bed/bathroom extension

£2,150 of £18,000 goal

Raised by 94 people in 23 months
My daughter Makiyla-Rose is a 4 year old girl with multiple medical conditions, but so far is undiagnosed.... she has no muscle tone, is unable to sit up or even hold her own head, she will never do this! She is on 24/7 oxygen to help her breathe, she requires daily suction, she is nil by mouth so fed by a tube, she has epilepsy, this causes her to stop breathing during a seizure. She is also registered blind.. despite all of her problems she continues to smile and everyone who meets her falls in love with her.
My beautiful girl is now too heavy for me to carry up and down stairs, in and out of a bath etc, so we applied to the council for a downstairs bedroom and bathroom for her... they drew up a plan that took away all of my living room and would have left my daughter in a bedroom with no window, no natural light at all (a child that can only see light) and she would be stuck in her room all of the time as the family space would have been taken away....I could not accept this for her, it would be cruel. An architect drew a fabulous plan for her with double doors into the garden, and a decent sized bathroom attatched... the council told me I had to find my own builders as I didn't accept their plans... I have done this and the quotes come back a lot higher than expected.... Makiyla-Rose is entitled to £30,000 for adaptions as a disabled person... the quotes have come back at £18,000 more than this! All I want is a bedroom and a bathroom for my little girl, that she can access with ease, with the right hoisting equipment, a bath (that she's loves) and a window for light and fresh air that every human deserves so I can continue to look after her like she should be! I'm asking for nothing more than this little girl deserves.... please donate if you can to make a little girls life that is already extremely limited in every way everyday just that little bit easier and more comfortable. xx

+ Read More
Please please help my little princess!! She is going to end up living in hospital in the next year or so if we can't get this sorted.. she's too heavy to lift.. she is hurting our backs, we are no doubt going to hurt her... she needs the correct hoisting equipment and a bedroom for privacy and a bathroom she can access!! She currently only has 1 bath a week as this is all we can manage... getting her upstairs, through door ways and having to take her naked, soaking wet through the landing onto our bed to dry and dress her.. again so many risks of knocking her fragile little bones and again leaning over our bed to get her dressed, it really hurts our backs!!
+ Read More
Please donate if you can... £1 from everyone on my friends list is £500 ... every penny counts... we moved into our house when she was 3 so we could have her extension done for when she was at this age, so we wouldn't end up in the situation we are in! The council messed us about and wasted our time for almost 2 years now!! Please help her so she can have the basics of an accessible bedroom and bathroom... everyone deserves that! We are closer to getting the answers from the council now we just need the extra funding! Please please help her!!
+ Read More
Please donate if you can... £1 from everyone on my friends list is £500 ... every penny counts... she's almost 5 now and moved into our house when she was 3 so we could have her extension done for when she was at this age, so we wouldn't end up in the situation we are in! The council messed us about and wasted our time for almost 2 years now!! Please help her so she can have the basics of an accessible bedroom and bathroom... everyone deserves that!
Happy little girl!
Meeting her baby brother! ❤
+ Read More
2 weeks until this little lady is 5! I can't believe how quickly time has passed! Please share and donate if you can... let's get her extension done before Christmas!!
+ Read More
Read a Previous Update
Yvonne Ellis Cosacchi
17 months ago

Dandy walker syndrome?

+ Read More
Jessica Snow
18 months ago

Has she been tested for Mitochondrial Disease? Prayers for your baby girl ❤

+ Read More
Laura Jane McMahon
19 months ago

Alpers Disease flipping autotext

+ Read More
Laura Jane McMahon
19 months ago

hope you reach your goal is had little boy with same symptoms and he had Allerston disease which went undiagnosed for some time. sending u all lots of hugs and good wishes

+ Read More
Angie Chavez
22 months ago

May God bless this most beautiful girl her wish to have a nice bedroom and bathroom as she pleases for the help her and her mother needs plz everyone help this family grant this princess her wish May the Lord hear us as this beautiful girl needs whta she needs Lord plz help this family as they are in need of help plz In the name of Jesus Amen

+ Read More

£2,150 of £18,000 goal

Raised by 94 people in 23 months
Created October 4, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
£80
Anonymous
5 months ago
1
1
JH
£10
James Homer
10 months ago

Hope this helps

AH
£40
Alicia Hagan
11 months ago
1
1

Hope all went well with the run Dave! Sean, Alicia & Freya

Yvonne Ellis Cosacchi
17 months ago

Dandy walker syndrome?

+ Read More
Jessica Snow
18 months ago

Has she been tested for Mitochondrial Disease? Prayers for your baby girl ❤

+ Read More
Laura Jane McMahon
19 months ago

Alpers Disease flipping autotext

+ Read More
Laura Jane McMahon
19 months ago

hope you reach your goal is had little boy with same symptoms and he had Allerston disease which went undiagnosed for some time. sending u all lots of hugs and good wishes

+ Read More
Angie Chavez
22 months ago

May God bless this most beautiful girl her wish to have a nice bedroom and bathroom as she pleases for the help her and her mother needs plz everyone help this family grant this princess her wish May the Lord hear us as this beautiful girl needs whta she needs Lord plz help this family as they are in need of help plz In the name of Jesus Amen

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a £5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.