent attempts at hemodialysis were not very successful. The machine maybe ran for 1 or 2 hours before clotting on the subsequent attempts.

d. During the final attempt at hemodialysis, a blood clot travelled from the CVVH machine through Mateo’s heart and then up to Mateo’s brain. During this event:

i. Brain damage occurred.

ii. Mateo had a stroke.

iii. The blood clot burst and caused active bleeding and blood clots in the brain.

e. Hemodialysis was suspended, and the doctor’s gave us an “end of life” discussion. 

6. A couple of neurologists discussed the MRI results to us.

a. The MRI showed three large damage areas to the brain.

b. The extent of the physical damage to the brain cannot be accurately assessed until a follow up MRI.

c. Areas to the brain damaged mainly affect motor control. 

d. The baby’s brain is like a blank hard drive. Information just beginning to written on the ‘hard drive.’ Other parts of the brain will hopefully learn to compensate for functions that the damaged areas were supposed to have.

e. Mateo has a blood clot in his Venus vein. Doctors are monitoring the clot. Doctors are waiting for the clot to clear itself or may eventually treat the clot with blood thinners. 

7. Peritoneal dialysis (PD) has been conducted since March 15 (with some interruptions).

a. Prior to the initial attempt at PD, the medical team provided the following warnings:

i. Doctors were unsure that PD would work, since Mateo had a major surgery in the midsection the week before. 

ii. If PD didn’t work, doctors would flush medication down Mateo’s kidneys in an attempt to force Mateo to pee.

iii. If the medicine didn’t work, there were no options left to treat Mateo.

b. The nephrologist successfully started PD using a temporary dialysis catheter to the peritoneum on March 15.

c. The temporary dialysis catheter fell out fell out on March 27. The medical team decided that it was best for the surgery team to surgically place a dialysis catheter. 

d. The permanent dialysis catheter was placed on 3/29. PD was immediately resumed within a few hours. 

e. PD has been going on, with some interruptions, after the permanent dialysis catheter was surgically placed on 3/29.
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$11,216 of $5,000 goal

Raised by 109 people in 3 months
Created March 8, 2019
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