Madison Marli Badalamenti's Story

Madison Marli Badalamenti in her almost 16 years of life had lived a life that few people ever live. The day she was born the DRs said that she would live only five days. From that moment on her fight for life began. She was born with Osteogenesis Imperfecta, OI a brittle bone condition. ON May 24 2000 Jen and I became a team to make sure that Madison would live her short life to the fullest no matter how difficult or how many sacrifices or tears we would shed. Madison became our everything. Madison was going to live life to the fullest extent. Many doctors offered there expertise and services and we gratefully accepted them. Sometimes we determined that some operations were just too risky. Especially with neck and spine surgeries. We did not want to waste any of her precious time. Living in a life state of pain and going through continuous surgeries and years of recoveries and then more surgical revisits. Because we new that her little body could not tolerate that. God had a special plan for her. Jen and I tried our best to have Madison live a normal as physically possible life. We didn't want her to be home schooled. So we became Madison's advocate and after many meetings with school administrators we became her chaperone. Jen went with her every day to help her until we could get her an aid to protect her from getting run over by the other children. Madison thrived she became a straight A student. And went to VES , VMS and VHS all the same school that I had gone to. She became a bit of a celebrity with her classmates and teachers because of her unbreakable spirit and that her Dad was a working Actor. As Madison got older and wiser she began to understand what the DRs were saying about her body and condition. Her biggest fear was becoming paralyzed and losing control over her bowels and suffering embarrassment in front of her peers. I would talk with her for hours and try to reassure her that this would never happen even though the DRs said it was inevitable and she was destined to be that way if we did not operate on her neck to straighten it out. After careful consideration we determined that it was just to risky. We decided to get her a neck braces and back braces to help out with the curves. And it worked as good as possible. Madison touch so may people and became a hero not only to Jen and I but everyone she met. When I booked The Curious case of Benjamin Button she taught me how to use a wheelchair and was my inspiration to play Benjamin Button and the role was nominated for an Oscar. When the AMAPS invited me to be a guest speaker I gave her credit for my accomplishment. When madison turned 6 she asked Santa Claus of a little sister. Jen and I were afraid to try to have another child just because of the possibly of OI. We asked Madison geneticist what the odds were of that happening again. And it was a million to one. The next year Ava was born healthy. Madison and Ava were the best sisters you could ever have. Now Ava is our everything. In her short time on earth she accomplished many things she was and actor an artist a writer an avid reader and hero.
She has traveled to Paris, Venice Italy, Rome, The Vatican, Freeport Grand Bahamas, Los Angeles, NJ, NYC, Miami, Atlanta, New Orleans, North Carolina, Washington DC, Marryland, Delaware, Corder lane Idaho, Spokane Wa, Seattle Wa, Orlando Florida, Venice Florida, Disney world and Disney Land and Harry Potter world. Madison got go to a Red Carpet Premiere of Pirates of the Caribbean At world End, where she on national television. Madison also lived in the same house that I grew up in.
She has inspired me and everyone that has crossed her path to make the best our of their lives no matter how difficult it may be. God had surely made her a Angel now. GOD BLESS YOU MADISON WE LOVE FORVER

The funds are for a Funeral and Church services also a Casket and Burial plot under a beautiful Oak tree. Bag pipe player, reception etc.   Madison Deserved the Best!   

Thank you for your Generosity and compassion.