My beautiful girl is now too heavy for me to carry up and down stairs, in and out of a bath etc, so we applied to the council for a downstairs bedroom and bathroom for her... they drew up a plan that took away all of my living room and would have left my daughter in a bedroom with no window, no natural light at all (a child that can only see light) and she would be stuck in her room all of the time as the family space would have been taken away....I could not accept this for her, it would be cruel. An architect drew a fabulous plan for her with double doors into the garden, and a decent sized bathroom attatched... the council told me I had to find my own builders as I didn't accept their plans... I have done this and the quotes come back a lot higher than expected.... Makiyla-Rose is entitled to £30,000 for adaptions as a disabled person... the quotes have come back at £18,000 more than this! All I want is a bedroom and a bathroom for my little girl, that she can access with ease, with the right hoisting equipment, a bath (that she's loves) and a window for light and fresh air that every human deserves so I can continue to look after her like she should be! I'm asking for nothing more than this little girl deserves.... please donate if you can to make a little girls life that is already extremely limited in every way everyday just that little bit easier and more comfortable. xx
Dandy walker syndrome?
Has she been tested for Mitochondrial Disease? Prayers for your baby girl ❤
Alpers Disease flipping autotext
hope you reach your goal is had little boy with same symptoms and he had Allerston disease which went undiagnosed for some time. sending u all lots of hugs and good wishes
May God bless this most beautiful girl her wish to have a nice bedroom and bathroom as she pleases for the help her and her mother needs plz everyone help this family grant this princess her wish May the Lord hear us as this beautiful girl needs whta she needs Lord plz help this family as they are in need of help plz In the name of Jesus Amen